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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

Pineal Cyst Inquiry
Aug 14, 2006
I have recently received the results of a MRI that indicates an "of interest" pineal cyst - almost 2 cm in lenth and almost 1.5 cm diameter. I have been suffering from migraines (ice pick clusers for half of my life which i have learned to manage), but now they have not only been increasing in frequency and pain level, but lately they have been combined with another form of migraine - which is, as best as I can describe, as wearing a helmet many sizes too small. I am also experiencing intermittent sleep disorder and vision issues. That said, I am looking for guidance - where do I go? Who do I see? I understand that this is a rather unique afflication from what I can find (yes, I know pineal cysts are quite common, but most don't grow in general).

If you know of anyone I can talk to about this or consult with, I would be most grateful. I have an appt. with a general neurologist, but would really like to find someone or some institution with expertise in the area of pineal cysts. I live in New Jersey, but would be willing to where I need to in order to obtain the proper diagnosis and treatment plan.

Thank you for your help...

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