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Cerebral Palsy Board Index
Pages: 1Showing 1 - 16 of 16 for 16 year advice. (0.046 seconds)


... I've walked without crutches and afos since I was 9. When I was 15 PT was discontinued because everyone said there would be no more improvement. When I was 16 I could walk about about that (1-2 mi) taking a break half way through. Now I'm soon to be 26 and I can walk about a mile but I'm done for the day after that. IMO, there is a connection between exercise and ability. ... (7 replies)
... To be honest, your message here really depresses me. We work so hard with our boy that has CP diplegia, and I feel like maybe we shouldn't. If the outcome is like yours, then why should we work so hard if it will hurt his joints and he'll get arthritis anyway. It sucks that my child has CP. I've had a bad day, and I see him struggling, and I hate it. I needed to vent.... (7 replies)
... How long has your son been using the crutches? My boy used the walker until he was about 3 and a half. My son has cp dyplegia too. (7 replies)

... I am almost 30, and I have a mild case of CP. I can walk without crutches. My advice for your son is to do stretching exercises regularly. I did not do mine as much as I should have when I was his age. ... (7 replies)
... Thanks for any advice you can give. ... (7 replies)
... I'm a 16 year old girl who is going to volunteer this summer at a local stable that offers therapy to children with cerebral palsy through the use of horses. ... (2 replies)
... od. Her grand mal seizures are pretty well controlled so there isn't an issue of pain as far as seizures go. We give her pamprin for pms symptoms. I have a son a year and a half younger. He was already born before my daughter was actually diagnosed and he is just fine. ... (8 replies)
Surgury
May 26, 2004
... I'm not at all familiar with that procedure so I won't pretend to give you advice. My son, however, had botox therapy several times and it worked well until he hit pre-adolescence. Then the botox couldn't really keep pace with his growth spurts. He recently had his heel cord lengthened surgically. Though he's still in a cast, it looks very promising. For the first time in... (9 replies)
... I'm glad that you wrote back. You are right, CP isn't the end of the world. I wished that I could switch places with my child. I really do. I know though(therapists always tell me this), as long as you do daily stretching, and exercise, and keep on a healthy weight, one can conquer CP. It is what it is, and one has to put extra effort into walking, climbing, lifting... (7 replies)
... I'm sorry to have sounded like a regular Debbie Downer. CP isn't the end of the world, and I'm sure not everyone's experiences will be what I mentioned. * Instructions for locating blog, and blog information, removed by hb-mod, moderator * (7 replies)
... My son used a walker until second grade and has been on crutches since then. He had AFO foot braces until he was 14, when he had surgery to lengthen his hamstrings. After that surgery his heels were flat on the ground and he didn't need AFOs anymore. (7 replies)
Surgury
May 25, 2004
... and I was wondering if anyone had either one done... any advice would help. ... (9 replies)
... ow quickly you will get this, but when I read your email I felt like I was looking into a mirror. I have mild CP too in all four limbs, I'm 37 years old and last year I had to get my neck fused with 16 screws from top to bottom which meant taking 6 months of work. ... (12 replies)
... Hi. Newbie, so pls excuse lack of correct terms, etc.... (btw - Im in the UK) My little boy is 2yo in a couple of weeks (16/4/06). He was diagnosed with mild-cp last year (may). It has taken a while to get our heads round this but support has been great and he is responding really well to physio. However, his heels are quite tight and we arent sure if AFO's will be... (8 replies)
... kind, smart and able to see the whole kid. He did our son's Botox injections and had good advice on when he should have his hamstrings lengthened, etc. ... (1 replies)
... my knees were so bad last year i couldnt even walk on my left leg, and i did all the workouts the trainer at my school showed me and the pain really eased up. ... (7 replies)




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