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Cerebral Palsy Message Board

Cerebral Palsy Board Index

Pain and cp
Sep 1, 2005
Hi my name is Fuchsia I am 23 and have spastic diplegic cerebral palsy. In the last few years I have been getting increasing pain in my shoulders, back, hips, knees, and feet. My Physio said there wasn't much she could do and sent me to see several orthotists who told me splints wouldn't help with the pain and that I would probably need surgery. I have since been to two orthopedic surgeons One told me that all I need was splints and physio, he made me feel like I was making a fuss and was wasting his time. The other was friendly but said I needed more physio and possibly botox. I find it all so frustrating as my physio and othrotists never seem to agree with the surgeons and no one can make up their mind what should happen next and in the mean time the pain is just getting worse. I feel that now I am an adult no one wants anything to do with me. Has any one had similar experiences?

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