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Cerebral Palsy Message Board


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Hey Lastramy
So much to respond to here! Wow!
First, thanks for the anniversary wishes. It is not the best of weeks for how things turned out, but we are determined to make the most of it. I even got dressed up for work to celebrate the day! Definitely scaled back plans!

Not that he really needed to or that I wanted him to, but my husband is getting a first hand look at what it means to be laid up. His is much milder and he can bear weight, but it is pain and inconvenience nonetheless. For him, the added burden is having to get to work and grad school while trying to recover. He has a midterm Monday and had to miss class this week. UNREAL!

The baclofen -- did your doc say the pill or pump had nasty side effects? And what are those? My ortho never brought this up before; his fellow happened to mention it. I was completely comatose with the anesthetics and valium/vicodin, etc. and the anti-spasticity meds are too sedating to reap the benefits. Hard to assess at this time how mild my case is. It is hard to walk across our apt now without my calf cramping and massages on the calf/foot hurt. I asked my ortho last appt if I have nerve problems and he said not.... Just not sure why my spasticity is spiraling out of control.

As for massages, you are right on with the pain. In fact, last December, I went with a friend to a spa for what I thought would be a relaxing day of treatment. My husband and I had just done lots of x-country skiing and I was tight and sore. Well, the lady kneading me like dough and I was screaming. I was gripping the bench til my knuckles turned stark white. She noted how tight I was.....and while it felt like kneading to me, she probably wasn't applying as much pressure as she might normally. Needless to say, I've not run out to many massages since! My hubby is great!

I spoke to my ob/gyn a few weeks back during an appt for other issues and mentioned my concern of the painful hips during pregnancy. At that time, they were very very painful and I could not imagine the weight of a fetus bearing down. She admitted that there was no way of telling how I'd fare but that there is a good chance the last two months could be tough. She also mentioned a c-section if I could not hold my hip flexors in a contracted posture during delivery. Not sure if I'd want a c-section...another surgery!

My husband is amazing and has been 1000% with me on this. I make the daily point to myself to not let this consume us. Try to keep a bit of humor about it all. It definitely has that potential. We are being tested and I figured that maybe if we get our health issues out of the way when we are young, we'll sail through the golden years!

Thanks for your continued support, girlfriend. I am here for you.

Prisc1125

PS I am trying to fight the fight on getting info. So far, not much luck. The case is pretty complex and if my ortho is taking a month to figure this out, there is more going on. I am still thinking that the gait test could reveal something; that perhaps the FDL relengthening and retraction is only part of another problem w. my calf muscles.


Hey Lastramy
So much to respond to here! Wow!
First, thanks for the anniversary wishes. It is not the best of weeks for how things turned out, but we are determined to make the most of it. I even got dressed up for work to celebrate the day! Definitely scaled back plans!

Not that he really needed to or that I wanted him to, but my husband is getting a first hand look at what it means to be laid up. His is much milder and he can bear weight, but it is pain and inconvenience nonetheless. For him, the added burden is having to get to work and grad school while trying to recover. He has a midterm Monday and had to miss class this week. UNREAL!

The baclofen -- did your doc say the pill or pump had nasty side effects? And what are those? My ortho never brought this up before; his fellow happened to mention it. I was completely comatose with the anesthetics and valium/vicodin, etc. and the anti-spasticity meds are too sedating to reap the benefits. Hard to assess at this time how mild my case is. It is hard to walk across our apt now without my calf cramping and massages on the calf/foot hurt. I asked my ortho last appt if I have nerve problems and he said not.... Just not sure why my spasticity is spiraling out of control.

As for massages, you are right on with the pain. In fact, last December, I went with a friend to a spa for what I thought would be a relaxing day of treatment. My husband and I had just done lots of x-country skiing and I was tight and sore. Well, the lady kneading me like dough and I was screaming. I was gripping the bench til my knuckles turned stark white. She noted how tight I was.....and while it felt like kneading to me, she probably wasn't applying as much pressure as she might normally. Needless to say, I've not run out to many massages since! My hubby is great!

I spoke to my ob/gyn a few weeks back during an appt for other issues and mentioned my concern of the painful hips during pregnancy. At that time, they were very very painful and I could not imagine the weight of a fetus bearing down. She admitted that there was no way of telling how I'd fare but that there is a good chance the last two months could be tough. She also mentioned a c-section if I could not hold my hip flexors in a contracted posture during delivery. Not sure if I'd want a c-section...another surgery!

My husband is amazing and has been 1000% with me on this. I make the daily point to myself to not let this consume us. Try to keep a bit of humor about it all. It definitely has that potential. We are being tested and I figured that maybe if we get our health issues out of the way when we are young, we'll sail through the golden years!

Thanks for your continued support, girlfriend. I am here for you.

Prisc1125

PS I am trying to fight the fight on getting info. So far, not much luck. The case is pretty complex and if my ortho is taking a month to figure this out, there is more going on. I am still thinking that the gait test could reveal something; that perhaps the FDL relengthening and retraction is only part of another problem w. my calf muscles.





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