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Cerebral Palsy Board Index
Pages: 1 Showing 1 - 20 of 27 for seizures tone. (0.008 seconds)


... Hi Meggie, Samantha has had seizures from birth and has tried many medications. Since she turned 7 her seizures have changed from small seizures to big seizures lasting half an hour and January this year she was fitting on and off for 4 hours. I was wondering if she would survive it. She spent a few days in hospital. ... (8 replies)
... levi has seizures lasting usually 10mins but has had 2 that have been 2 hrs long. very scary to see ur child go through this. levi has his seizures in his sleep about 10mins after falling asleep his hand will twitch them his mouth. we have to give him medazolam to stop them. ... (8 replies)
... i have a son 2 and a half with spastic quad and epilepsy. it is hard levi my son has only just been diagnose this yr in april when he had his first seizure, his seizures are long and often dont stop unless medicated at the time he is on 3 medications at the moment and the seizures are still happening. ... (8 replies)

... as well. Would like to hear from anyone who has a child with similar experiences that could tell me how they cope. She has very high tone so very hard to manage at times. ... (8 replies)
Trouble sleeping
Apr 1, 2007
... more relaxed and settled and risk the chance of seizures coming back or not take the chance i would have a really good talk to his doctor if he takes it and the seizures come back has he said if they will stay or will they go again if u took him off it? ... (7 replies)
... My one year old daughter has high tone in all four limbs but her arms are MUCH worse than her legs. ... (2 replies)
... t meds ic can build up in your liver if not watched...although we've had no probs at all. the reason it needs to be increased slowly is it tends to drop the high tone which most people with cp use to move......so it will initially make you feel somewhat floppy...... ... (11 replies)
... Hi: We are "waiting for a diagnosis" too, so I know how it is. We hit that same issue, as our preemie even became too big (and strong) too swaddle. Here is an idea that coulkd work for at least another month or 2 (if you don't live in a warm place). On top of all the soothing things you regularly do: night-time bottle, low-lights, etc: try changing baby into one of those... (3 replies)
... yed, the best we could hope for was a mentality of a 5yr old. As you can imagine we were crushed. as time went on we had another eeg which showed he was having seizures and he had pretty bad acid reflux from day one. ... (10 replies)
... but the link to seizures is where I am confused. Alex is alredy getting PT 1x per week for "tone issues" through early intervention, on top of what we do with him the rest of the week. ... (11 replies)
... What exactly are AFO's ? So far, no one has mentioned anything about them. I've noticed when my guy doesn't want anymore of something he also turns his head away. Right now he is sick with a respiratory virus, so he only wants to be held. Hoping to make more progress with his hands when he gets better. (17 replies)
... Unfortunately now she's sick with an ear infection. That causes a lot of worry since she's prone to seizures whenever she has an infection. Seems to always be something! ... (17 replies)
... she has spastic quadriplegia cerebral palsy with mixed tone, a baclofen pump, and now has Grand Mal seizures every so often. ... (7 replies)
... WOW that's a long time to wait. Why so long? I'm sure it won't take that long. When Levi is around 9-10 you pretty much know how severe his disability is. If he hasn't achieved certain things by then he probably never will. The resources are ok. We used to live in Melbourne and we found schools were much better than in Sydney. Samantha is on a waiting list to go to a... (8 replies)
... our lawyer told us that our case wont b settled till levi is 16 or over which is pretty upsetting because there is so much that he need that we cant afford. i hope you get the out come u are looking for. how helpfull are the respourses you have in your area(ot physio speech??) i live in a fairly small town and we have been without a physio for almost a year so i find... (8 replies)
... You can tell I'm a newbie! (8 replies)
... we also r taking the hospital to court so seeing every one can read this i think i better not talk about it either. (8 replies)
... Samantha was a healthy baby until something went terribly wrong at the birth. We are suing the hospital and we have been waiting 8.5 years and we finally have a date for mediation. I'm very scared that they won't admit to being liable but I can only hope a good outcome will happen. Unfortunately because we are suing I signed a document saying I wouldn't talk to anyone about... (8 replies)
Trouble sleeping
Apr 1, 2007
... Hi there, I am interested in the baclofen as we have been offered a trial of this as have been told it can take down the extremely high tone my son has. He also used to have big sleep problems but only now wakes really early each morning no matter what time he goes to bed. ... (7 replies)
... nephew is still not potty trained. He's mixed tone quad with typical intelligence and his speech is involved. He's on 1250 mg of Depakote for seizures and ever since he started the AED he really regressed with the potty training and speech. ... (2 replies)


Associated Tags: clean mri, preeclampsia pregnancy induced hypertension, spastic quadriplegia cp, trach mickey button

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