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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Susisu -

I am sorry for the loss of your baby. Please take care of yourself and treat yourself with care.

I was just recently diagnosed with Lyme disease and two tick borne coinfections called Babesiosis and Ehrlichiosis. These bacterial infections can cause all kinds of Central Nervous System issues. They have been known to cause paralysis in some people. These infections can cross the placenta as well.

I have had migraines since I was 16 with what they call "Aura" - I have experienced numbness that jumps from my face to my hands. The headaches I have had with Lyme and coinfections has been a low grade dull ache, especially behind my eyes at times. I also would get numbness and tingling in my skull.

I also experienced the worst swollen glands of my life on the right side of my neck. They were so bad that you could see them. Those went away and then I started to have severe digestive problems...lost 15 lbs. in three weeks. Then that subsided but has never gotten back to normal. I have severe fatigue and visual disturbances too. I would get double vision sometimes...as well my right eye would spasm intermittently. I can't think straight and all of this has worsened on the antibiotic therapy. This is expected...you have to get worse to get better when you have chronic lyme.

In the last 6 months I have experienced intense anxiety, panic attacks and insomnia that cycles with flare ups of the infection. My legs feel very heavy at times since I have started taking an antibiotic to treat the infections. Sometimes I feel like I may never move them again. Have you been taking antibiotics lately?

I also could no longer drink caffeine without feeling EXTREMELY jumpy. I would drink two sips of wine and the room would start spinning. As well, others have said that medications no longer work the way they used to when the have lyme...typically they become highly sensitive or the drug just doesn't work anymore.

Please take the time to check out the lyme disease board and see if you can relate. Symtpoms that go with lyme and coinfections do differ from person to person but there tends to be some that everyone experiences. I don't remember being bitten by a tick, nor did I have a bull's eye rash. I started having sluggish circulation, a drop in body temperature, and lower blood pressure when I started to recognize symptoms. It was not easy getting diagnosed. I had to see a Lyme Literate Medical Doctor and go through blood tests that used IgeneX standards. I saw 15+ doctors and had numerous blood tests over six months before we finally found it. By then I was having chest pains, heart palpitations, and hair loss.

Good luck and I hope you feel better soon. I am so sorry that you were treated with such disrespect by the paramedics.

Take care,
-ncgirl88





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