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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Hello, I'm new here, wanted to say hello.A recent MRI this month found I have a pineal cyst, also with white matter brain lesions (first they thought it was MS, though!). I have had so many symptoms for some time now, including terrible headaches (every day, constant), loss of balance, blurred vision, memory problems/cognitive problems, fatigue (though I don't know if it's connected),"feeling sick," and other neuro problems.Also seizures.It's been hard to find a good doctor who knows about pineal cysts, though, that's been the frustrating part. I am wondering what causes pineal cysts. Also, does any one know any web sites about it?
Would appreciate knowing where to find information about this.Thanks.

bluerose
Hi,
I hope this helps. I looked up info at cpmcnet.columbia.edu. It's the web site for Columbia-Presbyterian Medical Center in New York City. It gives you info you can understand.

Also we are going to see Dr. Peter Black at Brigham Women's Hospital in Boston, MA. I heard he is one of the best brain surgeons in the country. He also specializes in the pineal region. Dr. Black's phone # is 617-732-6810. My daughter's appt. is June 29. I'll let you know how we make out.

My daughter is 11. She has ALL of the same symptoms you have and more. Her heart and blood pressure are irregular, etc. She has been unable to go to school for over 1 1/2 years.

I also found a doctor who is checking my daughter's melatonin level. That way if the pineal gland is not producing melatonin she will be able to take a supplement, which may get rid of some of the symptoms.

I do not know what causes pineal cysts. I never found any info on that. I know a lot of people have them and can not find any help.

Good luck. I hope you find the help you need. Hopefully we can help each other. You are in my prayers. Please let me know how you make out.

Cheryl

[This message has been edited by Dodger8 (edited 06-25-2001).]





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