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Brain & Nervous System Disorders Message Board


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Thanks willowpoint for your update. Congratulations on winning through. It is so frustrating when you know there is something wrong but the docs won't believe you. I have been following Benits thread with interest as I have the same problem head pressure. As you will have read on that thread I improved a lot on antibiotics but have gone backwards since coming off them at the beginning of May.
Was it a specific blood test for Lymes disease you had to have? Was there any other sign in your blood of infection?
Thanks again

Gjoy:)
Thanks very much Willowpoint for your encouragement and the info. Although I don't live in a tick area I have camped in many. I have been saying for a long time the head pressure is an infection, but even when I improved on antibiotics and went backwards again without, I was told to go back to the psychiatrist. I took 8 courses. I think women have more trouble fighting the anxiety tag.

I have had this problem for many years, I believe more than 25 but it has got worse in the last few and I have had the other symptoms, sound and light sensitivity, dropping things, difficulty walking, shortness of breath. When the throbbing starts in my head I often get a pain in my lower back. Have you had any of these probs? I am seeing another doctor tomorrow and I am feeling more encouraged. I won't walk out of his rooms without some action. I have been patient enough.

Thank you

Gjoy
As much as I may be a pessimist, I don't think that head pressure has much in common with Lyme Disease; while Lyme Disease can be a mysterious disease and affects people differently, it has its own core set of symptoms.

I myself do not have any of the typical Lyme symptoms, other than chronic fatigue. Lyme Disease has been the new catch-all diagnosis on the Internet, and elsewhere, for quite some time. Unless you have a number of symptoms compatible with LD, I wouldn't pin your hopes on it... or at least, I wouldn't.

It goes without saying, my Lyme Titer test came back negative. I'll probably get a Western Blot test soon, now that I have insurance and can afford any number of blood tests. But really, I am not pinning my hopes on getting a LD diagnosis.
[QUOTE=gjoy;4284166]Thanks very much Willowpoint for your encouragement and the info. Although I don't live in a tick area I have camped in many. I have been saying for a long time the head pressure is an infection, but even when I improved on antibiotics and went backwards again without, I was told to go back to the psychiatrist. I took 8 courses. I think women have more trouble fighting the anxiety tag.

I have had this problem for many years, I believe more than 25 but it has got worse in the last few and I have had the other symptoms, sound and light sensitivity, dropping things, difficulty walking, shortness of breath. When the throbbing starts in my head I often get a pain in my lower back. Have you had any of these probs? I am seeing another doctor tomorrow and I am feeling more encouraged. I won't walk out of his rooms without some action. I have been patient enough.

Thank you

Gjoy[/QUOTE]

I have had almost all the symptoms you are speaking of. shortness of breath, anxiety(panic attacks, 2 visits to the er because i thought i was having a stroke), vertigo symptoms, and the loss of coordination was the most depressing because I cant enjoy playing sports like I once did, hopefully soon I will be able to go back to my active lifestyle. After 2 weeks of antibiotics I can honestly say I havent felt near the anxiety and my vertigo symptoms have virtually disappeared. Please post how your appointment goes.
Hi Benit

I wanted to say to you how the doctors responded to head pressure. They didn't bat an eyelid as if I had said I had a sore toe. It was quite refreshing after other bad experiences. The rheumatologist wants to refer me to a physician and the ENT to a neurologist. You need to find out who the best doctors in your area are and make appointments. It doesn't matter how long you wait if they really are good because they will know how to help or who to send you to. The neurologist is booking for November however he has a registrar who will see me and he comes in for the last 20 minutes. Sounds a good system to me. You can always cancel appointments if you no longer need them.

Hope to hear of some progress soon.

Gjoy





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