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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

HI all, Wow, all sounds so familiar to me. I have the constant 24/7 off balance, bouncy feeling and also at times I will get a thrusting feeling come over me like some unknown force is pushing me inside of myself. It feels like it comes from my eyes but I also have a terrible tension/pressure in the back of my neck and head that feels like it could explode any minute. Sometimes my hearing will fluctuate in and out too, other times I feel shakey, disoriented, out of it. My legs ache and neck sometimes which I think is from my body trying to compensate to keep me upright. It is an awful feeling, one I get all of the time, it comes over my quickly or sometimes is always there for no apparent reason. I have had all the tests you could imagine. I have been in 2 accidents in the past where now looking back I think I suffered whiplash but my neuro otologist dosnt think this is playing the major role in all of this. He said my rotational chair test showed an abnormality where the signals from my eyes and ears isnt't getting to my brain. So I guess its brain damage in some form. All I know is that it really sucks and is destroying my life. As to all of the visual stuff I too have that consistently 24 hrs a day. Flashes, floaters, specks, colors popping up, shimmering in the distance. He has diagnosed my with something called MAV(migraine assoc. vertigo) and I have to take Topamax, xanax and go to vestibular rehab to try to get my brain to compensate for this. I tried the whole gammut of meds, antidepressants, trycyclic antidepressants, beta blockers but I am extemely sensitive and had bad reactions to these. I am hoping that this "migraine" that has been with me 24/7, 365 will finally break, the funny thing is rarely do I have the true migraine just a headache but he said that dosn't matter. I am skeptical but will try anything as this has ruined my life and created quite a bit of panic for me. I am still working however which has been the hardest thing for me, I am an RN and it is hard to maintain myself in that fluorescent lit, crazy place it really sets me off big time. Hope some of this helps and so you know you are not alone. It is a mysery though for sure.
Best wishes to you,

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