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Brain & Nervous System Disorders Message Board

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Please help. On 26th June, my 6 year old woke up with loss of movement to her arms. This quickly spread to her right leg and torso (but not left leg) She had no pain, sickness and lost no feeling at any time. MRIs on brain were fine but revealed a spinal syrinx near her shoulderblades. The doc says she's had it since birth as a repeat scan last week shows it to be the same - no growth or shrinkage. She had had a small kick from her 3 year old sister the night before but the consultant said that wouldn't cause this damage. She is slowly recovering but we don't know what's caused this loss of movement and if it will happen again. We are desperate for some answers. Also of possible relevence....We had returned from Jamaica 3 weeks before this happened where she was well (though we had spent time in the forests and water rafting) Before our trip she had been vaccinated against Hepatitis and had also had a school booster. Blood tests have come back fine so the doc saays it can't be viral. She has been tested for Lymes Disease also.
Hello, I am sorry to hear about your daughter. I have two children of my own and know what a parent goes through when our children are ill or suffering, we want to do everything in our power to take the pain or illness away. I didn't know what a syrinx was so i had to look it up. Her symptoms point right to that as being the cause from what I read, but the neuro. doesn't think it is? That confuses me. I know you said it has not grown or changed, is it possible it doesn't need to, to start causing symptoms suddenly? I have seen where somebody has something all their lives and it starts causing symptoms seeminly out of the blue. I can only suggest you do all the research on the syrinx yourself and then on her symptoms. I have seen where people have gone from one doctor to another and finally found an answer. I have been in this boat myself and know the extreme frustration. Like you, I am not the type to sit back and not have an answer, if I don't like what I hear, or don't get an answer to the source so I can be treated, I do the homework myself or get another opinion. There is a reason for her symptoms, maybe a different test would show what the MRI didn't. Good luck to you in your search.

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