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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


KsCutie23,

It very well could be ACM1 as mentioned in previous posts...

I was diaganosed with this about 4 years ago now; In easy terms it is that the brain is to big for the skulll and it is forcing the mid-brain to slide down on the spine. Sleeping is getting tougher all the time.. The neck is always sore; it is hard to get comfortable. I go to sleep easy enough when I wake up it is pure misery I feel like all I do is toss and turn...

From what I have read it is thought to have been while the baby was in the womb and it is thought that perhaps it is a mineral deficency while you were pregeant and carrying your daughter.

I am now 48 years old; I have ringing in the left ear all the time; numbness on the left side of my face all the time. My left eye is very sensitive to light and makes the left side of my face always feel warmer in the summer when it is hot. IT is very painfull when I went to the EYE doctor at the VA this winter and he was doing the exam. I told him it feels like my eye is on fire and please hurry. He said he had to do what he had to do and it was that simple. I told him you have no idea how HOT my eye feels as well as the entire side of my face...

Depth perception can also be a challenge at times and blurry vision out of the left eye as well.

It is not a lot of fun and it has been a rough road trying to explain it to the wife - she thought for a while that it was funny some how????? Maybe she deals with it that way perhaps who knows.. I think now she can see what it is doing to me on the outside as my short term memory is not all that well. I try to play things off as much as possible - but my family and our 2 girls knows that things are not right with my mind at times...

Sorry this is so long.


Roy47





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