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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Re: DX with chiari
Sep 25, 2008
Hi Lisa~

That is so typical of the ER to treat you this way. I've been there. They don't listen and act like your being a hypercondriact when truly, we are feeling what we are feeling. Sorry you didn't get anywher and I'm sure you left being as frustrated, or more than, when you went in:(

An MRI of the spine would determine if there is SM going on. I'm sure a Chiari specialist would recommend one at some point. Most neurologists don't believe in these surgeries and it seems this is coming down on him.

I'll add the names\s at the top of my list that are highly recommended. I'm bad with geography so I'm not sure of what states surround you. I have many more, listed by state if you need more names.

As far as the ER saying you don't need surgery, those Drs dont know enough about chiari to make that judgement. And yes, this is progressive and can cause permanent damage if left untreated. TCI says the best results are obtained if surgery is done within 2 years of the onset on symptoms. If you concider our nerves are being compressed, if left that way, it definately can cause permanant damage. You need to put your trust into a Dr that is well versed in this.

I'm always here to listen Lisa and will help in any way I can if you need it!!

Take Care

Cindy


* Dr. Ulrich Batzdorf
Neurosurgeon
Box 956901
Los Angeles 90095-6901
(ph) 310.825.5079



* Edward C. Benzel, MD
Chairman, Cleveland Clinic Spine Institute
The Cleveland Clinic Foundation
Cleveland, Ohio 44195
Neurosurgeon
Tel: (216) 445-5514



* The Chiari Institute
Paolo A. Bolognese, M.D.
Thomas H. Milhorat, M.D.
Et al
865 Northern Boulevard
Great Neck, NY 11021
Phone: (516) 570-4400
Fax: (516) 570-4444
The Chiari Institute



* Dr. Richard G. Ellenbogen
Neurological Surgery

Pediatrics:
Children's Hospital and Regional Medical Center
4800 Snad Point Way N.E.
P.O. Box 5371
Seattle, WA 98105-0371
Phone: 206-987-2323




Adults:
Harborview medical Center
325 Ninth Avenue
Box 359766
Seattle, WA 98104
206-744-9339




* Dr. David Frim
University of Chicago Children's Hospital
Pediatric Neurosurgery
5841 S. Maryland Avenue
Chicago, IL 60637
Office Phone: (773) 702-2475
Office Fax: (773) 702-5234



* Dr. Arnold Menezes
Neurosurgeon
University of Iowa
Hospitals and Clinics
Iowa City, Iowa 52242
Phone 319-356-1616


* Dr. Edward Oldfield
Surgical Neurology Branch
NINDS
Building 10, Room 5D37
Bethesda, MD 20892-1414



* Dr. John Oro
1444 S. Potomac St. Suite 170
Aurora, CO 80012
Phone 303-481-0035
Fax 303-752-5240





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