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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Hi Paul and Allison,
Thank you for your reply. This is a horrible condition to have. Thanks to the
botox shots, they have saved my sanity.
What in the world would cause such a problem with the nerve and muscle
connection. My neurologist says the problem comes from the basil ganglia in
the brain.
What other problems have you had with this condition Paul? I'm so glad that
there is a surgery that has cured you of this condition, at least as close to
being cured as you could be.
I have had different problems like some numbing and tingling in my extremities,
problems with my eyes, being very light sensitive and alot of floaters, also a
condition called papilloedema, which is intercranial pressure that shows in the
eyes. I had a brain MRI to see if I had a tumor and also to rule out MS, the MRI was normal.
I know how you feel not wanting to go out in public, I was doing the same thing until the botox shots. They don't last long enough, not quite 3 months.
I have been told that you can become immune to the shots, is that what happened to you? It is wonderful that there is, what did you call the surgery?
Denervevation?
I have also had alot of back pain, a naturepath told me that my spine was
trying to twist probably from my neck twisting, mine turns to the right and
tilts toward my left shoulder.
I guess this is getting a bit long, thank you so much for your reply, I will look forward to hearing from you again.
It is great Allison that you are so supportive of you husband, that means so
much in these circumstances.
I have had this condition for about 5 years, mine started with a slight turn to the right, then the pull became stronger and my neck got stiffer and my muscle became hard as a rock and very painful and embarrassing.
Is there anyone in your family with this condition? There isn't anyone in mine,
I have a sister with restless leg syndrome, that is a movement disorder also.
I could go on and on, but I better sign off.
Again thank you so much, I'm happy that an angel from Florida came along and gave you your life back.
Take care and God Bless you both.
Audrey





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