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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Hello All, I too suffer from the pounding noise in my head. I have had this for about one year now and some days, especially at night when I go to bed and lay my head down the "noise" level in my head is unbearable. I too have tried to see if others can "hear" it using stethoscope (my sister's a nurse), they can't. Most of my family thinks it's "all in my head", which of course it is, but they have no idea how distracting this can be. Though it's not really painful, in that it never hurts, it's loud. Night time is the worst when I am ready to go to bed and I lay my head down, the pulse is so loud. Most people (Doctors) aren't familiar with this condition, though I was thankful when I saw my Doctor three months ago and he too suffered from this same condition. I forgot what he called it, I will find out and add it later. The good news (according to him) is that it isn’t “life threatening”, the bad news (always followed by the good news) is that you just have to “live with it”. He did prescribe a medication called: Butalbital/APAP/Caffeine, generic for Fioricet. Butalbital/APAP/Caffeine is a non-aspirin pain medication (acetaminophen) and caffeine. This non-narcotic pain medication and relaxant is often prescribed for tension headaches caused by contractions of the muscles in the neck and shoulder area, and migraine. (Web definition). I found that drinking a cup of coffee will often lessen or temporarily eliminate the symptoms. The fact that the medication has Caffeine as main ingredient led me to think this might work, and it seemed to. I was worried that taking the medication prior to bed would disrupt my sleep (again the caffeine) so I keep the med bottle in my nightstand and take it only when the noise level is really bad. When I’ve had to take it at night, I am often so exhausted, from lack of sleep that I have fallen asleep and the caffeine hasn’t been a problem. Taking the med in the daytime has never been a problem, but If you’ve ever had heart problems, I’d be concerned again it feels a bit like a big jolt of caffeine in your system, which can be an issue for the heart. My throbbing is primarily in my neck, on the left side, often times I have applied a slight pressure against the left carotid artery to briefly stop the pounding, so I can function/sleep, which works, but my husband says that can’t be a good thing and worries that I may be doing some “other damage” by reducing the amount of blood that flows. As soon as I get the official name for this condition I will post it, so if anyone is reading this check back within the next week or two to see if it’s been posted. Good-Luck to anyone suffering from this. Hope this info helps. Kellykid
I've had pulsatile tinnitus since feb 2005. Wondered how it affects the sleep of other sufferers. I can be relaxed enough to fall asleep, seems to lessen before bedtime now, but it never fails to wake me throughout the night. Sometimes hanging my head off the side of the bed helps. Don't know if it's a muscular problem. I've read they tense up and you should try to sleep on your back, hard for me to do. I'm able to fall asleep quicker on my right side, the pulsing is on my left side. Having a hysterectomy 2 months prior to the start of this horrible condition may have contributed, don't know..hormonal changes, etc. Also caring for an autistic son plus a granddaughter with it, has caused me to perhaps grieve too much, dr has said it's compulsive thoughts that can contribute. I feel it's more vascular, has to be related to heart, since the pulses are in tune with it. Had an MRI recently, don't have results yet. If it's ok, he wants to do another cholestrol test. I've decided to do the red grapefruit a day thing, supposed to work quicker than oatmeal. Haven't noticed a whole lot of difference after 2 wks. I like them so it can't hurt.

I do find that doing things that make you exert shoulders /upper body I feel better. I seem to have a tendency to have tight breathing. Enuf for now. Thanks





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