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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


Dear scout,

Wish I could help you on this. I'm Bill Z... you remember me, right? All I can say is my head hasn't felt right for years, as you know my head pressure is daily, practically 24/7... I have not made much progress on this. Right now I'm trying to figure out how to combat my chronic fatigue, and having some success due to less caffeine, better sleep, and the right supplements. I'm starting my zinc supplement again; last time I tried it, major energy boost but anxiety + insomnia too, so I quit. This time I don't notice much of anything, but will increase the dose tomorrow.

I will say that lifting heavy objects tends to make my head pressure worse, so I don't know what the deal with that is. But it sounds similar to your problem.

How come you only pop up on here so rarely? You were once a regular..
good to hear from you Bill...it has been a long time since we came across each other here.

so you still have the head pressure going on.do you have any idea what your blood pressure is?just so you know I came across a really long thread on the anxiety board where there was this guy(young about your age)and he had the head pressure going on.I thought about you when I read all the posts on that.He ended up having h pylori...he took the full course of antibiotics for it and he still feels like he has the anxiety thing going on.I think the thread was called>intestinal or anxiety>I'll look it up again and let you know the correct name.....I think you might benefit a lot from that thread.I want to check it out anyways to see if he updated it lately.

Well I'm doig a bit better...I saw a new dr. today...she was pretty good,but I lost 5 more pounds so now I'm down to 99 pounds...I am upset about that.I had a lot of blood workup done at the hospital today...yuck...my arm is bruised just from that.My blood pressure is still low(100...top number)...I went 6 months without a B12 shot and I'm a mess now...I did get a B12 shot in January,but I'm going to wait to see what mylevel is before I bet another B12....I am so tired of feeling like this...I also have been feeling some stress and I know the dr. could sense it....do you ever wonder if you'll ever get well and feel normal again?I do...almost all of the time.It really is not fun having a pity party for yourself 7 days a week....I want to get well and I'm sure you do to.

I hate tests and all medical stuff...I'd rather just stay in my bed then have all those tests,but what can I do..if I don't have tests done I will never know what is going on with my health.

Hey if that zinc gives you anxiety then don't mess with it....do you still take the methyl B12?Did you feel any relief from stress when you took the B12?Also I was thinking that maybe you have sinus problems...that could be the cause of your head pressure...I think it's mine too.I have bad sinuses...remember that "brain fog" I had that started in August last year...it lasted like 3 months..then I had a bad headache for 2 weeks straight and the brain fog lifted....that was amazing...and I was so thankful to feel like myself again.

I know a lot of my problems are from hormone fluctuations and men can have problems with their hormones also.My brother was very low in testosterone and the dr. said when it's that low you can't function right....he was surprised my brother could even walk...that's strange,isn't it?

Anyways sorry I took so long to get back to you...hope you are doing okay.

"see ya" soon

scout
Hello going crazy8!!!!

Well I feel honored to meet you!After reading your thread on the anxiety board it is so cool to meet you!So glad you responded to my thread here.:)

That is so strange that you are Vitamin D deficient also.Did the dr. put you on a Vitamin D supplement?All 3 of my drs. disagree on the treatment for it so right now I'm just getting outside in the sun for at least 15 minutes everyday...also I'm using the Shedd's spread with added vitamin D,butternut whole grain white bread with added vitamin D and eatting chicken(for the protein as my GP dr. told me I need).I do not want to lose anymore weight for sure.Also I'm eatting Nutrigrain cherry cereal bars for snacks.There are so many foods I just can't tolerate so it's a real chore finding stuff I csn eat.:(

Well I am just wondering if I have that celiac disease or h.pylori...I'm going to ask my dr. to do those blood tests to check.They say a D deficiency could be caused by those so I hope something shows up in tests.....I am really fed up with not getting anywhere with the drs.

So did you get your B12 level checked?If not you need to...B12 & D seem to be the ones that are deficient together.I'm wondering now if my good friend Bill(Benit) here is D deficient also...that's make 3 of us with all these symptoms having some things in common...I like that..it makes me feel like we can help each other.:)

I remember the night I started reading your posts...I stayed up reading it from start to finish....I was truly hoping the h.pylori being treated would be the thing that "cured" your symptoms....I felt badly for you when it didn't...but not to worry,because I have faith that we are going to get better...we have to!

If I recall crrectly you used to have a few drinks now and then and also Bill did too.I never drink...I'm serious...the last time I had alcohol I was 18 yrs.old and that is the truth.I was dx with hypoglycemia in 1975 so I quit caffeine and stayed away from that 'til this day.So I just mention the alcohol,because that is the thing we don't have in common.I think Bill isn't drinking anymore.

Back to the B12 issue....yeah low B12 presents with numerous neurological symptoms...you can be in the "low normal range" and still be a mess.Please get your B12 checked..."normal" is 200-1100,but you need to be above 400....my new neuro said once you are deficient you should never be below 500...I can't believe I finally found a dr. who knows something.

I also get that weird head feeling if I put pressure on my arms(like leaning on my desk),leaning back in a chair putting pressure on my back,standing in one position....I hate feeling like I'm so fragile that I could break....I'm wondering if it's the low vitamin D......and let me know if you're taking a D supplement or not....thanx so much~

I will definitely keep in touch with you...I'll post back on your thread and/or here.

Seriously I thank you so much

Scout:angel:
Hi Scout,

Thanks for your response.

I've been taking Vitamin D because it seems like some health authorities are recommending a much higher RDA for it.. because it's a common deficiency.. and because I don't get much sun, typically. Also, it's been recommended by some folks using the B12 protocol, as one of many cofactors. Recently I quit the 1000 IU capsule and now I'm getting 400 IU from a combo A/D fish oil capsule. I was thinking maybe I'm getting too much D3 and that could be behind some recent symptoms, so we'll see if anything changes over time.

Here are my recent test results:

----------------------------------------------------------------------
[B]Comprehensive Metabolic Panel w/EGFR[/B]

....................................In range...Out of range...Reference Range
Glucose..........................73..... .........................65-99 mg/dL
Urea Nitrogen (BUN).........13........................ .......7-25 mg/dL
Creatinine.......................0.88... .........................0.50-1.30 mg/dL
eGFR Non-Afr. American....>60......................... ....> OR = 60
eGFR African American......>60....................... ......> OR = 60
Bun/Creatinine Ratio.........N/A........................ ......6-22 (calc)
Sodium...........................141.... .........................135-146 mmol/L
Potassium.......................4.3..... .........................3.5-5.3 mmol/L
Chloride..........................103... ..........................98-110 mmol/L
Carbon dioxide.................30.............. .................21-33 mmol/L
Calcium.............................. .............10.3 H..........8.6-10.2 mg/dL
Protein, total...................7.1............. .................6.2-8.3 g/dL
Albumin..........................5.0.... ..........................3.6-5.1 g/dL
Globulin..........................2.1... ...........................2.1-3.7 g/dL (calc)
Albumin/Globulin ratio.......................2.4 H...........1.0-2.1 (calc)
Bilirubin, total..................1.1.............. ................0.2-1.2 mg/dL
Alkaline Phosphatase.........62.................. .............40-115 U/L
AST...............................28.... ...........................10-40 U/L
ALT...............................31.... ............................9-60 U/L

[B]Complete Blood Count (includes Diff/Plt)[/B]

....................................In range....Out of range....Reference range
White blood cell count......6.1.......................... ......3.8-10.8 Thousand/uL
Red blood cell count.........4.73...................... ........4.20-5.80 Million/uL
Hemoglobin.....................15.6..... .........................13.2-17.1 g/dL
Hematocrit.....................45.7..... ..........................38.5-50.0 %
MCV..............................96.6... ............................80.0-100.0 fL
MCH..............................32.9... ............................27.0-33.0 pg
MCHC............................34.0.... ...........................32.0-36.0 g/dL
RDW..............................12.5... ...........................11.0-15.0 %
Platelet count.................171............... ................140-400 Thousand/uL
Absolute neutrophils.........3294................ ..............1500-7800 cells/uL
Absolute lymphocytes.......2184.................. ............850-3900 cells/uL
Absolute monocytes.........433................... .............200-950 cells/uL
Absolute eosinophils.........165................. ...............15-500 cells/uL
Absolute basophils............24................. ................0-200 cells/uL
Neutrophils......................54.0... ...........................%
Lymphocytes...................35.8...... ........................%
Monocytes......................7.1...... ..........................%
Eosinophils......................2.7.... ............................%
Basophils........................0.4.... ............................%

[B]Thyroid Tests[/B]

TSH, 3rd Generation.........1.30................. ..............0.40-4.50 mIU/L
T4, Free…………………..........0.9.............……………………..0.8-1.8 ng/dL
------------------------------------------------------------------------

The doctor said the results were fine, or I assumed he did as the nurse called from the doctor's office to say the test "looked very good."

The "albumin/globulin ratio" was high, just like it was on my last test. However the high calcium level strikes me as odd. My last reading for that, 1.5 years ago, was within range at 9.8. So it climbed upwards a little. I wonder if it's "just the way it is" with me, or might be indicative of something? After all, I do have the constant 24/7 head pressure and those 10-20 other symptoms.

I should say I'm not working on all those symptoms with my doctor because I don't have the insurance to get extensive testing. I only go to the doctor if something seems too serious for me, like I did last time with tachychardia. You can't reasonably bring up all those symptoms in a 15 minute appointment, anyhow.

Lemme know,
Bill Z
I've not had a urinalysis done, even though I probably should. WIth no insurance, doctor appts. are few and far between and only when really needed. Sometimes when we get to "what else besides symptom X (reason for appt) are you dealing with" I may talk about other symptoms, last time my "other symptoms" were frequent urination and unusual thirst. Now that's gone, of course.

One theory I was thinking of the other night: with the high calcium level in the blood, do you think it could be that the excess calcium is causing muscle tightening and therefore could be partly behind the head pressure? Then I was thinking, as per your mention of it, maybe a subclinical vitamin D deficiency could be why the calcium isn't getting absorbed?

Any ideas on that?

thanks for all your help, of course
hey Bill..here's what I found:

calcium use & excretion are regulated & stabilized by a "feedback loop" involving the PTH(parathyroid gland) & Vitamin D

there are two tests for calcium..drs. use the total calcium,but the ionized calcium is a better,more accurate test.

symptoms of higher calcium are:

Fatigue
Weakness
Loss of Appetite
Nausea
Vomiting
Constipation
Abdominal Pain
Urinary Frequency
Increased Thirst
Muscle Spasms
Confusion

tests that should also be done when calcium is high are:

urine calcium
phosphoroos
magnesium
vitamin D
thyroid

these tests help in finding the "underlying problem" when calcium is high.

fluctuations in calcium can cause heart to slow down or beat too rapidly.

causes of high calcium:

benign tumor in parathyroid gland
cancer
hyperthyroidism
sarcoidosis
prolonged immobilization
excess vitamin D intake
kidney transplant

your albumin was at high end>5.0(3.6-5.1)..that points to Dehydration(which would account for your increased thirst)

I hope you find this information helpful...I find it very interesting and it has helped me understand a few more things also.

I will continue to investigate the head pressure to see if it can be related in some way to this information.

Have a good day Bill

Scout:angel:
hi Bill

got your message...I had a very rough couple of days....sinus headaches,feeling like I'm sweating then freezing....

the thing with the glossitus(sore tongue) is that it comes & goes...sometimes it's so sore & burns for days then it lets up and feels fine...it's a mystery to me why it does that????

I appreciate your help on everything...I feel so frustrated & down...just want to be well....

I seen the post with the guy who has the head pressure like you...why can't the drs. figure out what is causing it?I think that guy hould press for a brain/c-spine MRI if he has insurance...I'd like to know if he has atrophy(which can be from low B12)...I had that ,but it was fixed with the B12 shots...can't recall if I had head pressure then.

When I get the head pressure I feel like I cannot function properly...well you know the feeling....

I am waiting to hear how my EEG results came out...my dr. was off last week and the nurse said they'll call me after the dr. looks at the results....oh I hate waiting,but at the same time I'm afraid of hearing some bad news....goingcrazy8 said that if it was bad they'd probably tell me right away,but the nurse said they just got the resuts in that day when I called and the dr. was off so she wouldn't se them 'til monday(yesterday)...so I'm just waiting....

I'm interested in what you've found cocerning B12...just send me a mesage or post on here....and hey did you ever have an EEG(brain waves test)...when I was 19yrs. old I fell off a swing and hit my head really forcefully on some very huge tree roots.It made my brain waves go too fast...I had constant pressure/tinnitus and would feel like I was inside a fast falling elevator...it was awful...the whites of my eyes were totally blue and I felt weird....so the dr. pur me on Dilantin & Valium to correct the fast brain waves....it worked & 3 months later my brain waves were normal,but the tinnitus never let up completely and the dr. said I'd probably always have tinnitus from that injury.

Well I'm thinking the head pressure has something to do with the brain,because when I get it I feel really "funny" in my head...do you have a headache with the head pressure consistently or sometimes,but not related to the head pressure?I get headaches,but they are not with the head pressure.

....and at the beginning of the day and the ending of the day nothing has changed...it's all still the same....no answers...no diagnosis...it has to get better,but we can be thankful when it doesn't get worse...at least we have that

Scout
thanks Bill...your post made me feel better...that's what friends are for.

about migraines...there's the excrutiating,painful kind,but there is also the kind that has "no pain at all";this is called a "silent migraine".Those few months I had that "derealization"....feeling was probably a "silent migraine"(I read about that on the boards here) and it makes a whole lotta sense to me...and then afterward I had the two week long headache and the derealization feeling was gone.

A while back when I was having visual disturbances the ds. said they were occular migraines,but there was no pain at all...just the vision disturbance...at that time I had a slightly abnorml EEG and that is common with migraines.Diet played a significant role in that also...I had to stay on a migraine diet(no MSG,nitrates,yeast(regular bread was okay),fish,beans,nuts,whole milk & cheeses,chocolate,citrus fruits,peas,green beans,caffeine).Some people are very sensitive to all of those foods and some to only a few.For me I had to stay away from the nitrates(deli lunch meats,hot dogs) and cakes & cookies made with yeast...they always triggered an attack.

I once had a severe sinus infection(no pain),but I had extreme head pressure(I had to sleep sitting up...laying down made it unbearable)...the dr. put me on Biaxin and in 24 hrs. the pressure was gone.She said I had sinusitus.I'm sure you've explored all about sinus/head pressure already????

Neurologists don't seem to know anything about the head pressure so I think an endocrinologist or an ENT dr. would be better at finding a dx for head pressure...neuro's just look for their specialty(MS,Parkinson's,etc.)

I'm waiting on the copies of my blood tests...I shoud get them today/tomorrow...I can't wait to look at them...that sounds funny,but I want to compare them to my other labs from August last year...see if anything changed.

Well right now I'm not doing a thing about the B12...since it was 605 I'm not concerned...I don't seem to have any low B12 sx right now...I just don't care for the way all my drs.have made mistakes at the expense of my health.

So did you ever notice if certain foods trigger any of your sx,Bill?I'd start keeping a log of what you eat/drink and see if anything points to that....did you stop or cut down on the Vitamin D yet?

Well I haven't seen any new activity as far as the waiting room is concerned.It will be beneficial once more people are there.

Well tinnitus is another thing we have in common..mine is in my right ear though...I noticed when it's really bad my legs ache(shins) and my hearing is very sensitive to every little noise.

Wonder if your head pressure is a constant, silent migraine...I'll see what I can find on that...

Scout
[QUOTE=scout316;4221743]
A while back when I was having visual disturbances the ds. said they were occular migraines,but there was no pain at all...just the vision disturbance...at that time I had a slightly abnorml EEG and that is common with migraines.Diet played a significant role in that also...I had to stay on a migraine diet(no MSG,nitrates,yeast(regular bread was okay),fish,beans,nuts,whole milk & cheeses,chocolate,citrus fruits,peas,green beans,caffeine).Some people are very sensitive to all of those foods and some to only a few.For me I had to stay away from the nitrates(deli lunch meats,hot dogs) and cakes & cookies made with yeast...they always triggered an attack.
[/quote]

Thanks for all your advice, scout. In any event, though, I just don't think I should try another exclusion diet without the advice of some kind of professional. I tried the candida diet before and possibly dropped to 130 pounds, and as a 5'9" male, that just doesn't look good. There was an energy increase but no effect on head pressure or anything else. With all that weight loss, I could barely keep my usual clothes on at that point.

The idea that a few specific foods could be triggering my vision abnormalities, head pressure, and other problems certainly has merit. But how could I know which one(s) are the trigger? Call me lazy or entitled, but I don't want to keep switching things around in terms of diet until I can find more specific evidence. Everyone tells me to get rid of caffeine but I dread giving up these meager 2-3 cups per day, which is down from 5-6.

One thing I know for sure, anything with lots of added sugar makes me tired and fatigued, and I'm better off without it. That's one dietary change that makes sense for me, and I've kept to it, with noticeable benefits. Again, though, it doesn't reduce head pressure. Nor does exercise. But I stick to both habits because they have proven benefits, regardless.

[QUOTE=scout316;4221743]
I once had a severe sinus infection(no pain),but I had extreme head pressure(I had to sleep sitting up...laying down made it unbearable)...the dr. put me on Biaxin and in 24 hrs. the pressure was gone.She said I had sinusitus.I'm sure you've explored all about sinus/head pressure already????
[/quote]

That's interesting, my head pressure is also at its worst when lying down. Lately I've been trying to elevate my head, which helps a little bit.

I have explored the sinus issue, but cannot find any concrete answers within that topic. Basically I can't figure out which way to approach it. Basic remedies like nasal spray never did anything. Options are too limited without insurance.
Bill...have you been on any anti-biotics since your head started having pressure?If not I think a trial of anti-biotics might be helpful to you.You can have consistent head pressure from sinuses that are thickened...when I had head pressure my brain MRI showed "a mild thickening of the sinuses"...yeah...so I think that might have something to do with your head pressure...also your mentioning how it gets worse when you lie down....

Can you give your dr. a call and ask for an antibiotic for a sinus infection?Did you tell your dr. on your last visit you still had head pressure?...if you did then just call and say you still have the head pressure and could you try an antibiotic to see if it helps...I don't know,but if I were you I'd be willing to see if that'd help.

Scout
[QUOTE=scout316;4222441]Bill...have you been on any anti-biotics since your head started having pressure?If not I think a trial of anti-biotics might be helpful to you.You can have consistent head pressure from sinuses that are thickened...when I had head pressure my brain MRI showed "a mild thickening of the sinuses"...yeah...so I think that might have something to do with your head pressure...also your mentioning how it gets worse when you lie down....

Can you give your dr. a call and ask for an antibiotic for a sinus infection?Did you tell your dr. on your last visit you still had head pressure?...if you did then just call and say you still have the head pressure and could you try an antibiotic to see if it helps...I don't know,but if I were you I'd be willing to see if that'd help.

Scout[/QUOTE]

I was given some sample packs of antibiotics for sore throat w/ cold, about 2.5 years ago. Can't really place the time frame. But yes I definitely had head pressure then. However, I don't think the antibiotics helped the pressure. I don't remember the name of the product, but I'm pretty sure it was not Biaxin. I think I only took the antiobiotics every day for a week, tho.

Next time I go I'll have to remind him about the head pressure, and see what he recommends for it. I'm not sure if I should suggest it is caused by sinus problems, though, as I don't know for certain.

Can one really have chronic sinus problems without a stuffy nose or pain? Because I don't have either symptom.

I also find it interesting that you've mentioned multiple causes for head pressure that you've had throughout your life, one time from the mild head injury you had when younger, once from sinusitis, and more recently from some unknown cause. What a sly, sinister symptom this "pressure" really is.
there was no pain or stuffy/runny nose when I had the bad pressure and went to a sinus specialist dr. and was given Biaxin...it was just tremendous head pessure...and it cleared up in 24 hrs and I took the full course of the antibiotic...the only thing I felt besides the severe pressure in my head was it also felt like I had a terrible toothache(I went to my dentist and there was no problem with my teeth)...he told me to see an ENT dr...so I did.Do you have any pain in your teeth at all????

Also you know the nose,ears & eyes are all connected and when one acts up it can cause problems with the head.Have you ever seen an ENT(ears,nose,throat)dr.?They specialize witrh all that...forget the family physicians...they're really not educated to handle anything more than common aches,pains,colds,flu,etc.

If your eyes,ears,throat bother you also then I'd see an ENT dr....the head pressure is coming from somewhere and that type of dr. should be able to figure that out for you.

So did you stop taking the vitamin D yet?...just wondering....

I did get the copies of my blood tests in the mail.Well let me tell you this...that dr. is full of nonsense too!My blood showed an elevated protein level,low lymphocytes,borderline low platelets,high MPV(mean platelet volume) and the biggest shock was that my B12 level was 998....yeah and that was on March 4th(last B12 shot was on Jan.4th)...then onMarch 8th my B12 level was 605....what do you think about that?Strange how it dropped like 400 points in four days....I wonder what the level is now....

I was upset because that dr. didn't check my iron or ferritin,but my magnesium was good at 2(in the past I had been low on that at 1.6).

Well I'll keep searching to find more info on consistent head pressure.....

Scout
[QUOTE=scout316;4223132]
there was no pain or stuffy/runny nose when I had the bad pressure and went to a sinus specialist dr. and was given Biaxin...it was just tremendous head pessure...and it cleared up in 24 hrs and I took the full course of the antibiotic...the only thing I felt besides the severe pressure in my head was it also felt like I had a terrible toothache(I went to my dentist and there was no problem with my teeth)...he told me to see an ENT dr...so I did.Do you have any pain in your teeth at all????

Also you know the nose,ears & eyes are all connected and when one acts up it can cause problems with the head.Have you ever seen an ENT(ears,nose,throat)dr.?They specialize witrh all that...forget the family physicians...they're really not educated to handle anything more than common aches,pains,colds,flu,etc.
[/quote]

A lot of this is interesting to me. Yes I do get pain in my teeth from time to time and it is usually when the pressure is really bad. My eyes have also been bloodshot and dry for a couple years (I cant wear contact lenses anymore, because of constant dryness) and now it looks like the red tissue in the corners is inflamed. Sometimes when I'm lying down at night, trying to sleep, and the pressure is utterly killing me, that's also when I seem to get sinus drainage.

[QUOTE=scout316;4223132]
If your eyes,ears,throat bother you also then I'd see an ENT dr....the head pressure is coming from somewhere and that type of dr. should be able to figure that out for you.
[/quote]

How would I get the referral, though?

[QUOTE=scout316;4223132]
So did you stop taking the vitamin D yet?...just wondering....
[/quote]

I quit the 1000 IU of D3. However I'm still taking a capsule that has both 10,000 IU of Vitamin A and 400 IU of D3 (fish-oil derived, not beta carotene.) I was thinking maybe the Vitamin A could help with the dry eyes but I haven't noticed any effect. Not to mention I think low Vitamin A can cause dehydration, or something. Should I skip this one too?

Thanks again for all your help.

regards,
Bill
hi Bill

if you don't have insurance then you shoudn't need a referral at all.What you can do is go to a web site for a hospital in your area...they usually have lists of drs. and what their specialty is.....then you can read about the dr. usually and pick which one suits your needs...an ENT in your case.

Well as far as vitamin A goes...I was low when they checked mine a couple years ago,but the dr. told me to eat foods rich in that,because vitmin A can be very toxic....so you should definitely stop that one.I think a good multi-vitamin has enough A in it anyways.

Plus I was thinking about the problem you have with the "derealization" thing and I read on here that it might be caused by sinus problems and also can be a "silent migraine".

Well I'm realy hoping that you can get in to see an ENT dr....you've been suffering a very long time.....

Bill I'm positive when you tell the dr. your head pressure gets worse when you lie down and some of your teeth hurt too(just tell the dr. you saw a dentist already and your teeth aren't the cause of it)that the dr. will prescribe an antibiotic for you.

You could also ask the dr. for an antibiotic that isn't very expensive(I think Erythromycin is very cheap,but biaxin used to be very expensive and they are similar antibiotics...or ask if a generic would work as well..sometimes the generic isn't as good,but the dr. will know which one to give you).
Dear scout,

thanks again for your insight. your collaboration on this problem is invaluable.

i just wanted to ask, and i know it's a ridiculous question, but just asking your opinion. but would you place your bet on my case of head pressure being most likely caused by a sinus issue?

i would need to get the courage up to get another doctor's appointment soon. the ENT doc looks unlikely, isn't seeing a specialist a lot more costly than seeing a GP?

but suppose i tell my regular doc the stuff discussed here and i do get a script for strong antibiotics. i want to be sure this is a sinus issue, here's why: a long enough course of antibiotics can kill the good bacteria in your gut and you can get candida and even oral thrush from that. or so, that's what i've heard.

not to mention sometimes antibiotics don't even help a bad case of chronic sinusitis. if i have a sinus issue, it wouldn't be the acute form. not with head pressure daily for six years... that's not acute.

thanks,
bill
...yeah a specialist would cost more I agree.

yesterday I spent hours researching consistent head pressure....I found a few things that possibly might help you....

there was this 44 yr. old man who was in the army...his head pressure started not long after he went overseas.He had an eye exam,CT scans,allergy testing,head x-rays and they couldn't find out what his problem was.Even after he was through in the army and went home the drs. couldn't figure out what was causing it.

He said that he had a heavy/tight feeling from his eye brows,temples to the back of his head.He would wake up with it everyday and it only let up when he was outside exercising.He was sensitive to bright light,had tinnitus,was lightheaded also.

One dr. said it might be a "left-over" inner ear viral infection or a mild,chronic tension headache or a eustachian tube problem(ears).He had about 6 posts I think on there,

but he never posted back to let anyone know if he finally was dx or he got better.He had similar sx as you so it was interesting reading his posts.

I read a bunch of other things and here's what I found so far:

try using saline nose spray(no medicine in it)to see if that helps...give it at least a week to get results

could be coming from the neck(several people were dx with neck problems,loss of natural curve in neck was mentioned)

anti-depressants can cause this(I heard of that before...actually seen a special on TV about it...years ago...)

you can try sudafed to see if that helps

could be related to the back also

well my friend I guess there are a ton of possibilities why you have consistent head pressure

as far as antibiotics go,that is a personal choice for you and if you'd rather not take them for whatever reason that's your choice,but you are right about the side effects...if you knew you'd get better with them I'm sure you' take them,but I can see you're not a fan of antibiotics(that makes two of us).

Scout
not sure how many times a day for the nasal spray,but I think it will tell you on the bottle...it's just water with salt in it I'm almost positive.

okay so when the head pressure started was it after you moved to a new residence?think back and try to think of any changes that occurred at the time your head pressure started,okay?this is important...did you say you felt better when you were outside also?exercising helped you sometimes...am I correct on that?
[QUOTE=scout316;4225230]not sure how many times a day for the nasal spray,but I think it will tell you on the bottle...it's just water with salt in it I'm almost positive.

okay so when the head pressure started was it after you moved to a new residence?think back and try to think of any changes that occurred at the time your head pressure started,okay?this is important...did you say you felt better when you were outside also?exercising helped you sometimes...am I correct on that?[/QUOTE]

Dear scout,

No, I haven't moved to a new residence. Even though I have admitted it before, it's with some shame to admit I first got the pressure when I was using addictive drugs. It started very mildly one night, so I just shrugged it off as something that would go away, and continued with my drug of choice. You kinda throw caution to the wind in such a poor mental state as I was in. But first off, it did not go away, and secondly, continued abuse made the head pressure a heck of a lot worse.

If you want to look at the sinus angle here, well this is the kind of drug that has side effects on the sinuses. Stimulants such as I used affect sinus pathways much the same way as Sudafed, except with much greater potency. I also got very ill during that period with several terrible colds and a flu-like syndrome at one point, so there were some very clear adverse effects going on with the paranasal network.

I've also had terrible IBS-like symptoms just as long as I've had the head pressure. The IBS and the pressure may have started around the same time. Other than that, new symptoms such as constant left-ear tinnitus, reduced skin sensation, odd gait, constant dry eyes, difficulty moving eye muscles, and so forth (there is more)... these have accumulated [B]gradually [/B]through the years.

I still believe that whatever is the cause of the pressure, is probably the cause of most (but probably not all) of my symptoms. Whenever my pressure is at its worst, the other symptoms become worse, too.

Just being outside does nothing for the pressure. However rigorous exercise (sports, running) can make it seem like it's gone for an hour or two afterwards--but once that "grace period" is over, damn that pressure comes back SO much worse than it was before exercise, it's practically pulsating in my head. It seems that light exercise is the most helpful--while I don't have the grace period like I do with strenuous exercise, the pressure doesn't get worse, either. I seem to get mild relief for several hours from light exercise.

Another thing that helps: For some reason, the process of eating, and an hour after eating, the pressure isn't as bad.
Well you have to try to rule in/out what may be the cause/s.The sinus is a good choice where to begin.

I know a few people who had tremendous ongoing head pressure related to a sinus problem.Could be your sinuses got quite a tremendous workout from the drug use.The fact that you have visual problems would be a clue that it's coming from the sinus.

Try the saline spray...if it does help a bit then maybe what you may need is a steroid nasal spray...that'd be great if something like that'd help you.When my brain MRI showed a "slight thickening of the sinuses" I felt like I could not function normally...I know I was low in B12 then,but I also had sx not related to B12 and thought they were Chiari related,but the drs. said they weren't.I'll bet you have severe sinus pressure.So to sum it up I suggest you try the nasal spray and then go from there,okay?

You're going to get better and someday you'll be able to help others who have the same health problems as yourself...

Scout
[QUOTE=scout316;4226333]Well you have to try to rule in/out what may be the cause/s.The sinus is a good choice where to begin.

I know a few people who had tremendous ongoing head pressure related to a sinus problem.Could be your sinuses got quite a tremendous workout from the drug use.The fact that you have visual problems would be a clue that it's coming from the sinus.

Try the saline spray...if it does help a bit then maybe what you may need is a steroid nasal spray...that'd be great if something like that'd help you.When my brain MRI showed a "slight thickening of the sinuses" I felt like I could not function normally...I know I was low in B12 then,but I also had sx not related to B12 and thought they were Chiari related,but the drs. said they weren't.I'll bet you have severe sinus pressure.So to sum it up I suggest you try the nasal spray and then go from there,okay?

You're going to get better and someday you'll be able to help others who have the same health problems as yourself...

Scout[/QUOTE]

I really wish I could thank you for your support in other ways than just typing it here. But as it is, you don't just get one gold star, you get a dozen ;)

I will try the saline nasal spray asap, see if i get any kind of relief from it. I'm not holding out great hope that such a simple remedy will help, but it certainly can't hurt to try. Can't have unrealistic expectations anymore, y'know, and all that.

Did you have any other symptoms at the time your brain MRI showed "thickening of the sinuses", like... weakness, fatigue, visual problems? And if so, did they get better after the Biaxin?

i'll report back with any news when there is some.
Bill...this one neurologist told me that there are some migraines that will affect your sinuses...your sinuses will actually not drain & become "thickened"(like on my MRI)....those migraines can cause no pain...just a whole lotta symptoms...like the visual disturbances(called auras),weakness,off-balance,teeth hurting.........so many sx...

Well the time I had the Biaxin was only when I had the head pressure(no other sx,except teeth hurting).

You know vascular headaches can cause the visual distubances and you have to eliminate certain things in your diet for that...plus drs. would probably recommend something like "Imitrex" migaine medicine...even if you don't have any pain...because it's still a migraine and most people think they have a sinus headache,but it actually is a migraine that affects the sinuses...get it?I know it's a bit confusing,but it sounds like this might be what you have....to sum it up>vascular headache with no pain(causing visual disturbances),sinuses not draining properly(caused by the vascular migraine)which in turn is causing head pressure,teeth hurting,tinnitus........



Scout
thanks again for your response.

it's true when the threads get long here, they often get closed down. i'll start a new thread pretty soon.

so from previous correspondence, i take it you have been a nurse before? i think you mentioned this once. anyhow, your relatively vast knowledge of health-related topics must come from somewhere.

i've used raisin bran and other bran cereals before, but most of them have too much sugar. too much sugar can cause fatigue for me. but the thing that helps the most these days for my chronic constipation is ground flaxseed. even breakfast cereals that contain flaxseed help, although the best is really the flax you buy separately and can add to food/drink/whatever.

i gave that saline spray a shot the other night. however, unlike Afrin (medicated spray) there was no drainage or clearance. I did notice a couple semi-unusual things, though. there was some popping/crackling in my right ear and later on it seemed like the head pressure had moved to that area above the nose, between the eyebrows. but that was all i noticed, i don't know if that means anything, or not. the pressure was still killing me when i was lying down to sleep, just like usual.

i'll continue using the saline spray for a week. i guess the idea is that moisturizing blocked up sinuses is a gradual process, eh?

thanks,
Bill Z
Bill

well I was reading about "pain between the shoulder blades"today...I shouldn't have,because it went on to say that it could be liver cancer,esophageal(sp?)cancer,gall bladder...yuck....I was interested in that,because occasionally I get that pain there...all these sx...what to doooooo?

what bothered me about what I read was that problems with the liver can cause night sweating...interesting,isn't that?plus it said you could have a
discomfort feeling under right ribs(I have that!)....I still need to get that CT scan done....wonder if anything would show...whenever I have tests they're either normal or show something that the drs. can't help me with?that is frustrating.

no I never was a nurse...I was a caregiver though,but I never mentioned that on the boards.you think I know a lot about medical things...well it comes from being loaded with sx and drs. not doing jack to dx me...hahaha...I had the best medical books,but after I got better and thought I wouldn't be ill anymore I got rid of all those books...wish I didn't do that...oh well...can't cry over things like that.

what you said about the nasal spray when you used it....sounds like it did something in there....did you ever try a steroid nasal spray?I'm trying to remember which is which with headaches...they say one kind gets better when you lie down and the other kind gets worse..I think tension gets better & pressure gets worse(which would be like in your case)when you lie down.Head pressure is actually considered a headache.

well anyways I got liver cancer on my mind tonight...now I really feel like a hypochondriac....but that purple bruise type thing on my back is concerning me just a little....plus the pain between my shoulder blades(that eased up after a couple hours...)....

so then your head pressure feels less when you're standing and the worst when your lying down?man I wish you could have a CT scan of your sinuses Bill....did you ever have one?You need a good ENT dr. who knows his stuff...how can you suffer for so many years...you are stronger than you think.....

have a good night....Scout
Hi Scout,

I understand what you mean about the pressure in your head. Mine never goes away. I am getting use to it. At first when it got bad I felt like I was watching the tele rather than living my life. I felt so remote from everything. I am being treated for a mastoid infection. I am on the sixth course of antibiotics. The MRI found fluid when I had it done in January. I have been going to doctors since last August and not been able to work since last October. I have alot of head pain around the mastoid however nobody thinks its very important. I am with Bill. This weird pressure never goes away. My right ear is still oozing and is smelly. I think I will try to see an immunologist to see if I am having the right treatment. Hopefully they may have seen someone like me.

Gjoy
[QUOTE=scout316;4229213]
what you said about the nasal spray when you used it....sounds like it did something in there....did you ever try a steroid nasal spray?I'm trying to remember which is which with headaches...they say one kind gets better when you lie down and the other kind gets worse..I think tension gets better & pressure gets worse(which would be like in your case)when you lie down.Head pressure is actually considered a headache.

so then your head pressure feels less when you're standing and the worst when your lying down?man I wish you could have a CT scan of your sinuses Bill....did you ever have one?You need a good ENT dr. who knows his stuff...how can you suffer for so many years...you are stronger than you think.....

have a good night....Scout[/QUOTE]

Believe me, I know all about being a hypochondriac and looking up symptoms, and finding something very unsettling. But I've finally learned not to look into serious diagnoses too much, only to "graze" on that data here and there, rather than look into all the details and try to find links to my Sx. I used to get anxiety attacks from that.

Yes, my pressure is almost always worse when lying down and a little better when standing. Does that really seem like a sinus problem to you?

I still don't see how head pressure could be caused by migraine. I have head pressure constantly. But I have never heard of anyone who has a migraine 24/7. A website about migraines I went to recently said that migraines are not constant, at least.

The second time I used the nasal spray was like the first--the pressure "shifted"--but still, no drainage, and no relief. The saline actually leaked back into my throat and gave me some irritation. I'll continue, nonetheless.
I also wanted to say, with some outrage, that this unknown condition continues to ruin any ability I have to concentrate. I just can't perform any semi-complex mental task for longer than 5 minutes without losing focus, that is if I can even start at all. My short term memory is becoming less and less competent. The head pressure is no doubt a large part of the culprit.

I don't know what I can do to increase focus anymore. Caffeine used to help but no longer, the more I take the worse my fatigue gets, in the long run. Omega 3 fish oil has helped in the past, but now I've linked it to these strange visual episodes I get in the morning. It is a [B]definite [/B]link... I've started and stopped Omega 3 fish oil about 6 times now. Every time I quit, the episodes decrease in number. If I go back on the fish oil, sometimes I get these "waking auras" every other day if not every day.

I know, I'm just complaining, and yes I know some people have it so much worse. But it really sucks to lose your ability to concentrate, all because of some problem that's too vague to be diagnosed.

If anyone can think of any supplements that could boost focus, lemme know. Exercise can help but like I said before, nothing really works reliably, so long as I have the head pressure constantly.
Hi Bill!

OMG I'm sorry if what I wrote about upset you....I was just thinking how your blood tests showed "possible dehydration"...which seems to me that you need to keep yourself more hydrated.That could be a "clue" to your head pressure and also that would relate to your sinuses being "dry"which doesn't help head pressure.Also it is a fact that headaches/head pressure can be due to not being hydrated enough.

So it could very well be sinus related....I still think that's a very possible theory.

So what do you drink usually?Do you drink water?I still think there's something going on with your sinuses and your hydration.

Constipation usually is related to dehydration also.There seems to be a lot of "clue" in your sx relating to dehydration.I'll research some more on this for you.

Have a good day my dear friend...I'll post back again later today~

Scout
[QUOTE=scout316;4230862]Hi Bill!

OMG I'm sorry if what I wrote about upset you....I was just thinking how your blood tests showed "possible dehydration"...which seems to me that you need to keep yourself more hydrated.That could be a "clue" to your head pressure and also that would relate to your sinuses being "dry"which doesn't help head pressure.Also it is a fact that headaches/head pressure can be due to not being hydrated enough.

So it could very well be sinus related....I still think that's a very possible theory.

So what do you drink usually?Do you drink water?I still think there's something going on with your sinuses and your hydration.

Constipation usually is related to dehydration also.There seems to be a lot of "clue" in your sx relating to dehydration.I'll research some more on this for you.

Have a good day my dear friend...I'll post back again later today~

Scout[/QUOTE]

No, you didn't upset me, please don't worry about that. The anxiety I had over these more serious conditions happened long ago. I've learned not to let such things affect me too much anymore, as it is.

About the dehydration thing, yeah I do sometimes have unusual thirst. However, I usually drink water, and *lots* of it. I drink at least 8 glasses of water a day. True I have up to 3 cups of coffee, which is a diuretic, but I don't see how that could cause a longterm state of dehydration. Alcohol I avoid like the plague, so that's not a factor.
Gjoy,

I'll try sleeping propped up with more pillows. But that has its own disadvantages, I think, which is why I've been apprehensive about it. I don't know if it's so great to have your back get used to that.

Also, have you (or scout) tried warm compresses on the head to relieve pressure? Does it help?





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