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Brain & Nervous System Disorders Message Board

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[QUOTE=akmartin]History of events:

Week of January 17, 2005, I started waking up after 4 hours, without being able to go back to sleep even with taking the Xyrem (for sleep problems).

Due to an abundance of stressful situations, in mid January I started having short chest pains similar to symptoms a few years ago. On Friday, January 21, 2005, I had one that lasted about 45 minutes. On Monday, January 24, 2005, asked my doctor to give me a prescription of Luvox, which I was taking before. I am taking the generic, Fluvoxamine. Tuesday January 25, 2005, , I took both Provigil tablets and the Fluvoxamine. Within a couple of hours, I started having the shakes extremely bad. The next day, I started only taking ˝ of the Fluvoxamine and the shakes were not as bad. Since I was not experiencing excessive daytime sleepiness, around February 7, 2005, I started taking only one Provigil and a full Fluvoxamine, and have had no issues.

The morning of Tuesday, February 8, 2005, I was having the outline of a half a football of multi-color line of light in the peripheral vision of my right eye. Around noon, that same day I started having pressure around my eyes, which got so bad that I went home from work at 1:00 thinking I might have a sinus infection. However, I did not have the usual nasal symptoms or a headache, just pressure. I did and do have a line of pain that starts at the base of both sides of my neck and runs to right above my eyebrows at different times of the day. My mind began to feel cloudy. I would wake up with my body tingling and a buzzing in my head. I had the same symptoms Wednesday and Thursday morning, stayed home, and Thursday made an appointment with my doctor. She felt that I was having a migraine. She gave me a shot of Imitrex and after an hour sent me home with one pill of Imitrex to take after one more hour. I was slightly better after that except the line of light move from my right eye to my left.

Friday, February 11, 2005, I woke up feeling the same way I had all week, the pressure around my eyes, but started having dark spots instead of lights. I went to the doctor and she gave me a shot of Demerol, had me rest for a while, and sent me home. I felt better on Saturday, but still a little cloudy in the head. Sunday, I thought was feeling better so I went to Church. By the time I got there, the same pressure and cloudiness came back. After being home for some time, again I began to feel better again.

Some time around 2 a.m., Monday, February 14, I woke suddenly after two hours of sleep, having some kind of attack. I could not move my chest was heavy, and my heart rate fast. My head felt like brain overload and I had a kaleidoscope of white colors in my eyes. My body, head, and face were tingling and I was disoriented. I had buzzing in my head. My airway felt block and my tongue felt swollen. After about 20 minutes, I rolled over on my left side and immediately I had pain on the right side of my head, face, and body. I had to use the restroom throughout, and after about 20 minutes on my left side, I was able to make it to the toilet. However, my vision was wave and I walked like I was drunk. I got back in bed and my symptoms intensified again. At some point, my tongue and chin began to feel like one would when Novocain wares off. About 20 minutes later, the symptoms began to subside and I feel back to sleep.

I went to see my doctor, she said I had a panic attack, and prescribe the Alprazolam. I only took these for a couple days, because I know myself and since taking the Fluvoxamine, I have no symptoms that would indicate a panic attack.

My symptoms did not change and on Wednesday, February 16, 205, I had an MRI. When I went to get my MRI, as I was filling out the paper work, if the woman asked me something, I had to stop because I could not do more than one thing at a time. I was having problems spelling simple words like pressure. Thursday, February 17, 2005, afternoon, doctor’s nurse called to tell me that my MRI showed I had a sinus infection and I was prescribed the Miraphen and Avelox. I have actually been having more symptoms of sinus, such as being congested Sunday, February 20, 2005, morning and I am having headaches.

My faith in doctors lately has decreased drastically, so on Friday, February 25, 2005 I went to my doctor’s office to get a copy of my MRI, which I do not believe my doctor realizes I have. The only way I knew I had a pineal cystic lesion was because I asked for a copy of my MRI report. I had only been told by my doctor that I had a sinus infection and nothing else. My MRI report also states, "An area of isointensity of CSF is present in the posterior aspect of the posterior fossa most compatible with a mega cisterna magna. The differential would include a retrocerebellar arachnoid cyst.."

I gave my family doctor a second chance to come clean with something other than a sinus infection since I am still having headaches and my vision problems are getting worse. On Monday, February 28, 2005, I called my doctor about my continuing symptoms. However, this time I was told to take Imitrex again and was prescribed the Amitripityline, with no mention of my other MRI findings.

I continue to have the following symptoms headaches, which seem to vary in location but most always have pain in the neck that has a line of pain that goes to both eyebrows. I have vision problems (for a patter lack of works floating dark and white spots of different size), sleep problems, and tingling and buzzing in head and body. I have only had one attack that I thought might have been a stroke (but could be deemed a seizure). I cannot concentrate, trouble with simple spelling of words, and a pulse rate that is runs between 95 to 123 even after just getting out of bed. At some points of the day, I am not too bad, at others I do not know if I am coming or going. I am at my wits end and would like more information of both the Pineal Cyst and the Mega Cisterna Magna. I want my head back to the way it was.

Current prescriptions:

Prevacid 30 mg once a day (morning)
Celebrex 100 mg one twice a day as needed (have not taken for a couple of weeks)
Mirapex 1 mg one a day (bedtime)
Provigil 200 mg two a day (morning, only taking one a day for 1 ˝ week, and none since February 21, 2005)
Xyrem 1/17/05 up from 9 ml to 15 ml (then down two 9 ml, none since )
Fluvoxamine 1/24/05 100 mg one a day (no longer taking since February 21, 2005)
Alprazolam 2/14/05 0.5 mg one three times a day as needed (family doctor thought I needed this, have not taken since Thursday, February 17, 2005)
Miraphen 600/120 one twice a day (morning and bedtime, stopped on February 21, 2005)
Avelox 400 mg one a day (last one on March 4, 2005)
Initrex 100 mg on onset of migraine
Amitripityline 10 mg (prescribed March 3, 2005, have not taken)[/QUOTE]
AKMARTIN, I was a bit surprised to read your posting. I was discovered to have an Arachnoid Cyst in the posterior fossa and then I realized that 15 yrs ago no doctor informed me of having seen a Mega Cisterna Magna from an MRI then. I have been struggling with a lot of sleep problems and the sleep study found no abnormalities, I kept on telling about my problem with concentration all of my life and struggle with sinus-like headache but it seems like, at this point, that it must be in my head.... I was finally diagnosed with some sort of AADD and taking methilphenidate which seems to help also my cognitions. I have struggle with depression all of my life and worked hard in therapy......for some reasons it seems as if the mood swings are in many ways not related to my daily life events all the time... The neurosurgeons so far think that the cyst-mega cisterna magna pressing on the cerebellum are not causing symptoms because I do well with balance and coordination. I too suffered at some point of unusual shortness of breath and again was told to research my heart and it all came negative...... I feel like I am the biggest HYPOCONDRIAC seeking medical attention but I really am not....!
Your posting is somewhat intriguing and it seems like the medical science does not know much yet about that area.

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