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Brain & Nervous System Disorders Message Board

Brain & Nervous System Disorders Board Index

Hi Scout~

Its funny, but so many people with chiari have sinus issues. On my MRI it noted that my sinus cavities are blocked and many others have said the same on their MRI. I had sinus surgery in my early 20's. I had a headache that wouldn't go away (hmmm... little did I know) so I had a CT scan and the Dr recommended surgery. wouldn't recommend that one. It was horrible:(

So my headaches and sinus issues followed me throughout my life. Of course my headaches were still there but took tylenol daily and really never spoke of them to my Dr's. I didn't want them telling me I needed another cleanout!! Even when I started with the neurological stuff, I never mentioned the headaches. They just didn't seem relivent because I guess I was so used to them. But then I had the lumber punture and the headaches changed to head pressure and lifechanging pain.

Now, when my head feels really bad, I can press on my skull and feel it seeping into my sinuses. I had read (but its not a fact) that when the CFS flow is blocked from Chiari and has nowhere to go, it leaks out the sinuses. I just found this so interesting because this has been an issue all my life. They even did allergy testing and i'm allergic to everything!! So it made sense back then. Now I think thers more to it. Just MHO:D

Having the dogs there with you keep you company, I'm sure. Its nice to be talking to something all day besides ourselves;)

Being up so late really takes its toll. I have oxycodones that I only use if I'm desperate, which is once or twice a week. I am so afraid to become dependant on them. They don't cure the pain but it takes the edge off when nothing else helps. When I take them, I wont go to sleep. With chiari and narcotics, it can affect our respitory function and this is the leading cause of death with chiari. Generally chiari isn't fatal but add pain meds, sleep apnea (which I have) and it could be harmful. So I stay up very late when I take one. Sometimes, I make my hubby promise to watch me while I'm sleeping. Then I'll nod off. I'm such a chicken!! But it is scary.

Don't feel bad that so many are begging for testing to be done and your complaining. It takes us alot of energy just to get through a day. Then throw in an errand or two and our energy is spent. I completely understand. I'm supposed to go back to my GP so we can play with some differant things to help the pain. He wants to try one thing at a time. I was supposed to go back two weeks ago. But I'm too tired and in too much pain. How ironic? But I do know what your feeling;)

Online shopping is so much better!! I usually do that too but I haven't even begun mine. I bought a few things yesterday at the store but I just can't get into it. That after Thanksgiving thing sale. Yuck!! Its a zoo. I've gone at the opening of the stores and people will literally run you over to get those bargains. And I just can't out run them these days:D I'd rather pay a few dollers more and not deal with that.

I'm like you. It has to be a special gift for each person. And it does take alot of time and energy to do that. Gifts from the heart are so much more meaningful.

I'm glad your here to recommend the best B12 to use. I'm gonna pick some up. It can't hurt to take it and maybe it will booste the energy, who knows?

Rest up scout. We certainly deserve it:)

Talk to you soon


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