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Brain & Nervous System Disorders Message Board

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Like i said in my earlier post, they found 4 cm x3cm and so forth right on my pineal gland. The dr told me that they cannot remove it nor put a shunt in. He said it is in such a dangerous spot that surgery is definitely not a option.
and It is also growing larger. I am going in for mris every 6 weeks to check on the growth.
Basically he told me since Mine is so large that the outcome is pretty slim of being able to do anything,.
He does want me to see a neurologist to have a work up done regarding the black outs I have had, and headaches and dizziness.
But now what if they cant do anything I just sit and wait for that thing to burst open.
has any of you had any treatments or anything that you could recommend you have tried.
I just had my whole life taken away from me. I already had problems with pain cause of my back and i have had to do alot of life changes but now he tells me I cant drive. I am stuck in my home depending on others around me.
I am just 34 years old
thanks for listening
I also had both blackout's & seizures along with other symptoms. I had a few doctors tell me that the cyst was not doing any harm & that the surgery was too dangerious. By the time my surgery was done the cyst had destroyed my pineal gland, attached to other parts of my brain, blocked spinal fluid & had done damage to my brain stem. The for me the risks of surgery paid off!!
see I have read on the net that many people have had the surgery. The drs tell me with my symtoms being as severe as they are that if it was not so large and on the pineal gland surgery would be an option. But they both have told me it is in such a dangerous spot that there is a very high risk of coma or death. So that left me there thinking well obviously no surgery. So I am at a loss at this point.
Dr. Patrick Kelly is a neurosurgeon @ NYU in New York, New York. He would be a good person to contact for an opinion, he did my surgery last year to remove a pineal gland cyst.
I'm glad to hear that you found a doctor that is wanting to do something about it, that's always a good start!
When my cyst was found a shunt was not an option for me because of the size and the damage it was doing. So I had traditional open brain surgery to remove the cyst & my pineal gland which had been destroyed by the cyst. It was a very risky surgery with a long recovery time, but it has alomst been a year since surgery and I have not had any of the symptoms that I had prior to surgery. Let me know if you have any other questions.

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