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Re: Chiari symptoms
Sep 12, 2008
Hi Derrick~

The count down is on!! Hopefully soon you will be getting some resolve to all that you've had to deal with and you'll be feeling better real soon. As far as the headaches, I can comepletely sympathize with you. I have been in a bad way these day with the pain and pressure.

Up until this point, I have refused narcotics for pain because I don't want to get dependant so I've taken none. I was prescribed neurontin which is for nerve pain. It doesn't help. Neither does tylenol. I have been lucky enough to have been able to manage my pain by laying down before it gets out of control. If I stay up when the pain level is increasing, I'm done for and can't get rid of it even laying down.

I have found using Ice packs do helps. From what I've learned, the brain can only feel one sensation at a time. It can't feel pain and cold at the same time. So this is very helpfiul. But of course, once you remove the cold and you become normal body tempature, the pain does return. I have a freezer full of a variety of ice packs so I can alternate them. I even bought ones that strap on, to be used on the body with velcro. I wrap them in various positions on my head and neck. My family tease me about how foolish I look and even take pictures just to give me a hard time. My response is at this point, comfort is more important than beauty.:D

For the past month, I've really been in pain. Rainy stormy weather does me in and in the south east, we've had too much of this all summer. I finally decided I just can live like this any more, lying down all day and it affecting my quality of life. So when I get really bad, I've used oxycode, which the hospital gave me after my surgery. They're only 5mg and really just take the edge off, but they definately don't make me pain free. But I've had to do something.

So I went to my PCP on Tuesday to discuss this with him. I told him I'm at the point where I need help but expressed my fear of dependancy. He agreed comepletly that I should ony use the oxy in an emergency bad day level. He gave me a high dose of naproxin which is an anti inflamatory and told me to take this consistantly and in a month, if it hasn;t worked, come see him and he has some other tricks up his sleeve.

It has helped some, again taking the edge off. He said that I will most likely have to deal with some level of pain but if we can lessen it then we should be happy with that. So the last few days, that has been going ok. This afternoon, the pain hit me hard!! I tried to hold out but in the end, took an oxy. My hubby called me from work and I told him I'm in a bad way and sure enough, he said a storm was heading our way. So I was glad I decided on a pain pill to get through.

It's really a tough thing to deal with Derrick. And at times we cope better than others. If after the surgery, your still having alot of pain, find someone who you trust, to work with you on managing your pain. I have alot of faith in my Dr and am really glad he's working with me on this with the same feelings I have about narcotics.

But for you, my friend, I have high hopes that you will be the lucky one to go through the surgery , have a speedy recovery and are able to say in the end it was successful and you feel so much better. I'll be thinking of you on that day and will be sending you my wishes for good health to come.

Please keep me posted when your up to getting on the PC. I'll be looking forward to hearing from you soon. Best of luck!!;)


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