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Brain & Nervous System Disorders Message Board


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I had a spinal tap two years ago and it turned into the WORST medical episode of my life. Within days of the spinal tap I developed horrible headaches that only occurred while I was standing. Laying down would cause them to completely go away. Neither of you has mentioned headaches, but thought I mention this in case you develop this problem. IF you do, the headach is caused by a low fluid level in your brain as a result of it leaking from the spine. Apparently, this only rarely happens if the doctor errors during the spinal tap. The bad news is it requires another spinal procedure to repair. Essentially a doctor goes back in to plug the leak in the spine.

Now for the back pain. So, after making a week of return visits to the ER for the unbearable headaches resulting from the botched spinal tap. I finally was referred to a doctor to repair the leaking spine. As soon as this doctor entered my spine, I lost feeling VERY PAINFULLY from my waist down. I thought I was paralyzed. I could not move or talk the pain was so bad. After about 5 minutes, the initial BLAST of pain subsided but lead to a pain in my back that I can only describe as INCREDIBLE. This was an outpatient procedure and after a mere 2 hour recovery I had to be wheeled to the car. I could hardly bear to be moved for pain. I stayed this way for 2 full weeks. There was NOTHING the doctors did to help my pain. I was told I should NOT have the type of back pain I described and there was nothing more they could do.

I took over the counter pain meds and just toughed it out. The good news is that the pain DID go away completely after about 3 weeks total.
Thank you, thank you, thank you for your reply. I think you may have just help solve a 2 year mystery. I joined this community to look for help with a burning brain sensation on my right side, headaches, numbness in my fingers and toes on the right side and memory loss. The spinal tap post caught my attention because of my experience, so I decided to reply.

The fix for my leaky fluid was a "blood patch," I had forgotten that name, it was supposed to immediately stop my headache. But, the pain I described above took place and the headache continued even after the procedure. I am remembering that I called the doctor after this procedure to talk about the back pain and continued headache and they said there was nothing more they could do. Like I mentioned the backached stopped after 3 weeks, but the headache went away about 2 weeks later.

So, now I'm 38 years old and suffering from odd problems on my right side, severe headaches and memory loss, but I can usually remember something if I receive some sort of reminder or trigger. I also have not been able to sleep in over a year. By that I mean I fall asleep very quickly, but can only stay sleep for an hour or two per day. I am exhausted and have been on medical leave for 5 months. I write technology contracts for a living, but today I can hardly put two thoughts together. I had a Neurosite a couple weeks ago and go back for results today. It never occurred to me to mention the spinal tap and side effects. But, I will now. You know, all this did start after the spinal tap and I have not had an MRI since the day before the spinal tap.

I had the MRI and spinal tap because I was having trouble with my vision. I had a couple of instances of seeing things on their side instead of normal, like I turned my head, only my head was not turned. This baffled me and my doctors, so we did an MRI and spinal tap, both of which had normal results.

Well, I've not had the vision problem since, but have all the new challenges.

I've had some form of headache problem all my life, but the sleeplessness and numbness and back pain is all new.

I don't know if this will be the smoking gun to solve this 2 year mystery, but I am sure praying it will.

Thanks Feelbad...and I am praying that you are feeling better!!!!:wave:

I'll ask for an MRI today as well
My daughter too has had headaches for about 4 yrs. after many hospital stays and no results. She was diagnosed with Chiari Malformation and ended up having a decomppression surgery. This is a rare congenital birth defect tat less than 2% of the world has. She was better for a few months but the headaches returned. After a few months of pushing her neruosuergon he finially did a spinal tap to check the pressure of ceribral fluid. This cause what is commonly misdiagnosed as migraines. It is known as a condition called Psuedo Tummor Ceribri (PTC) it has the same effect to the brain as a brain tumor but it is not really one and can cause the loss of periferal vision. When they did your spinal tap did they messure your preassures. Have you had a eye exam from a specialist to see if your optic nerve is swollen. Do some reasearch into PTC it might have some surprising resluts for you at the very least see an eye specialist but never stop trying to find the awnsers you need. In this day and age even with all the medical advances you have to be proactive and persistant in your medical treatment to get anywhere. Never Never give up your worth it.





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