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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

Hi there again,
At first I was freaked out by the symptoms because carcinoma cancer has a special face tingling phenomenom as its symptom which is usually following a meal, drinking, or any excitement.
I had cancer ruled out at the beginning also because of the general lymphedenopathy I had had.
Once evrything obvious had been ruled out and nothing was left, one doctor finally took my advice to test for viruses (I had had a hunch for a while that it could be this) and HHV1, 2, EBV, CMV and HHV6 came back positive with the EBV and HHV6 being the highest. By the time the results came back I even underwent some form of liver hepatitis so the pain was excruciating. I am not an expert and I always forget which of the Herpes travels along your nerves (definitely Herpes Zoster(chicken pox)) and Herpes 1 I think (somebody correct me if I am wrong). I am a senisitive person so it seems that HHV1 or 2 have taken up momentum in the last three months but they will go unnoticed in most of the population. Doctors underestimate this and when I finally found a dr who would listen to me (a countless no. brushed me away as a lunatic) I was told that not many drs know what to do with this and prefer to send you to the shrink than take care of it. It may not be your problem but it has sure been an interesting road to discovering this problem for me over the past two years. The hell I had been through, all of the dental work I had done for nothing etc... I once had a herpes facialis (cold sore) strip across my entire chin a few years back and it seems that the location of it was stored in my nerve memory and the stress and EBV I had had in the past two years "re-awoke" it. It is literally travelling along the trigeminal nerve, from the 1st molar (which is healthy) to my ear and into my eye causing sinus disfunction, head pressure and facial tingling. The stage you all describe was a half a year ago for me when I thought the entire joke had reached its peak and I had all of my wisdoms removed because they were being blamed for it. On and off, my the sides of my face not only burn and tingle up to my temples but they go numb and cause me to lose 100 % control of my speech and to drool a bit. I have learnt how to control that situation now (I am a teacher) so it is not so depressing.
Somebody mentioned IBS i their post which as a dr, would be a hint for me to test viruses. Once again, from all of my reading, IBS is connected with Herpes and Herpes are connected with CFS which is something that is difficult to diagnose.
Temporal Arteritis is artery inflammation so basically I have a sharp lump on my right temple just where the hairline begins because the "temporal" artery is inflammed. I have had it for 6 months and it will not go away. It can cause numbness, vision problems and jaw pain as well. The whole incredible thing about this for me and the new dentist I have who actually cares to help is the way it is affecting my mouth. It has baffled dental clinics and had dentists send me away saying that maybe I am stressed and need a shrink. I am now in agony because of an experiment my ddt and I have started, root canaling my first left molar which seems to be sitting on a trigger point. He has opened Pandora's box. The tooth was healthy when he started and whatever is living underneath, he is not sure whether it is viral or bacterial is causing excruciating pain and the trigeminal neuralgia on the left side.
It has been a long road and recovery is far away...I see it more like learning to live with it at the moment which is difficult because it all comes and goes as it pleases. I have been given Neurological meds and one of them is quite good because it doesn't have any severe side effects and B Complex is a must. I have always leaned towards herbs so I drink a lot of herbal teas. When I feel the "attack coming" on it is best to relax and I find that the symptoms are less severe then.
What other symptoms do you have? Before it starts, do you feel like a "load" is coming on? That will help determine whether or not it is appropriate to have your viral titers checked.
Please write a bit more about your symptoms.
Thanks....this really does interest me. The human body is precious and fascinating thing.

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