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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

Thank you so much for your reply. My daughter is still in the hospital, hope to have her come home tomorrow or the next day. The Heparin is off she has started Coumadin and Dyamox. She was taken to Dean McGee Eye Institute today for at least a half dozen tests for her double vision. The Dr there was like an angel coming down to me from Heaven!!! He is a Neuro Opthamologist (only one of two in Oklahoma) He gave us tons of encouragement and feels very optimistic about her problems resolving. He sees 4 to 5 of these every year which was a relief because all of the neurologists at the hospital were "dropping by with one of their colleages" to see my daughter. I started feeling like she was on display for a class or something. The hospital has been giving her frequent doses of IV Dilaudid for the pressure in her head, I don't want her to be in pain but this medicine makes her look like Ozzie Osborne... She had massive vomiting on Morphine so they were reluctant to give her oral pain meds until she could tolerate them. The oral meds they are talking about is Oxycontin CR. I'm a bit concerned about this too but not as much as the dilaudid. I want my girl back, not a zombie... Anyway, I feel almost human this evening so I came home for the night, She will have to wear alternating eye patches for the next few weeks until the pressure comes down with the
dyamox, We were sitting in the waiting room for the neuro opthamalogist when she told me her left hand was going numb, I kept a straight face but thought "oh God NO!!" turns out this is an effect of the dyamox that the med is working and the neurologists consider it a compliance check if you don't have the numbness you are not taking your meds.,. that too was a relief. I am feelling very optimistic now and so is she. I now have to turn my attention to what I am going to do with her for 6 to 8 weeks sitting here in my house. She can't drive she can't work... how will she live??? her roommate already moved her out of their apartment. I have to go back to work I have used all my PTO days (I have only been there for a year) I will keep you posted. Thank you for your support and encouragement!!!

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