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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Hi Chell~

I'm so sorry you are having to deal with all this and trying to keep it all together. Its hard enough to get through let alone with small children to raise.

I have been dealing with similiar symptoms and I tell myself how lucky I am that my symptoms didn't become real bad until my kids were older and can take care of themselves. I still do have a teenager to get through but thankfully she's very independant.

I have chiari malformation and get the burning pain as well. The back of the head and face burning your describing, as well as the unbarable fatigue, I am very familiar with. I now get all that burning in my whole body as my symptoms progressed. Sometimes it is like a novacaine feeling but when its severe, its like a rug burn. Scout gave you some wonderful advice and this burning could be as she said, neuropathy.

neuropathy is not fun. I am on differant meds to try to manage the pain but nothing seems to help to much. I take neurontin for the nerve pain. I have heard about topomax being used. Does that seem to help any?

As far as light housework making things worse, you just have to try to take things slow. I do my housework in small increments. And if its too much and I know I can't handle it, it doesn't get done. Right now, focus on whats important and at the top of the list. Save your energy for the important stuff, which is caring for the kids. Until you get a grip on things, ask for help with the housework. Rest whenever you can.

I definately wouldn't except the migraine diognosis. It seams like there may be something going on in a neurological nature. You really have to stand up for your own health and if your feeling like theres something really wrong, don't give up till you get some answers.

Here below, are some symptoms of Chiari because it could be a possibility. Of course there are many other neurological diseases that could be causing these symptoms. MS and Lyme disease are other things that come to mind.

I know its difficult when your struggling with health issues but we have a great little support group here. And if we can help in any way, just shout out;)

Hang in there

Cindy

Headaches in the base of your head that worsen when bending, straining, laughing or crying

pain radiate behind your eyes

Neck stiffness~ pain radiates into shoulders /arms

Light sensitivity~ Blurred vision~ double vision

Pressure in ears~ ringing~ sensitivity

Difficulty swallowing~ Sleep apnea

heart palpitations~ dizziness

Tingling~ numbness~ burning in extremities~ weakness~ stiffness

Bladder and bowel disfunction

Fatigue... And theres many more
[QUOTE=cindys601;3770413]Hi Chell~

I'm so sorry you are having to deal with all this and trying to keep it all together. Its hard enough to get through let alone with small children to raise.

I have been dealing with similiar symptoms and I tell myself how lucky I am that my symptoms didn't become real bad until my kids were older and can take care of themselves. I still do have a teenager to get through but thankfully she's very independant.

I have chiari malformation and get the burning pain as well. The back of the head and face burning your describing, as well as the unbarable fatigue, I am very familiar with. I now get all that burning in my whole body as my symptoms progressed. Sometimes it is like a novacaine feeling but when its severe, its like a rug burn. Scout gave you some wonderful advice and this burning could be as she said, neuropathy.

neuropathy is not fun. I am on differant meds to try to manage the pain but nothing seems to help to much. I take neurontin for the nerve pain. I have heard about topomax being used. Does that seem to help any?

As far as light housework making things worse, you just have to try to take things slow. I do my housework in small increments. And if its too much and I know I can't handle it, it doesn't get done. Right now, focus on whats important and at the top of the list. Save your energy for the important stuff, which is caring for the kids. Until you get a grip on things, ask for help with the housework. Rest whenever you can.

I definately wouldn't except the migraine diognosis. It seams like there may be something going on in a neurological nature. You really have to stand up for your own health and if your feeling like theres something really wrong, don't give up till you get some answers.

Here below, are some symptoms of Chiari because it could be a possibility. Of course there are many other neurological diseases that could be causing these symptoms. MS and Lyme disease are other things that come to mind.

I know its difficult when your struggling with health issues but we have a great little support group here. And if we can help in any way, just shout out;)

Hang in there

Cindy

Headaches in the base of your head that worsen when bending, straining, laughing or crying

pain radiate behind your eyes

Neck stiffness~ pain radiates into shoulders /arms

Light sensitivity~ Blurred vision~ double vision

Pressure in ears~ ringing~ sensitivity

Difficulty swallowing~ Sleep apnea

heart palpitations~ dizziness

Tingling~ numbness~ burning in extremities~ weakness~ stiffness

Bladder and bowel disfunction

Fatigue... And theres many more[/QUOTE]


Wow,, I just had to call my husband in here to read this because I felt like you just completely described me. My head burns and it was numb last night. I do have that rug burn feeling sometimes. My skin is flushed alot. I thought I was about to go crazy. My next step is to mention this to my neuro. How do I go about doing that without him thinking I am crazy. We have alot in common. How long did you have symptoms before you were diagnosed?





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