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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

a veinous angioma or cavernoma is just a little glob of blood vessels that probably formed when you were still inside the womb.there are actually two types of is veinous fed,the cavermona and one is arterially fed an AVM or arterioveinous me,the cav is much less of a risk for an actual bleed than an AVM just becuae one is high pressure(arterial) and one is low pressure (veinous) I actually had a cavernoma inside of my spinal cord.really BAD place to actually have one as there is just no room for any blood there and no 'give' inside the cord walls.I had two bleeds,which are more of an 'ooze" than the type of bleed you would get from an actual AVM.on any actual MRI report,if you have had any sort of a bleed around it anywhere,it generally would not say anything about bleed or blood,it would be called hemosiderin or hemosiderin staining.this is the actual iron residue that gets left behind after the blood is somewhat reabsorbed into the body.any actual bleed would show can also be called a "halo effect" as well.I know the reports are really really confusing and are totally dependant on the overall knowledge and experience of the actual radiologist and how he/she actually interprets the films,thats it.So depending on the rad who reads your films,you can get a really comprehensive and rather detailed report,or one that barely hits the highlights.its all unfortunetly,in some cases,up to the rad.this is the big reason that when you actually see any sort of specialist,that they always request the hard copy films along with the report.the docs have their own ideas and views on the actual films and in some cases,not even are anywhere near what the rad stated in the report.kinda scarey but true.

i have had to have now,15 MRIs and two ct scans done mostly on my c spine.some were done at different places but most were all done at the same facility but read by two seperate rads .it is who ever IS there that day,i can tell you that when I have had one particular rad,his reports are always much much more detailed than the other,so I always tell them that if possible,I want that specific doc to read my films.but it is actually really vital that you always have those films in hand when you see any specialist to really let him or her see for themselves just what is on those films.any specialist that relys solely on any rad report,well,I would not let this doc actually DO anything on me,ever.Your primarys will go with the rad reports as they do not know how to actually interpret the films but any speacialist has to be able to know what the heck they are actually looking at before they would actually do any sort of a surgery,at least on me anyway,lol.

but in answer to your question CM, i would ask to have an MRA which actually scans the arterial structures inside the brain.while anything actully veinous in nature most likely would not 'light up" with any sort of contrast as the malformation IS veinous not arterial,BUT with regard to actually tryingto find the real cause of your siezures it would really be in your best interest to actually take this more in depth look intothe arterys for any sort of arterial malformations.I just was Dxed with ann actual aneurysm in my brainstem this past sept.i am at a much higher risk for any sort of vascular malformation just due to the kidney disease I have,with PKD(my kidney disease)all patients are just born with naturally weaker vessel walls,so aneurysm and the cavernomas resulted from that in me.but if you actually have any sort of venous malformation,it would not hurt to also check the arterys inside the brain as well.just to be safe and also rule this out as a possibility,espescially since the rad did not feel that your cavernoma was an actual cause.are you actually seeing a neurosurgeon or neurologist?
in most cases,unless you are having consistant bleeds and it is in a dangerous place where anymore could cause major devistation to you(this was my case,one more bleed would have actually paralyzed me from the chest down as there was just no more room inside the cord space)most docs recomend just monitoring them with MRIs like once a year or so.just because it is in the brain(and I know that sounds really really scarey)does not make it actually really a major danger or risk.mostly because the bleed would be minimal and an ooze tye of small bleed,but the biggest thing is that you DO have room there for it to actually bleed without actully compromising other structres.Do you know what I mean?trust me,if you had to have a cavernoma the brain is the best spot.other people will get these in the actual brain stem or pons in the brain or as in my case,inside the cord.all much more high risk than the brain, all depends on the size of the cav and the specific location of it that determines the risk factors.

you can get a second opinion on your films by seeing your NS or even calling other places that do MRIs and asking them if they do second opinions.some have no problem and will just have you pay a fee for it.I would never ever trust any one rad for a read on any of my films ever.I hope this info has helped some.But I would recomend that MRA to you CM,really.there has to be something not right up there to be triggering actual aneurysm would not typically show up on a plain MRI film depending on just where it would be located and the overall size.thats why they use an MRA.I hope you are indeed seeing a good neurosurgeon for this if not,get one.good luck and if you have any other questions,just holler.marcia

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