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Brain & Nervous System Disorders Message Board

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[B][CENTER][/CENTER]Hi, I'm new here, didn't know where to post, etc... but I saw some of my similar problems, so I thought I'd post. I had a wierd sensation on the top/back of my head for about a week. Kind of a numb sensation, a little tingling... no real pain, so I wasn't truly freaking out but thought it was odd after a week. So I went in to my Dr after a week. While sitting in the waiting room, the back of my neck got really hot and when I got in the room and told the lady I was there for "wierd headaches", she said, "Oh, and do you know you have a fever?". I didn't, and the back of the neck thing had JUST started in the waiting room. The Dr. gave me antibiotics and tension headache medicine. None of those worked so I returned in several days. The pain in the back of my head had gotten a bit worse and some hot pain was radiating up to my head. I walked around trying to keep my head still. The second Doc helped a bit more, a more detailed look into symptoms etc. Sent me for a Cat Scan. Didn't think much of it. Got the phone call... small spot on left base of brain, don't worry, we'll send you for MRI. Got the MRI, I'm thinking brain tumor or aneurysm... they call again and say the Dr. wants to see me. Oh Sh** I think. I'm 31 years old, with 2 kids, one only 3 years old. Well, I didn't expect what I heard so I didn't have much reaction. He says, you've had a stroke, but you're ok and the damage is already done. I was in disbelief, still am. I had NO risk factors for such a thing... well, it's 3 days later now and I have the head/neck symptoms again and am freaking out. I went to the Dr. but he can't answer my questions... I am waiting and waiting on a referrel to a neurologist. I am being pro-active and calling, but it's really taking them forever. If I was told that these current symptoms were an AFTER affect of the stroke, I'd be far more relieved, but I'm just worried that it will happen again, after all... one never knows. I mean, who would think at 31 I would have a stroke with no risk factors??? So I'm doing the waiting game just as most of you are. If anyone can help with anything in my situation, let me know and I will do the same for you! But MOST IMPORTANTLY... listen to your body, and what it tells you and watch out for your brain tricking you; I know, it happens to me too. If I had not gone to the Dr. I would have never known about the stroke.... I had NO serious pain, headaches, etc. Thanks for listening, Kristin [/B]
So get this... I go into the neurologist the other day and he says, "sorry I took so long, I was reading your films; I suspect that if they had been read differently, you wouldn't be here". I was like, "HUH??" He does not think I even had a stroke!!! For 2 weeks I was on anti-anxiety medicines and was almost immobilized by my anxiety and fear and he told me that it may have been a mistake in the "read" of the MRI! He did all the "tests" neurologists do, and said that if I had had a stroke the size stated that I would be paralyzed on my entire right side. He sent the films to a neuro-radiologist just to make sure, and I am waiting on THOSE results now. How can you trust anyone these days, it's unreal!! Don't get me wrong, I am estatic that I possibly didn't have a stroke, but so angry at the unnecessary stress I went thru for those couple of weeks. He said it was probably just a coincidence of things happening at once that caused my symptoms (I had hit my head before my funny head feelings/had a fever and hot flashes of pain in my neck that might have been from an infection, etc) He was just GUESSING. The medical world can be so unreal and discouraging sometimes. I'm going to go to an internist soon (instead of the urgent care I had been frequenting) and I'm hoping HE'LL be able to put 2 and 2 together. Not counting on that either. Anyways, I am feeling fine now, and ENTIRELY grateful for that and count my blessings. Thank you for the concern!
I have had over the last 6 weeks many of the same symptoms you have all talked about and am no scheduled or MRI of head. They did do a ultrasound while I was in hospital of caratoids. Have had severeal "event" they call them where if got hot all over and very weak. When I checked BP it was way up but immediately came down. Am running out of tests and now they think it may be coming from neck though I have no pain there but that it may be spasms of some sort. Really no one knows but I didn't have stroke, blood work OK but just get these strange feeling all over and then sometimes quickly sometimes not so quickly it is gone like a spasm would be. Sometimes blurry vision if I am shopping,etc. Neuroligist has given me Neurontin to try. Has anyone been given this. I had no pain at anytime until I started taking the Motrin and then started with minor pain in different places in head and neck. This is making me crazy and they keep asking "are you anxious" Duh, wouldn't you be when you have these episodes out of the blue sitting watching TV or talking with friends. No, I wasn't anxious before but I sure am now. If you have taken Neuontin would like to know if it helped.

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