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Cancer: Breast Message Board


Cancer: Breast Board Index


Hello,

I've been on Femara for the last two months and have been experiencing severe dizziness. Not sure if it is from the Femara as I started taking other meds at the same time. If anyone has the same problem please let me know and also if this will ease up after a while on Femara. Thanks for your responses, and have a nice day,

Elga
Hi Elga, I take arimidex, and I did have some dizziness at first..but not that bad..you should let your onc. know about that..maybe it is one of your other meds..
take care,
cj.
Good morning! I take Femara...no dizziness...thank heavens. It makes me so sleepy and sometimes, when I do too much, my bones ache. I started with Arimidex, but it made me crazy....I was a nervous wreck. Being dizzy is no fun at all,,,I have been there. Call your dr. I have found that all mine are wonderful.
Hi CJAMMOM and Jiezz,

I also was on Arimidex but the leg pains in the evening woke me up so had to switch to Femera, legs pain are now tolerable.

About your sleepeness Jiezz did you try taking Femara at night. For me it's the opposite it has given me problem sleeping.

Maybe my dizziness could come from hernias I have on some discs in the neck. After chemo I did not have them anymore. But at the same time I started Femara my neck pains started along with dizziness. Just a coincidence I guess,
thanks and nice reading your posts,

Elga
hi elga,I have switched from aromasin to arimidex...and for the last few nights, the leg pain is awful..can you explain what yours felt like?
cj.
hello cjammom,

Well they where not cramps ( tamoxifen gives them), they happened late at night like 3 or 4 am, maybe because the tylenol I took before going to bed was weening off, they felt like strong stabbing in the lower part of the legs, from the knees to the anckles. They woke me up and I couldn't go back to sleep. Femara seems to do the same thing but not as strongly, very mild in comparison, hope you resolve your problem,

Elga
WOW Elga, thats exactly what I have...from the knee to the ankle even my feet hurt!
Sometimes I wonder if this is all worth it!! I sure hope my body can adjust once I am off this med!
wishing you well too,
cj.
Well cjmmom for me one month and 1/2 or Arimidex was all I could take on account of those leg pains. Can I ask you why you stopped Aromasin?

With Femara, now on my 7th week, leg pains are tolerable, just noticable, nothing like Arimidex, hope that does not change. Maybe you could switch to Femara and see if like me they go away. Have a nice day,

Elga
Guess what? I stopped aromasin because of.....leg pains!!
I have been on arimidex for about 2months and the last three days...my legs are really hurting me again, especially in the evening..Can I ask you, what time of the day you take your femara? I was taking the aromasin in the evening but then the insomnia was really bad, so when I switched I have been taking arimidex in the morning, I was doing ok with that until the leg pains started again..thinking now I should go back to the evenings..
I just dont know what to do anymore..I really think that I will just have to learn to live with it..do you exercise? I go to the gym 6days a week, I think if I didnt I would feel as though I was 100 yrs old!!
hope you have a good night!
cj.
ooops I wanted to ask you how the dizziness was now?
I have had a few dizzy spells too, one the other day..I couldnt focus my eyes at all, everything was spinning..but it doesnt happen that often..
Hope yours has gotten better!
cj.
Hello again cjammom

I tried taking Arimidex at night and in the morning, nothing changed, I was hoping maybe if I cannot deal with the dizzyness from Femara (yes it's still there) I would try Aromasin, now I'm scared that one will also give me leg pains. This is so hard, I envy the ones that don't have to deal with all these secondary effects.

Wish you well and that the leg pains won't be too strong so you can continue your treatment

Elga
Sorry just realized you where asking at what time I was taking the Femara, I was taking it in the morning but since a few days switched and am taking it at night. Did not change a thing either.....

Elga
Hi Elga, seems we have alot in common with these side effects. My sister in law has taken femara now for 7yrs and no problems at all!! I cant understand, why they seem to bother me so much..For me the aromasins side effects were worse,so far anyway, than arimidex. From what I understand aromasin is the only one that acts steroidal..look it up, I think that may be why my body couldnt tolerate it. I wont even bother to try the femara..I think I would probably have the same results..I believe that the pain is accumulative..for me seems to get worse the longer I am on it..at first I thought that the arimidex would be side effect free for me...until after a few weeks, then I noticed slowly the pains starting to come back.
I have forgotten if I asked you this already but, do you exercise at all? I think that because I do, it is the only reason that I can still function at all..as it is now if I sit too long I get so stiff...somedays I feel like I am a very old lady!!
I too am very envious of those who dont have to deal with this pain...my legs, my feet, somewhat low back, and terrible pain in the wrists..very stiff fingers..thats me!!
hope to hear more from you...comparing notes!!
I love Canada!! went there many times as a child,
gentle hugs to you,
cj.
Hello again,

Unfortunatly yes we are on the same boat, I am also afraid of Aromasin because of the steroial effect, I cannot tolerate meds very well, so I'll stick it out with Femara. My experience was worst with Arimidex, the sore legs unbarable, I'll be switching my antidepressant at the end of the month because it might not help me it could be the reason for my dizyness.

Hope we can both find a solution, have you thought about going to a pain clinic, I will be soon they could find a med that could help you with the side effects, from reading posts on another board many have found a solution this way.

Yes I try to walk 3 times a week, should do more but lack of energy, have a nice day, and by the way I love New York to, sounds like the well know phrase, lol, good luck to you

Elga
Hi Elga, I go to a rheumatologist because my onc. does not believe that there are any side effects from these drugs (Yeah right)!!, but the rheumie says that the pains sound like fibromyalgia..or pains that are mimicking that disorder..anyway, she has me on elivil, which is an antidepressant that they also use for the pains of fibro...and it does help some, when I ran out of it a few weeks ago, I realized then how bad these pains really are..so I quickly got a hold of my pharmacy and they filled a new prescription..so maybe that one would work on you too..its worth a try especially since you are going to switch anyway!
The reason that I dont seek out anymore help is because I just dont want to add any more meds!! all they seem to want to do is add something else..that may or may not help..and then what....more side effects!!! I am really so tired of all this!!
I wish you well too!
I love N.Y. too but have been here all of my life, and its getting too crowded here!! I just need more peace, quiet and space!!
Keep in touch!!
cj.
Thanks for you advice, I had heard of Elavil, actually my mother use to take it for her depression, it is on my list of questions for my next appointement.

Have a nice evening, hope it's not to hot in New York, here it's getting pretty warm

Elga
Hi Elga, yes elavil might just help you with the leg pain..I do still have it, but as I said it seems better on this drug.
This week it is supposed to be in the upper 70's not bad!! and how is it in Quebec? we have just about the same temperatures, right?
Let me know what your doc says about giving the elavil a try!
Nice talking with you,
cj.
WOW I should of come to this heathboard along time ago!

I tried Arimidex for a DAY! I was so tired and achy, I could barely move around.. I thought i was going goofy! it was almost ..almost worse than chemo. I tried going back on Tamoxfin... and quit that too. Im slight estrogen positive..had my ovaries removed due to the bracII gene. So im not sure how big a risk it is to not take it. My dr. thinks i should take it..I just dont know. I really dont want to live like that...tired and crummy every day but what are my options right??
Hello again,
Cjammom
Yes we have about the same temperature, here around 70's today, although I think we have colder winters. Tomorrow will see doc ans ask about Elavil, and let you know.

Jillery,

Finnally the diziness left. Now I have to find a solution for the insomnia only. I would search more on boards before deciding to quit altogether, may people find solutions for their pains and I don't wan't to interfere with your decisions, but from what I read we should not stay withouth protection, just my opinion, I really don't know your diagnostic, good luck
Elga
Hi Jillery and Elga!
Jill- I too am er+ only by 5%..its a tough call..whether to take the AIs or not..I was on aromasin..stopped because the pain was too bad, I take arimidex now which I seem to be handling better..oh, the pain is still there, only not as bad..You should speak to your onc. about trying one of the others, maybe one will not have such bad effects as the arimidex..
I have learned so much from breast cancer boards..it is nice to know that we are not alone..there is always another "sister" out there that has been through what we are going through!!, and everyone I have met is so very kind and generous..sharing their experiences!!

Elga..let me know if you get to try the elavil..it does seem to help the pain somewhat, I continue to use it..afraid to have the leg pain come back as bad as it was before..lots of luck with it..

hugs to you both
cj.
well I finally broke down and started the Tamoxifen. I'm fine so far :)

Hope all is well with everyone. :)
Hi Jillery, Ive been away on vacation and have just found your post..how are you making out on the tamoxifen? Out of all the meds that I have been on, I seemed to have the least side effects on the tamoxifen. Hope its all working out for you!!
hugs,
cj.





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