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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Just exactly where in the brain is your cavernoma located?I had/have one inside of my spinal cord.of all the places that you can get these(the brain, the brain stem,or pons and the spinal cord.The 'best' place is actually the brain.not to say that it is a good thing to actually have a cavernoma but of all the places the area of the least danger in removal or complications is the brain area.Mostly because you would have room for a bleed.These do bleed from time to time but it is usually a slow bleed as this is made of of veins not arteries.So it is consoidered low pressure.there is another formation called an AVM that is much more serious as it is made up of a glob of arteries.This is what my NS first thought was actually what i had inside my cord.I had an angio done that did not "light up" so he knew at that time it was just a cav.Actually, unless the cav is causing major symptoms or is actively bleeding, your NS is doing the right thing just by monitoring it.this is what my NS was doing up til I started having bleeds and started having nasty pain and showing neuro symptoms.believe me, the last thing i ever wanted to do was to have someone digging around inside of my spinal cord,but to leave it in in my case would have ment almost guarenteed paralyzation when it bled again as it was already taking up one third of my cord.the best thing to do in your case would be to do alot of reasearch to try and really understand what it is you are dealing with and all of your possible options for treatment.Treatment may be just what your doc is already doing,monitoring it for any changes.Even if yours were to bleed, you do not have(unless you say different)it in a constricted area such as the brain stem or spinal cord.The spinal cord is actually the most dangerous to have it and trying to remove it.i suffered LOTs of damage to spinal nerves tracts and my sympathetic nervous system due to the surgery.luckily for you and the wonderful new techniques availiable to the nSs now a days, if you did have to have it removed, you most likey would not suffer the extensive damage that I did.how big IS your cav anyway?If you could tell me just exactly where this little sucker is i may be able to be a little more specific in giving info.the best thing about this is it is NOT like a cancer that keeps on growing and growing.If left alone,they 'normally" do not cause any major problems in the area you have it.Like i said before, even a bleed in that area would be very small at best and would not cause you the same problems as say a stroke or something like that.but every case is different and there could possibly something unique to your particular cav.if you have a good university teaching hospital nearby, i would recommend it highly to you for monitoring.I ended up going to the university of MN for my third opinion and when it needed to come out, I felt like i was in the best possible hands.i think a university hosp is much more up on the latest info and treatment options availiable.They would also most likely have the most experience in treating/monitoring the cavs and THAT is what you really want.Knowledge.some NSs don't really know alot about these(as i found out while researching mine and getting opinions)all of the other NSs that i had seen kept telling me that there was no way that my cav could possibly be causing this horrid prying/pressure type pain that I had been having under my R shoulder blade.Well, they were all wrong because they did not really understand just what in the heck they were dealing with here.so finding a good experienced NS is really vital.if you have any other questions just holler,K?just know that what you have is not any sort of death sentence or major major problem.Things could be much worse than having a cavernoma,trust me.If your NS has not mentioned this to you yet,and i did not find this out until after the fact, but try and stay away from taking any sort of med that would thin your blood such as aspirin, advil/aleeve,or Rx blood thinners as these can increase the chances of having a bleed.i was eating aleeve like there was no tomorrow while dealing with a herniated disc that was in almost the same exact area as the cav was,and was told that this probaly caused at least some of my bleeding problems.my cav was actually found accidently whan I went to have an MRI done to try and find out which one of my discs was herniated.This is actually how most are found,by accident when they are testing for something else,who knew??marcia





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