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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Hi Scout~

There are many symptoms of Chiari. Many of us have similiar things and many are different. Here is my history of symptoms:

In my early 20's I began having tingling in my right leg. I was dealing with something very traumatic so my Dr was quick to come to the anxiety conclusion and I was given an antidepresant. Though my tingling persisted, I never went back because I assumed Lifes "stresses" continued as did my tingling.

About 4 or 5 years ago, I started having severe bowel issues with alot of pain. My dr sent me to a gastologist because he knows I don't complain unless theres a problem. All the tests they did, they found nothing, though my pain and severe constipation worsened. I know this is a personal issue but it was a big one for me. I had to use enamas to keep things moving. Why? They could tell me.

Then I started having severe heart palpitations. My blood pressure would soar, so again, my dr sent me to a cardiologist. Fatique also was getting bad. All I wanted to do was sleep and over exersion would put me in bed. So I really believed something may be wrong with my heart. I had every test they could possibly do and again, nothing. At this point, I could feel something was wrong but drs werent finding it.

Finally, the cardiologist decided that I may have sleep apnea. sure enough, FINALLY, they found it!! Sleep apnea can cause severe fatigue. So I had my answer. But, things worsened. The strange tingling now spead to other areas of my body. Now into my back.

I hadn't gone to a gyno in a couple years so off I went. Had a good exam, everything was fine so I fealt better. But I was getting weaker by the months. I started having cognitive issues and just simple tasks like making out my bills made me tired. I couldn't think straight.

Then my legs started getting weak as did the rest of my body. So I went back to my dr and he said that MS is something we should look into so he refered me to a neurologists. Had MRI's, fine. Then I had a lumbar puncture which was the beginning of my end!!

I got a headache, worse than you can imagine. I was in the hospital for 3 days on morphine and it didn't touch it. The pain radiated into my neck, shoulders and arms, down to my fingertips. They did a blood patch saying I had a spinal headache and sent me home.

Those headaches never left me. And because of the severity of them, that led to my chiari diagnosis. Once I learned about chiari, I realized that so many things that were happening in my body were not normal. I had thought everyone had these things but once I started questioning family, I found out that these things weren't normal.

!st thing I found out was sleep apnea is a common symptom of chiari. As well as bowel and bladder issues and heart issues too. It all started making sense. I have had headaches my whole life but I had always thought these were sinus related and popped tylenol a few times a day. But here are some symptoms I've lived with for many years, thinking they were normal;

Headaches that worsened when bending, straining, laughing coughing

head is sore to the touch, hurts to shampoo

Neck stiffness (I LIVED at the chiropracted for this, now finding out this can cause more damage to Chiarians)

Visual disturbances, light sensitivity, blurred vision

Pressure in ears ( I would think I had ear infections but my ears would be fine)

Sensitivity to load noises, ringing in the ears, decreased hearing

Dizziness, vertigo

Throat tightness, snoring, shortness of breath

tingling and spasms all over my body, prickling and numbness in extremities

burning pain in exremities, stiffness and weakness as well as pain

frequent urination, incontinence

crinic fatigue, memory loss, irritability

Numbness in face, head and tongue

Electric shock feelings all over

pain in head and neck when upright, eases when lying down.

There are probobly more that I've missed but the list is long. And some things come and go, some are steady and persistant and have worsened with time.

Some things are chiari related and some are from related disorders such as tethered cord and cranio cervical instability. There are other related disorders thankfully I have not been diagnosed with but not healing quickly is one that comes to mind. Bruising easily and hypermobility, like being double jointed as people call it, can be related to EDS, a connective tissue disorder.

I tried to give as many as I can think of but of course, my memory is not the best!! LOL I hope this helps.

Take Care

Cindy
Hey Cindy,

I didn't realize that an lp made your chiari go crazy. Same here! I went to the ER with the worst headache of my life in the back of my head. Since I had a slight fever they did an lp. I'm on the heavy side, and the dr acted like he had never seen an overweight person. After a needle breaking off in my back and some of the worst pain in my life, he got the fluid, but never bothered to check the pressure. Within a day, I was pretty much disabled. I was hospitalized for a week with this mind blowing headache, and when they couldn't think of anything else, they did a blood patch and sent me home. It was unreal that all those symptoms could appear pretty much overnight.

Here are my symptoms, most have returned now that I have this lovely cerebellar slumping.

Dizziness/lightheaded
hoarse voice
tinnitus
extreme headache when yelling coughing straining
pressure in head and ears
constant stiff neck/headache ~better when laying down
constant fatigue
brain fog/forgetting things
slight dyslexia (just started recently)
intolerance to cold/heat
burning tingling in feet
legs and arms are very weak
sharp jabs all over body

I'm sure there is alot more, but with my memory, those will have to do.

Tina





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