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Cerebral Palsy Message Board


Cerebral Palsy Board Index


[COLOR=Indigo][FONT=Comic Sans MS][SIZE=3]Hi Ali!! Firstly, welcome :wave:

Secondly, sure... doesn't everyone have good days and bad? :) I don't know how much is always to blame on the fact that I have cerebral palsy and how much is because I am a human who has the same day to day stresses as everyone else.

I have mixed tone. Some areas I have hypertonia, and some I have hypotonia. Generally, my legs & feet are always tight & my trunk area is floppy.

I find temperature affect my tone. Cold (and even though I live in Michigan [the current outdoor temp. is 16 F] by cold, I mean air temp. below 70 F & water temp. below 90 F) makes me stiff and spastic. I have greater tendency to toe walk (even though I generally walk heel-toe) and my arms stiffen & contract slightly, when it is colder.

I also know that when I'm sick (with the flu or a cold) I have even less tone in my trunk and I don't hold my head as high.

Those are the changes I feel, I can directly attribute to the fact that I have CP (however, my mother & sister whom have arthritis also say the weather affects them -- a drop in barometer can cause a great deal of pain I too suffer from this suddden pain and assume the same thing and that is inherrited arthritis rather then, CP.)

Other then that; I have days that I "over do it" and feel like I'll never get out of bed again but that's the kind of thing I think everyone has and would be your average "bad" day, it just takes less for me to "over do it" then your average AB (able bodied person.)

I hope I've helped you find the answers you were looking for. Hope to see you posting more in the future!

Take care,
~michelle[/COLOR][/SIZE][/FONT]
[QUOTE]Thanks for the info michelle. I'm trying to figure out if my son could have CP. He's only 3 months old but some things are just strange with him. Do you know how old you were when you were diagnosed[/QUOTE]

[FONT=Comic Sans MS][SIZE=3][COLOR=Indigo]No problem :) You're son is only 3 months? Wow... I was dx'd at 18 months, and that was after a very tramatic, early birth.[/COLOR][/SIZE][/FONT]

[QUOTE]He has some strange movements that are not normal and he's always kind of wiggling around, more than is normal for this age. And he has days where he is veyr stiff and its hard to bend his legs, put him in a sitting position etc...and then other days where he's floppy and seems to have no muscle tone.[/QUOTE]

[FONT=Comic Sans MS][SIZE=3][COLOR=Indigo]Have you tried searching for general tone problems... hypertonia (high tone), hypotonia (low tone)? I'm a part of another message board and there are lots of kiddos with general tone problems that have diagnosis' other then CP that just have the specific syptoms of high & low tone. The drastic difference in tone doesn't sound like CP to me but I am in no way autherized to make such a statment with any vailidity.[/COLOR][/SIZE][/FONT]

[quote]I am planning to ask his doctor in 2 weeks about this but I am just looking for info.[/quote]

[FONT=Comic Sans MS][SIZE=3][COLOR=Indigo]Well, don't go freaking yourself out now ;) The Internet is full of information and some of it can be pretty misleading at times (but a lot of it is very acurate and trustworthy.) Check with the doctor as Jill said. Those with CP usually have delays in reaching their milestones and some don't get dx'd until 2 or 3 and sometimes even later.

The biggest reason for my dx at 18 mo was that there was evidence of issues very early on with the premature birth and problems at the time. I've also heard of stories where parents were told their kids had cerebral palsy and as they grew up and further testing was done it was discovered that all the kids didn't have CP but a genetic neurological condition![/COLOR][/SIZE][/FONT]

[QUOTE]Do you have any involuntary movement or just the tone issues? Thanks :)[/QUOTE]

[FONT=Comic Sans MS][SIZE=3][COLOR=Indigo]Urmm... no "true" involuntary movemet (like athetoid CP). I do on occations have spasms that can sometimes cause jerking; a startle refex and intention tremor. Gross & fine motor problems, too. Other then that the only other thing that gives me problems is ataxia affects my balance.

You're welcome, glad I could help. Keep us posted on what the doc says and always remember there is nothing wrong with 2nd, 3rd or 9th opinions! If you feel in your Mommy Heart something is strange don't stop looking until you're satisfied.

Take care,
~michelle[/COLOR][/SIZE][/FONT]





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