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High Cholesterol Message Board


High Cholesterol Board Index


donsabi....My husband was on Lipitor for almost 7 yrs. Around the 2nd yr. he developed severe muscle pains and was constantly tired, but we never associated it with the Lipitor, and of course the dr. at that time said NO way was it the statin. All that poor man did was eat, sleep and work, as his pain hindered him from doing much else. This went on for yrs., and at the time we had no computer so I wasn't able to research anything, plus we just took the drs. word for it...."Age related". ...YEAH, RIGHT!

Finally in 2000 I was put on Lipitor and after 3 months started with GI problems and muscle weakness, pains and aches, etc. At that time I bought a computer and did some research and found so many folks with the same problem. I took myself off the statins and also my husband. It took them 8 months to get my GI problems under control, and about 9 to get rid of the lousy aches and pains. When hubby had a good long talk with his cardio man about his problems, the dr. told him he thought he was getting PN and it definitely could be caused from the long use of statins. I wish I knew way back then what I know now, as now hubby has PN quite badly and is on meds. for it. Since being off statins his muscle pains and aches have become better, but unfortuneately the PN is here to stay. Many folks we know have stopped taking these drugs due to badside effects, and yes, there are some who take them with little problems, but they are the MINORITY. Hopefully your PN will go away, as U weren't on them very long. Try taking some Co Q10, as statins deplete the body of Co Q10. It isn't cheap, but it sure has helped alot of folks, and drs. don't tell U when U are on a statin U should be taking it. Many folks here take it and do mighty good.

Hopefully your PN will deminish with time, it is NOT a pleasant thing to have to deal with. Best of luck..... :wave:
[QUOTE=gardeninggal]We can argue back and forth about how many people take statins with no problems and then how many have severe debilities. Here is what worries me, I have read so many posts here where a person was on a statin for many years before they had trouble. They are thrilled with the results, lower cholesterol, higher HDL and the doctor is patting you on the back then disaster stricks. Now why after all those years does it happen, does a statin build up in your system until it overwhelms it? I worry about my husband who is on Lipitor and seems to be okay, but for how long. I am concerned!!!! I was on a statin (lipitor) for over 3 years and switched to another and wham it hit me. I would be afraid to try another because I am just now beginning to feel good again and I don't want to tempt fate again. :confused:[/QUOTE]

gardeninggal...I know a few folks on statins that seem to do fine, but the majority of folks I know have bad side effects, some get them early on, some don't. All I know is hubby started with muscle weakness, pains and aches about a year after starting, but they kept telling him it was arthritis. At that time we knew of noone taking them so had no clue it could be the pills. I was put on them in Apr. of 2000 and by the 3rd month I was a wreck, mostly GI problems. I stopped taking them for 2 months, then they put me back on a new one..BAYCOL, oh joy, then the fun began. It was shortly after that we got a computer and I started hunting around for affects of statins and the rest is history. Like U, I will not go back on them and neither will hubby.

My girlfriend takes them and keeps complaining of PN, but she will not go off of them as she is afraid her dr. will yell. She is not diabetic, she had a cath done, no blockage, but her dr. wants her numbers below 200, so she has been on 80 mgs. of Lipitor for a couple of years. I just keep my mouth shut, as it is her decision to take them. Another friend emailed me that her husband was getting muscle pains and also VERY moody and forgetfull and asked if it could be the statins. I sent her a few sites to look up the side effects and she showed them to him and he tossed them. Luckily he was only on for about 7 months and is feeling alot better. Like U said, some folks do ok, other's do not, I haven't got the answer as to why, just know we here will not take them. Like they say, to his/her own choice. Hope your husband is one of the lucky ones..... :)
[QUOTE=ZOEB]Hi JJ
Can you tell me what kind of aches and pains you were talking about? Because I am on statins and I've been getting these strange chest pains.. almost like gas pains but not quite.. muscle pains I think..[/QUOTE]

Hi Zoeb....When I was on Lipitor, I got mostly stomach problems, like excess gas, diarrhea and lack of appetite. When on Baycol, it was arms, legs and lower back pains, with horrid fatique. I was only on statins for about 6 months, and got disgusted and tossed em.

Hubby was only on Lipitor, and he had the muscle aches, arms and legs, and balls of his feet and alot of fatique. He was on it for 7 yrs. and now has PN of the legs and feet which is spreading to his hands. Only way I can describe it is he has numbness, plus pins and needles and throbing. At present he has lil feeling in his feet, as he can step on something and not even know it, that is why he must have shoes or slippers on at all times, cause if he steps on anything sharp and cuts himself, he will never know till he sees blood.

Don't know what U are on, but if the pains still bother you, ask your dr. if U can go off the meds. to see if it stops. Statins act very differently on folks, so what might bother me, won't bother you and vice versa. Many folks take them with lil discomfort and other's suffer like crazy, so it is a trial and error thing with each of us.

Best of luck, and hope things go well for you..... :wave:
[QUOTE=JJ]If U had such nasty side effects from Pravachol, I don't think the Vytorin is going to be much better. It is a Statin mixed with Zetia, so U just might get the same nasty affect U did on the other statin. As U said, there are some folks who can take these drugs with lil or no side effects, but there are many of us who just can't handle them. I hear ya about losing 18 months of your life, I was a disaster case for at least 9 after 3 months of Lipitor and 3 of Baycol, then it took another 6 months for the pains and aches to really be almost gone. My biggest problem was GI things, then it led into the aches and pains.

Best wishes.... :wave:[/QUOTE]


Thanks!

I'm repeating myself here from another thread, but feel it's noteworthy here as well.

Just to show you what meds can do to some people: (1) my statins gave me muscle pain, so my doctor put me on Cliniril, an arthritis med. (2) Then I developed severe reflux symptoms, and was put on Protonix. (3) Then I began experiencing severe fluid retention (and I mean SER-I-OUS fluid retention). (4) So, now I'm a total mess.

I was taken off the statins in early January '05, and (1) the pain finally subsided to where I felt I no longer needed the Cliniril (2) After discontinuing the Cliniril, the reflux started clearing up, so I felt I longer needed the Protonix, and (3) after another 30 days or so of not taking Protonix, the fluid retention slowly but miraculously went away. (I had been sleeping on 2 and 3 pillows at night because when I reclined, fluid moved from my feet and legs up into my body and I couldn't breathe. Lasix 20 mg twice a day had been of little help.) So, like falling dominoes, as I eliminated each med, I eliminated another problem.

My doctor actually said, "You're doing great since I stopped trying to kill you." That's what I like about him - his great sense of humor.

I am not inferring that my particular doctor falls into this category, because I don't believe that he does, BUT....I live in the Chattanooga area and can tell you that EVERYDAY in this town, the pharmaceutical companies are having lunch catered to many, many doctor's offices for their entire staffs. The caterers' vans are fighting for parking space outside the professional buildings every day around noon. The pharmaceutical companies aren't shelling out that kind of dough without getting a return on their money. It just wouldn't be 'good' business.

As one employee in one of those medical facilities so aptly put it, "I hardly ever have to pay for lunch. We get lunch brought in almost every day by one of the pharmaceutical companies."

I don't delude myself into thinking this happens only in my fair city. Is it any wonder that consumer prescription costs continue to soar?

Gee...how did I get off on this? Maybe it's just the late hour or maybe it's just the writer in me...
[QUOTE=TNWalz]Thanks!

I'm repeating myself here from another thread, but feel it's noteworthy here as well.

Just to show you what meds can do to some people: (1) my statins gave me muscle pain, so my doctor put me on Cliniril, an arthritis med. (2) Then I developed severe reflux symptoms, and was put on Protonix. (3) Then I began experiencing severe fluid retention (and I mean SER-I-OUS fluid retention). (4) So, now I'm a total mess.

I was taken off the statins in early January '05, and (1) the pain finally subsided to where I felt I no longer needed the Cliniril (2) After discontinuing the Cliniril, the reflux started clearing up, so I felt I longer needed the Protonix, and (3) after another 30 days or so of not taking Protonix, the fluid retention slowly but miraculously went away. (I had been sleeping on 2 and 3 pillows at night because when I reclined, fluid moved from my feet and legs up into my body and I couldn't breathe. Lasix 20 mg twice a day had been of little help.) So, like falling dominoes, as I eliminated each med, I eliminated another problem.

My doctor actually said, "You're doing great since I stopped trying to kill you." That's what I like about him - his great sense of humor.

I am not inferring that my particular doctor falls into this category, because I don't believe that he does, BUT....I live in the Chattanooga area and can tell you that EVERYDAY in this town, the pharmaceutical companies are having lunch catered to many, many doctor's offices for their entire staffs. The caterers' vans are fighting for parking space outside the professional buildings every day around noon. The pharmaceutical companies aren't shelling out that kind of dough without getting a return on their money. It just wouldn't be 'good' business.

As one employee in one of those medical facilities so aptly put it, "I hardly ever have to pay for lunch. We get lunch brought in almost every day by one of the pharmaceutical companies."

I don't delude myself into thinking this happens only in my fair city. Is it any wonder that consumer prescription costs continue to soar?

Gee...how did I get off on this? Maybe it's just the late hour or maybe it's just the writer in me...[/QUOTE]

Wow, U have been thru alot, but I'm glad to hear U have a dr. who knew when to stop all the meds. Seems ya take one thing and have to take something else to combat that med. What a vicious cycle.

I'm glad things have improved so much for you, it just boggles the mind what some of these meds. can do to you. As far as the "lunches", trust me, I know what your talking about. Have seen many reports on tv about some of these drug companies and their payoffs, it makes me sick thinking about it.. :eek: Sad part is, we the public wind up paying the high prices for meds., so we basically are buying those lunches. AARGGG

Got to love a dr. with a sense of humor, that is what I miss so much about my old dr., he was a hoot, but one fine dr. I could talk to that man about everything and anything and he never made me feel like I was being rushed. Sure hope he is enjoying his retirement, God knows he earned it.

Take care, stay healthy, and hope to chat again..... :wave:





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