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Brain & Nervous System Disorders Message Board


Brain & Nervous System Disorders Board Index


I'm not sure if this is the right board for it, since I don't know what is wrong with me but here we go.

I'm seeing my doctor in a couple of days but I have a feeling he won't understand me/won't take me seriously. I've had bad experiences with doctors who even when they are trying their best to help can't seem to think outside the box.

I've been dealing with chronic hyperventilation syndrome for almost a year, but I only discovered that that's what it was in March, and by that time it was really bad. I found a Buteyko breathing teacher who was able to help and it improved a lot since then, but around a month ago I started getting strange symptoms.
My brain would feel really numb, I couldn't keep still and focus on anything because I would start twitching or shaking. I didn't know what was going on, but now I have a theory. Basically, when I was hyperventilating I would often forcefully try to suppress the breathing, which would create pressure on my head and on the roof of my mouth, but it wouldn't bother me because at least I could concentrate and breathe less. Now, when I try concentrating, all I can feel is the pressure on the roof of my mouth, so I'm thinking maybe I strained some muscles so much that even with the slightest effort of keeping still and keeping composure of my head, the muscles feel overworked hence the pressure on the roof of my mouth. I don't know if that's possible.

Now, around the same time that I started getting those symptoms I also started getting off Tegretol that I was taking for epilepsy. I had my neurologist's permission and all, I haven't had any seizures since my first one over 5 years ago so I thought it would be all good. Well, I later thought that maybe those symptoms were related to getting off the meds, but my neurologist said it was unlikely. Anyway I decided to get back on them, just in case, but the only thing they helped with were my sleeping problems which I forgot to mention.

Right now the pressure on the roof of my mouth feels really strong and is constant. I have trouble opening my mouth wide, chewing, speaking, smiling. A thing that might be important is that for over a month I've been chewing gum every day (it helped me with the breathing) so maybe that contributed. I stopped two days ago to see if it changes anything. The symptoms sound a bit like TMD, but I'm pretty sure it's not that because I don't have any pain and my jaw doesn't click or make any sounds. The pressure is relieved a bit when I'm pressing on the top of my head with my hand or when I keep my head down. Since the pressure started increasing (a few days ago) I feel less twitchy but also more numb in the head.

I've been going crazy trying to figure out what is wrong with me so I hope someone would be able to help...





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