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Pages: 1Showing 1 - 11 of 11 for selective dorsal rhizotomy op. (0.007 seconds)

... Kaitlynsmom - Maggie (13Y) is now 2 months post-op. She is shunted for hydrocephlus. 4 days post-op she woke up with a terrible migraine and began vomiting. CT scan and X-rays showed that her shunt was not working. It turned out that she had outgrown the shunt and it became separated in her neck. It had nothing to do with the SDR and it was actually good timing to have it... (46 replies)
... Thanks Kaitlyn's Mom! Noah is doing well. He has no pain that we know of due to the surgery. In fact, he seems happier than before. It has been over 2 months since the surgery and he walks pretty well - much more upright. His right leg is much straighter. His left is rotated in. We notice that now that he is straighter. Also, his balance is off some, and he falls... (46 replies)
... bsjones - Thanks for the info about PT. I'm sure we'll figure something out. I am wondering how Noah is doing. Is he making some progress now that he's a few months post-op? Has he had any residual pain or complications? Hope all is well! (46 replies)

... Hi All! twinmomtam - It's nice to hear from you! It sounds like you are in the waiting pattern to see when Tony will be ready for the SDR. Is Dr. Park making the determination on the right timing, or another doctor? I think the waiting is the hardest part once you've made the decision to move forward with the surgery! Kaitlyn is doing well. She is now 2 years and 4... (46 replies)
... bsjones - That is great news! Good for Noah! How is he feeling now that more time has passed? What is his post-op PT shedule? I'm so glad to hear that he is making progress so quickly! twimmomtam - I'll certainly keep you posted on anything I hear about Dr. Park. I guess he'll be staying put for now, so I think we are going to get our application together in the next... (46 replies)
... Oh, Gosh, I wish i told you before about stool softener. We started giving it to our son on day 2 post op. Sorry Noah had problems in that department. BUT i am sure its just a minor thing. The MAIN thing is that surgery is behind you!!!! hugs (46 replies)
... I cant answer that question. One thing i know is that Dr Park operates on adults. I think your best bet is to call St Louis, the person you want to talk to is Joan, she is the main PT there. She will answer all your questions. Here is the website I talked to one girl who is abou 28 now and had it done... (7 replies)
... op abilities. Since he could already walk using a Kaye walker, we could expect he'd probably be able to eventually walk alone following the selective dorsal rhizotomy surgery. ... (23 replies)
New to the forum,
Dec 13, 2010
... nd in april this year she had an aductor release. the botox though has stopped working now and the docs at Royal children Hospital here in Oz are talking about a Selective Dorsal Rhizotomy. As of last friday we have been short listed for the procedure and heading to RCH on the 14th to discuss options. ... (4 replies)
... Kosair Children's hospital in Louisville, KY did the selective dorsal rhizotomy on him, followed by a year of intense PT. ... (23 replies)
... of too much "tone". He got around well using a small Kaye posture walker. I carried him often. When he was 5 years old, he had his first surgical procedure, a selective dorsal rhizotomy, done in Louisville, KY at Kosair Children's Hospital in 1989. ... (10 replies)

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