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good to hear from you Bill...it has been a long time since we came across each other here.

so you still have the head pressure going on.do you have any idea what your blood pressure is?just so you know I came across a really long thread on the anxiety board where there was this guy(young about your age)and he had the head pressure going on.I thought about you when I read all the posts on that.He ended up having h pylori...he took the full course of antibiotics for it and he still feels like he has the anxiety thing going on.I think the thread was called>intestinal or anxiety>I'll look it up again and let you know the correct name.....I think you might benefit a lot from that thread.I want to check it out anyways to see if he updated it lately.

Well I'm doig a bit better...I saw a new dr. today...she was pretty good,but I lost 5 more pounds so now I'm down to 99 pounds...I am upset about that.I had a lot of blood workup done at the hospital today...yuck...my arm is bruised just from that.My blood pressure is still low(100...top number)...I went 6 months without a B12 shot and I'm a mess now...I did get a B12 shot in January,but I'm going to wait to see what mylevel is before I bet another B12....I am so tired of feeling like this...I also have been feeling some stress and I know the dr. could sense it....do you ever wonder if you'll ever get well and feel normal again?I do...almost all of the time.It really is not fun having a pity party for yourself 7 days a week....I want to get well and I'm sure you do to.

I hate tests and all medical stuff...I'd rather just stay in my bed then have all those tests,but what can I do..if I don't have tests done I will never know what is going on with my health.

Hey if that zinc gives you anxiety then don't mess with it....do you still take the methyl B12?Did you feel any relief from stress when you took the B12?Also I was thinking that maybe you have sinus problems...that could be the cause of your head pressure...I think it's mine too.I have bad sinuses...remember that "brain fog" I had that started in August last year...it lasted like 3 months..then I had a bad headache for 2 weeks straight and the brain fog lifted....that was amazing...and I was so thankful to feel like myself again.

I know a lot of my problems are from hormone fluctuations and men can have problems with their hormones also.My brother was very low in testosterone and the dr. said when it's that low you can't function right....he was surprised my brother could even walk...that's strange,isn't it?

Anyways sorry I took so long to get back to you...hope you are doing okay.

"see ya" soon

scout
thanks Bill...your post made me feel better...that's what friends are for.

about migraines...there's the excrutiating,painful kind,but there is also the kind that has "no pain at all";this is called a "silent migraine".Those few months I had that "derealization"....feeling was probably a "silent migraine"(I read about that on the boards here) and it makes a whole lotta sense to me...and then afterward I had the two week long headache and the derealization feeling was gone.

A while back when I was having visual disturbances the ds. said they were occular migraines,but there was no pain at all...just the vision disturbance...at that time I had a slightly abnorml EEG and that is common with migraines.Diet played a significant role in that also...I had to stay on a migraine diet(no MSG,nitrates,yeast(regular bread was okay),fish,beans,nuts,whole milk & cheeses,chocolate,citrus fruits,peas,green beans,caffeine).Some people are very sensitive to all of those foods and some to only a few.For me I had to stay away from the nitrates(deli lunch meats,hot dogs) and cakes & cookies made with yeast...they always triggered an attack.

I once had a severe sinus infection(no pain),but I had extreme head pressure(I had to sleep sitting up...laying down made it unbearable)...the dr. put me on Biaxin and in 24 hrs. the pressure was gone.She said I had sinusitus.I'm sure you've explored all about sinus/head pressure already????

Neurologists don't seem to know anything about the head pressure so I think an endocrinologist or an ENT dr. would be better at finding a dx for head pressure...neuro's just look for their specialty(MS,Parkinson's,etc.)

I'm waiting on the copies of my blood tests...I shoud get them today/tomorrow...I can't wait to look at them...that sounds funny,but I want to compare them to my other labs from August last year...see if anything changed.

Well right now I'm not doing a thing about the B12...since it was 605 I'm not concerned...I don't seem to have any low B12 sx right now...I just don't care for the way all my drs.have made mistakes at the expense of my health.

So did you ever notice if certain foods trigger any of your sx,Bill?I'd start keeping a log of what you eat/drink and see if anything points to that....did you stop or cut down on the Vitamin D yet?

Well I haven't seen any new activity as far as the waiting room is concerned.It will be beneficial once more people are there.

Well tinnitus is another thing we have in common..mine is in my right ear though...I noticed when it's really bad my legs ache(shins) and my hearing is very sensitive to every little noise.

Wonder if your head pressure is a constant, silent migraine...I'll see what I can find on that...

Scout
[QUOTE=scout316;4221743]
A while back when I was having visual disturbances the ds. said they were occular migraines,but there was no pain at all...just the vision disturbance...at that time I had a slightly abnorml EEG and that is common with migraines.Diet played a significant role in that also...I had to stay on a migraine diet(no MSG,nitrates,yeast(regular bread was okay),fish,beans,nuts,whole milk & cheeses,chocolate,citrus fruits,peas,green beans,caffeine).Some people are very sensitive to all of those foods and some to only a few.For me I had to stay away from the nitrates(deli lunch meats,hot dogs) and cakes & cookies made with yeast...they always triggered an attack.
[/quote]

Thanks for all your advice, scout. In any event, though, I just don't think I should try another exclusion diet without the advice of some kind of professional. I tried the candida diet before and possibly dropped to 130 pounds, and as a 5'9" male, that just doesn't look good. There was an energy increase but no effect on head pressure or anything else. With all that weight loss, I could barely keep my usual clothes on at that point.

The idea that a few specific foods could be triggering my vision abnormalities, head pressure, and other problems certainly has merit. But how could I know which one(s) are the trigger? Call me lazy or entitled, but I don't want to keep switching things around in terms of diet until I can find more specific evidence. Everyone tells me to get rid of caffeine but I dread giving up these meager 2-3 cups per day, which is down from 5-6.

One thing I know for sure, anything with lots of added sugar makes me tired and fatigued, and I'm better off without it. That's one dietary change that makes sense for me, and I've kept to it, with noticeable benefits. Again, though, it doesn't reduce head pressure. Nor does exercise. But I stick to both habits because they have proven benefits, regardless.

[QUOTE=scout316;4221743]
I once had a severe sinus infection(no pain),but I had extreme head pressure(I had to sleep sitting up...laying down made it unbearable)...the dr. put me on Biaxin and in 24 hrs. the pressure was gone.She said I had sinusitus.I'm sure you've explored all about sinus/head pressure already????
[/quote]

That's interesting, my head pressure is also at its worst when lying down. Lately I've been trying to elevate my head, which helps a little bit.

I have explored the sinus issue, but cannot find any concrete answers within that topic. Basically I can't figure out which way to approach it. Basic remedies like nasal spray never did anything. Options are too limited without insurance.
[QUOTE=scout316;4229213]
what you said about the nasal spray when you used it....sounds like it did something in there....did you ever try a steroid nasal spray?I'm trying to remember which is which with headaches...they say one kind gets better when you lie down and the other kind gets worse..I think tension gets better & pressure gets worse(which would be like in your case)when you lie down.Head pressure is actually considered a headache.

so then your head pressure feels less when you're standing and the worst when your lying down?man I wish you could have a CT scan of your sinuses Bill....did you ever have one?You need a good ENT dr. who knows his stuff...how can you suffer for so many years...you are stronger than you think.....

have a good night....Scout[/QUOTE]

Believe me, I know all about being a hypochondriac and looking up symptoms, and finding something very unsettling. But I've finally learned not to look into serious diagnoses too much, only to "graze" on that data here and there, rather than look into all the details and try to find links to my Sx. I used to get anxiety attacks from that.

Yes, my pressure is almost always worse when lying down and a little better when standing. Does that really seem like a sinus problem to you?

I still don't see how head pressure could be caused by migraine. I have head pressure constantly. But I have never heard of anyone who has a migraine 24/7. A website about migraines I went to recently said that migraines are not constant, at least.

The second time I used the nasal spray was like the first--the pressure "shifted"--but still, no drainage, and no relief. The saline actually leaked back into my throat and gave me some irritation. I'll continue, nonetheless.





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