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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Re: Chiari symptoms
Sep 14, 2008
Hi Jellebeans~

It is heart breaking to hear how we can be treated as human beings by the medical profession. And its horrible because so many people like you, give up and are left dealing with this all alone. Your not alone. You have us here and we understand!!

Let me tell you about my 1st neurologist appointment. Of course you wait so long to get in so when you finally get to see them, theres hope that you'll get help. At this point, I had no tests done and had only seen my PCP. This guy ran some blood work and then handed me a script for lyrica. I asked him why he was giving me this and he said for the pain. Then he danced around the idea that I had fibromyalgia.

I asked him how he could diagnose me until he ruled out other diseases and asked him to do an MRI. He said that theyre costly and he wouldn't waste money on them. I became so emotional and started to cry. He slammed his pencil on his desk and told me to go see a councelor. Because I had shed tears, he was blaming this on depression. It was horrible.

But when I got out to the car, it got worse. I was ranting and raving about this guy and my husband calmly looks at me and says "maybe he's right. You have been under alot of stress lately" I was so mad and hurt, I wouldn't speak the whole ride home. Now that I have a diagnosis I;m finally believed and its such a relief. Of course, without the MRI, I never would be diagnosed. I never gave up and found another dr. I fired that 1st guy that day:D

But you need a place to let this out and I can understand how you keep quite for your partners sake. But what about you? Holding this all in is not good. Come here and vent when you have to. Thats what these boards are good for.

As far as the MRI, I looked up on the internet a brain with chiari and printed it out for comparison. A normal brain, in the back sits up high, straight across. A chiari brain has tonsils as they call them. The brain is crowded and the brain is being squeezed down into the spinal cord so it kind of slopes at an angle. The tonsils are in turn, putting pressure on our nerves in the spine. When I compared mine, I took a ruler and could see a definate slant. I hope I've explained it so you understand. If not, just ask and I'll be glad to answer any questions. If you notice something with your own eye, you can go from there.

Let me know how you make out

Cindy





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