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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


[QUOTE=scout316;4220553]
I'm interested in what you've found cocerning B12...just send me a mesage or post on here....and hey did you ever have an EEG(brain waves test)...when I was 19yrs. old I fell off a swing and hit my head really forcefully on some very huge tree roots.It made my brain waves go too fast...I had constant pressure/tinnitus and would feel like I was inside a fast falling elevator...it was awful...the whites of my eyes were totally blue and I felt weird....so the dr. pur me on Dilantin & Valium to correct the fast brain waves....it worked & 3 months later my brain waves were normal,but the tinnitus never let up completely and the dr. said I'd probably always have tinnitus from that injury.
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There is strong evidence that you can't fix low B12 or B12 deficiency with shots once or twice a month, particularly if you are getting cyanocobalamin. The long explanation would be hard for me to write here, with all my brain fog. But essentially, once the B12 system is broken, it is not easily fixed, and generally the only way to heal is to "override" with active B12s. ActiveB12s being methycobalamin and adenosylcobalamin. Cyanocobalamin is factually inactive, it has to be converted in the body and not everyone makes that conversion easily.

I have never had an EEG but would like to get one. I've been getting frequent episodes of waking up with abnormal vision (lasts a couple minutes), over the last few months. This is typically accompanied by terrible head pressure (but not pain!) upon waking, so the two might be linked. My head pressure has gotten noticeable worse in the last year, so that it affects my sleep much more than it used to. And with that came the abnormal vision episodes.

[QUOTE=scout316;4220553]
Well I'm thinking the head pressure has something to do with the brain,because when I get it I feel really "funny" in my head...do you have a headache with the head pressure consistently or sometimes,but not related to the head pressure?I get headaches,but they are not with the head pressure.
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I do sometimes have typical (but mild) headaches along with the head pressure, but not often. I would not be able to tell you if they are related--how could I know that? One thing I can say for sure is that I do not get classic "excruciating" migraine attacks, so therefore I have to wonder if head pressure even belongs to the migraine family.

I've had near-constant left-ear tinnitus for about 1.5-2 years now.

Six years along with this awful nuisance, no answers, I'm beginning to wonder if I should give up hope of ever finding relief. True, it could be a lot worse, but I can't deny that the head pressure + 15 or so other symptoms causes a lot of problems for me.
thanks Bill...your post made me feel better...that's what friends are for.

about migraines...there's the excrutiating,painful kind,but there is also the kind that has "no pain at all";this is called a "silent migraine".Those few months I had that "derealization"....feeling was probably a "silent migraine"(I read about that on the boards here) and it makes a whole lotta sense to me...and then afterward I had the two week long headache and the derealization feeling was gone.

A while back when I was having visual disturbances the ds. said they were occular migraines,but there was no pain at all...just the vision disturbance...at that time I had a slightly abnorml EEG and that is common with migraines.Diet played a significant role in that also...I had to stay on a migraine diet(no MSG,nitrates,yeast(regular bread was okay),fish,beans,nuts,whole milk & cheeses,chocolate,citrus fruits,peas,green beans,caffeine).Some people are very sensitive to all of those foods and some to only a few.For me I had to stay away from the nitrates(deli lunch meats,hot dogs) and cakes & cookies made with yeast...they always triggered an attack.

I once had a severe sinus infection(no pain),but I had extreme head pressure(I had to sleep sitting up...laying down made it unbearable)...the dr. put me on Biaxin and in 24 hrs. the pressure was gone.She said I had sinusitus.I'm sure you've explored all about sinus/head pressure already????

Neurologists don't seem to know anything about the head pressure so I think an endocrinologist or an ENT dr. would be better at finding a dx for head pressure...neuro's just look for their specialty(MS,Parkinson's,etc.)

I'm waiting on the copies of my blood tests...I shoud get them today/tomorrow...I can't wait to look at them...that sounds funny,but I want to compare them to my other labs from August last year...see if anything changed.

Well right now I'm not doing a thing about the B12...since it was 605 I'm not concerned...I don't seem to have any low B12 sx right now...I just don't care for the way all my drs.have made mistakes at the expense of my health.

So did you ever notice if certain foods trigger any of your sx,Bill?I'd start keeping a log of what you eat/drink and see if anything points to that....did you stop or cut down on the Vitamin D yet?

Well I haven't seen any new activity as far as the waiting room is concerned.It will be beneficial once more people are there.

Well tinnitus is another thing we have in common..mine is in my right ear though...I noticed when it's really bad my legs ache(shins) and my hearing is very sensitive to every little noise.

Wonder if your head pressure is a constant, silent migraine...I'll see what I can find on that...

Scout
[QUOTE=scout316;4221743]
A while back when I was having visual disturbances the ds. said they were occular migraines,but there was no pain at all...just the vision disturbance...at that time I had a slightly abnorml EEG and that is common with migraines.Diet played a significant role in that also...I had to stay on a migraine diet(no MSG,nitrates,yeast(regular bread was okay),fish,beans,nuts,whole milk & cheeses,chocolate,citrus fruits,peas,green beans,caffeine).Some people are very sensitive to all of those foods and some to only a few.For me I had to stay away from the nitrates(deli lunch meats,hot dogs) and cakes & cookies made with yeast...they always triggered an attack.
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Thanks for all your advice, scout. In any event, though, I just don't think I should try another exclusion diet without the advice of some kind of professional. I tried the candida diet before and possibly dropped to 130 pounds, and as a 5'9" male, that just doesn't look good. There was an energy increase but no effect on head pressure or anything else. With all that weight loss, I could barely keep my usual clothes on at that point.

The idea that a few specific foods could be triggering my vision abnormalities, head pressure, and other problems certainly has merit. But how could I know which one(s) are the trigger? Call me lazy or entitled, but I don't want to keep switching things around in terms of diet until I can find more specific evidence. Everyone tells me to get rid of caffeine but I dread giving up these meager 2-3 cups per day, which is down from 5-6.

One thing I know for sure, anything with lots of added sugar makes me tired and fatigued, and I'm better off without it. That's one dietary change that makes sense for me, and I've kept to it, with noticeable benefits. Again, though, it doesn't reduce head pressure. Nor does exercise. But I stick to both habits because they have proven benefits, regardless.

[QUOTE=scout316;4221743]
I once had a severe sinus infection(no pain),but I had extreme head pressure(I had to sleep sitting up...laying down made it unbearable)...the dr. put me on Biaxin and in 24 hrs. the pressure was gone.She said I had sinusitus.I'm sure you've explored all about sinus/head pressure already????
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That's interesting, my head pressure is also at its worst when lying down. Lately I've been trying to elevate my head, which helps a little bit.

I have explored the sinus issue, but cannot find any concrete answers within that topic. Basically I can't figure out which way to approach it. Basic remedies like nasal spray never did anything. Options are too limited without insurance.
there was no pain or stuffy/runny nose when I had the bad pressure and went to a sinus specialist dr. and was given Biaxin...it was just tremendous head pessure...and it cleared up in 24 hrs and I took the full course of the antibiotic...the only thing I felt besides the severe pressure in my head was it also felt like I had a terrible toothache(I went to my dentist and there was no problem with my teeth)...he told me to see an ENT dr...so I did.Do you have any pain in your teeth at all????

Also you know the nose,ears & eyes are all connected and when one acts up it can cause problems with the head.Have you ever seen an ENT(ears,nose,throat)dr.?They specialize witrh all that...forget the family physicians...they're really not educated to handle anything more than common aches,pains,colds,flu,etc.

If your eyes,ears,throat bother you also then I'd see an ENT dr....the head pressure is coming from somewhere and that type of dr. should be able to figure that out for you.

So did you stop taking the vitamin D yet?...just wondering....

I did get the copies of my blood tests in the mail.Well let me tell you this...that dr. is full of nonsense too!My blood showed an elevated protein level,low lymphocytes,borderline low platelets,high MPV(mean platelet volume) and the biggest shock was that my B12 level was 998....yeah and that was on March 4th(last B12 shot was on Jan.4th)...then onMarch 8th my B12 level was 605....what do you think about that?Strange how it dropped like 400 points in four days....I wonder what the level is now....

I was upset because that dr. didn't check my iron or ferritin,but my magnesium was good at 2(in the past I had been low on that at 1.6).

Well I'll keep searching to find more info on consistent head pressure.....

Scout
Bill...this one neurologist told me that there are some migraines that will affect your sinuses...your sinuses will actually not drain & become "thickened"(like on my MRI)....those migraines can cause no pain...just a whole lotta symptoms...like the visual disturbances(called auras),weakness,off-balance,teeth hurting.........so many sx...

Well the time I had the Biaxin was only when I had the head pressure(no other sx,except teeth hurting).

You know vascular headaches can cause the visual distubances and you have to eliminate certain things in your diet for that...plus drs. would probably recommend something like "Imitrex" migaine medicine...even if you don't have any pain...because it's still a migraine and most people think they have a sinus headache,but it actually is a migraine that affects the sinuses...get it?I know it's a bit confusing,but it sounds like this might be what you have....to sum it up>vascular headache with no pain(causing visual disturbances),sinuses not draining properly(caused by the vascular migraine)which in turn is causing head pressure,teeth hurting,tinnitus........



Scout
Bill

well I was reading about "pain between the shoulder blades"today...I shouldn't have,because it went on to say that it could be liver cancer,esophageal(sp?)cancer,gall bladder...yuck....I was interested in that,because occasionally I get that pain there...all these sx...what to doooooo?

what bothered me about what I read was that problems with the liver can cause night sweating...interesting,isn't that?plus it said you could have a
discomfort feeling under right ribs(I have that!)....I still need to get that CT scan done....wonder if anything would show...whenever I have tests they're either normal or show something that the drs. can't help me with?that is frustrating.

no I never was a nurse...I was a caregiver though,but I never mentioned that on the boards.you think I know a lot about medical things...well it comes from being loaded with sx and drs. not doing jack to dx me...hahaha...I had the best medical books,but after I got better and thought I wouldn't be ill anymore I got rid of all those books...wish I didn't do that...oh well...can't cry over things like that.

what you said about the nasal spray when you used it....sounds like it did something in there....did you ever try a steroid nasal spray?I'm trying to remember which is which with headaches...they say one kind gets better when you lie down and the other kind gets worse..I think tension gets better & pressure gets worse(which would be like in your case)when you lie down.Head pressure is actually considered a headache.

well anyways I got liver cancer on my mind tonight...now I really feel like a hypochondriac....but that purple bruise type thing on my back is concerning me just a little....plus the pain between my shoulder blades(that eased up after a couple hours...)....

so then your head pressure feels less when you're standing and the worst when your lying down?man I wish you could have a CT scan of your sinuses Bill....did you ever have one?You need a good ENT dr. who knows his stuff...how can you suffer for so many years...you are stronger than you think.....

have a good night....Scout





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