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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


i[SIZE="3"][FONT="Century Gothic"]I am hoping someone will be able to help me figure this out. I am 36 years old, mom of 3 daughters and a military spouse. I have been diagnosed with Fibromyalgia at the age of 14. I have had migraines, neck pain, numbness, dizziness, constant nausea, decreasing vision/tunnel vision and the list goes on. I 'accidentally' found an old MRI result (from 2004) in some of my miltary records when were were PCS'ing that stated they found a Chiari I Malformation and recommended further treatment. No one has ever told me anything. I requested to be referred from our Base to a civilian neurologist office. They sent me to one who was a total a** and told me there was nothing he could do & proceeded to walk out of the room. I requested a new referral to a physician from the hospital I work at (I'm a secretary in the ICU) and he saw me on 12/1 and ordered MRI's of my head with and without contrast and my neck with & without contrast. When I showed him the copies of the last MRI result he said it was congenitial and they don't 'treat' a Chiari and the only thing he could do was medicate me for the migraines. I left the office feeling REALLY disappointed, let down, upset, etc. You can get the general idea. I had the MRI done and I just literally got a copy of the head & neck MRI's tonight when I requested copies from medical records. Both the head exams (with & without contrast) state they are within normal limits and the MRI says "right paramedian disc herniation at the C5-C6 level". No mention of the Chiari at all. i'm scheduled to see my neurologist on 1/3. Does this new MRI mean there is no Chiari. On a side note & I don't know if it will make a difference is the original MRI (2004) I got was done & read in a Center for Neurological Sciences office and read by a neurologist. The exams I just had done were done in a 'typical' hospital and read by a radiologist. I don't know if that will make a difference.

In the meantime, I'm positive something is really wrong with me. The dizzy spells and feeling like my head is just foggy and out of it is getting worse and worse each day. It's hard to work, function and I feel like I can't even speak normally anymore. I'm being sent home from work because the pain in my head is totally unbearable. I'm taking Ultram, lyrica and elavil. I also am seeing a pain management doctor who stated he really thinks I need to be referred to a neurosurgeon but I don't believe my neurologist is going to be willing to give me a referral. I've called & left a message trying to get an appointment sooner because things are getting progressively worse but due to the holidays still haven't heard from anyone. I feel totally helpless and don't know where to turn. I think my husband is at his wits end because he doesn't know what else to do to help me. The medicine controls my pain from the fibromyalgia but doesn't come close to touching the head & neck pain that is ALWAYS present. On top of it all I tore my patella tendon in my knee but the orthopedic doctor won't even consider surgery to fix it until my "head issues" (his words) are fixed.

I guess I just don't know where else to turn for help. I found a neurosurgeon at Washington University Hospital in St. Louis (about 20 minutes from where I live) Dr. Chicoine who has an "area of interest" in his profile of Chiari. There is an email address listed and I'm at the point where I am thinking of emailing him for help.

I am just desperate for help and just looking for any advice on what I should do. I've been looking for information all over the internet & now feel like an idiot since the latest MRI shows nothing at all.

Thanks for your help. Kelly
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