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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

Hi Everyone
I had many of the same symptoms as all of you in 1995. It started with a terrible headache and a weakness in my right arm and leg, and when I woke up in the morning, I had paralysis down my whole right side, my face drooped, as did the corner of my eye. I had slurred speech and my short term memory was so bad I couldn't remember what I was trying to say from the beginning of a sentence to the end of it. Doctors thought I had a stroke, but after an MRI, CATscan, and doppler ultrasound nothing was found. I put it down to stress, and started living healthier, walking great distances and watching what I ate. I was not on anti-anxiety or anti-depressant medication at that time.

I had the odd tingling through the years but nothing lasting. Then in November of 2002, I woke up in the middle of the night and my right side of my face was drooping again, and I had some minor tingling in my right arm. I started having problems with drooling out of the right side of my mouth at night. I had some difficulty with blurred vision and some headaches and now chest pain as well. Anyway, Doctors sent me for another MRI. This time they found a bulge in one of the main arteries in my brain where the arteries begin to branch. I am now awating a Angio-CATscan. They have also diagnosed me with sleep apnea. They also discovered that I have a high pressure in my eyes which can result in glaucoma. I am now on anti-anxiety meds. They think I may have a brain aneurism. Its important to note that when I started having my first batch of symptoms in 1995, I was 36 years old. I am now 44. My symptoms are very similar to those of you who have already responded on this bulletin board. I just wanted to share my story with all of you.
Hi all,
I have had the most bizarre symptoms for two years now...burning tingling head, crawling from my neck up to my scalp, burning sinuses, eye pain, ear aches, tooth aches, jaw pain etc.....
I had CTS, MRIs, scintographies etc...done but with little success. Then I got some viral results back...I tested positive for about 6 Herpes viruses of which 4 were somewhat active. I was labelled Chronic Fatigue for two years and now I know where it all blew in from. Viruses attack your nervous system. They will not show up on any imaging tests. I also have temporal artertis on the right side of my head which makes me a bit nervous in hot weather and under strenous physical work.
The nerve pain is debilitating on days, I can live with the hands and feet, but the tingling head and bizarre head pressure, eye pain and jaw ache drive me insane. Pain killers do nothing and neurological meds turn me into a zombie.
Just another thought on what it could be from my own experience.
TAke care
Hi there again,
At first I was freaked out by the symptoms because carcinoma cancer has a special face tingling phenomenom as its symptom which is usually following a meal, drinking, or any excitement.
I had cancer ruled out at the beginning also because of the general lymphedenopathy I had had.
Once evrything obvious had been ruled out and nothing was left, one doctor finally took my advice to test for viruses (I had had a hunch for a while that it could be this) and HHV1, 2, EBV, CMV and HHV6 came back positive with the EBV and HHV6 being the highest. By the time the results came back I even underwent some form of liver hepatitis so the pain was excruciating. I am not an expert and I always forget which of the Herpes travels along your nerves (definitely Herpes Zoster(chicken pox)) and Herpes 1 I think (somebody correct me if I am wrong). I am a senisitive person so it seems that HHV1 or 2 have taken up momentum in the last three months but they will go unnoticed in most of the population. Doctors underestimate this and when I finally found a dr who would listen to me (a countless no. brushed me away as a lunatic) I was told that not many drs know what to do with this and prefer to send you to the shrink than take care of it. It may not be your problem but it has sure been an interesting road to discovering this problem for me over the past two years. The hell I had been through, all of the dental work I had done for nothing etc... I once had a herpes facialis (cold sore) strip across my entire chin a few years back and it seems that the location of it was stored in my nerve memory and the stress and EBV I had had in the past two years "re-awoke" it. It is literally travelling along the trigeminal nerve, from the 1st molar (which is healthy) to my ear and into my eye causing sinus disfunction, head pressure and facial tingling. The stage you all describe was a half a year ago for me when I thought the entire joke had reached its peak and I had all of my wisdoms removed because they were being blamed for it. On and off, my the sides of my face not only burn and tingle up to my temples but they go numb and cause me to lose 100 % control of my speech and to drool a bit. I have learnt how to control that situation now (I am a teacher) so it is not so depressing.
Somebody mentioned IBS i their post which as a dr, would be a hint for me to test viruses. Once again, from all of my reading, IBS is connected with Herpes and Herpes are connected with CFS which is something that is difficult to diagnose.
Temporal Arteritis is artery inflammation so basically I have a sharp lump on my right temple just where the hairline begins because the "temporal" artery is inflammed. I have had it for 6 months and it will not go away. It can cause numbness, vision problems and jaw pain as well. The whole incredible thing about this for me and the new dentist I have who actually cares to help is the way it is affecting my mouth. It has baffled dental clinics and had dentists send me away saying that maybe I am stressed and need a shrink. I am now in agony because of an experiment my ddt and I have started, root canaling my first left molar which seems to be sitting on a trigger point. He has opened Pandora's box. The tooth was healthy when he started and whatever is living underneath, he is not sure whether it is viral or bacterial is causing excruciating pain and the trigeminal neuralgia on the left side.
It has been a long road and recovery is far away...I see it more like learning to live with it at the moment which is difficult because it all comes and goes as it pleases. I have been given Neurological meds and one of them is quite good because it doesn't have any severe side effects and B Complex is a must. I have always leaned towards herbs so I drink a lot of herbal teas. When I feel the "attack coming" on it is best to relax and I find that the symptoms are less severe then.
What other symptoms do you have? Before it starts, do you feel like a "load" is coming on? That will help determine whether or not it is appropriate to have your viral titers checked.
Please write a bit more about your symptoms.
Thanks....this really does interest me. The human body is precious and fascinating thing.
[QUOTE=bbithead;2831092]Hi y'all - great to discover many with identical symptoms - helps me to realize that (1) I'm not crazy & (2) I might be able to make it better! Quick bio & history: 43 year old guy, married, kids, last 18.5 years at Umungous Pkg Shipping company on computers, 3 yrs before that on computers, then USMC; overall healthy, generally good diet, not that good at the excercise!

First neuro related problem 9/2004 when I spent 4 solid days (and I mean solid, with little movement) on PC at desk. 5th day (friday) started vacation. Drove a few hours to vacation site, went to sign into hotel and could not hold or control the pen, nevermind try to sign my name. Was a little scared. This continued for next 5 days, worse before better. Other symptoms were that left hand was almost as bad, both forearms felt as if they were extremely swollen, but no visual/physical change to forearms. After return from vacation, went to Dr who chkd me out and said was "Computer Related Syndrome" (which I have started to look for on web), recommended to neck stretching & don't sit at PC for any more than 20-30 minute intervals. I have not spent "solid" time on PC since and have not had re-occurence.

Roll forward to 10/2006 (5 months ago), I began getting the left scalp tingling that the majority of people in this thread describe. Also more frequent headaches, usually temporal and sore eyes. Also first time I felt like I had heart attack (very scary), have had chest pressure/discomfort on and off since, but also have a sinus infection (now clearing up since I finally went to Dr who has me on Amox). Still chest symptoms, sinus clearing up, tingles on and off always (like right now).

So, from what you're all saying, would you say the tingling is not going to completely go away, but that I can relieve it some if I lower stress and anxiety?

Thanks! [/QUOTE]


I feel the same way too. I thought I was the only one in this world who has all these funny feelings. It feels like ants craawling inside your scalp.

My symtom starts with facial numbness in 2001. I was all stressed up with works and young children in the family. My symtom has gone on and off during these few years. At the beginning, I don't quite understand how it starts and ends.

Last year I started having this slight blurr vision in the morning and dry eyes and bloated eyes too.

Went to see eye doctors they mentioned nothing wrong till I insisted on my symtons then they did a dry eye checkup for me and found I was experiencing dry eyes. My dry eyes continue on. I also have this strengthless left arms and left side chest pain sometimes since beginning of this year.
Just few months ago I start feeling the tingling effect on top of my left scalp areas. I also feel some itchness inside my left ear. Really feels like so many ants inside my ears and crawling towards my lef scalp.

Went to do a full body scan. Went on some diet and fasting.

I am taking this "extent vision" from vitamin research, I now feel better for my eyes problem.
I am taking "ultrabone" from Source Natural. It is quite good.

I am also taking EFA, a kind of fish oil. I feel better less sensation on top of my scalp.

I think it is alot to do with stress and computer work. I spend lots of hours in front of computer as well. I do experience better health if I am off the computer the whole day.

I am taking some taichi classes right now. It really help me alot for relaxing.

I think health lifestyle is the best cure of all medicine.
I have to find a way to balance our lives.

It is not easy. I know. It is worthwhile to try to keep it up....

Nice to come to the Health Board to see so many people are having similar problems. At least I now do not feel so alone.

Take care. God Bless all of us.

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