It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cerebral Palsy Message Board


Cerebral Palsy Board Index


Hi, this is my first time posting. I am the mother of 3 year old (almost) twin girls, born at 27 weeks. They spent 9 weeks in the NICU. One had a grade 3 bleed and has spastic diplegia. She was shunted at 4 weeks and we pretty much expected that she would have CP although it wasn't officially diagnosed until she was about 6 months old. Her sister is actually more physically active than most of her peers. It's hard to see one twin without disabilities and imagine what could have been. Our daughter with CP has been going to physical therapy since she was about 6 months old, twice a month. She started rolling at about 14 months of age and crawling right before her 2nd birthday. She is now walking with a walker (around the house or up and down the sidewalk) but her main mode of transportation is still crawling. She doesn't have any problem with her hands or speech, yet she seems to be pretty far behind in her walking. We are now trying to prepare ourselves for the eventuality that she may never walk unassisted and may need a wheelchair. This is hard for us coming from a family who runs marathons, hikes and bikes. I have not found a support group, in Portland, Oregon but am very interested in the postings of the adults with CP on this site. It gives me hope that our daughter will lead a fulfilling and happy life despite her physical disabilities. I also wanted to add that physical therapy has been great and the twin without disabilities looks forward to it as well. We call it play with a purpose.
[QUOTE=2winmom]Hi, this is my first time posting. I am the mother of 3 year old (almost) twin girls, born at 27 weeks. They spent 9 weeks in the NICU. One had a grade 3 bleed and has spastic diplegia. She was shunted at 4 weeks and we pretty much expected that she would have CP although it wasn't officially diagnosed until she was about 6 months old. Her sister is actually more physically active than most of her peers. It's hard to see one twin without disabilities and imagine what could have been. Our daughter with CP has been going to physical therapy since she was about 6 months old, twice a month. She started rolling at about 14 months of age and crawling right before her 2nd birthday. She is now walking with a walker (around the house or up and down the sidewalk) but her main mode of transportation is still crawling. She doesn't have any problem with her hands or speech, yet she seems to be pretty far behind in her walking. We are now trying to prepare ourselves for the eventuality that she may never walk unassisted and may need a wheelchair. This is hard for us coming from a family who runs marathons, hikes and bikes. I have not found a support group, in Portland, Oregon but am very interested in the postings of the adults with CP on this site. It gives me hope that our daughter will lead a fulfilling and happy life despite her physical disabilities. I also wanted to add that physical therapy has been great and the twin without disabilities looks forward to it as well. We call it play with a purpose.[/QUOTE]


I'm sure it has to be hard for you to have one "normal" girl and a disabled...I have an older "normal" sister, and my parents have never treated me any differently. I think that as long as you treat your daughter like a regular person and try to help her all the ways you can she will be fine. I cannot walk without a walker, but really, who cares?! She can definately still lead a wonderful life...everyone has some sort of physical problem, things like CP are just a little more obvious! :) I also think it is good that her twin does the therapy also.

One thing I wish I had done when I was younger was meet other people with disabilites, whether in a camp or elsewhere... growing up with a "normal" sister and "normal" classmates, as I got older this caused (causes?) me to be somewhat insecure about being "different"...so I think it might help your daughter to learn to accept her differences at a young age by meeting others similar to her...teach her that she is the same as her sister in a lot of ways, but also a little different--but this is not a bad thing! Anyways just a suggestion. :)





All times are GMT -7. The time now is 12:56 AM.





© 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!