It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Chronic Fatigue Message Board


Chronic Fatigue Board Index


Hi, I've been diagnosed with CFS.

Symptoms I personally have
1. Brain Fog
2. Extreme Fatigue
3. Sleep Doesn't help no matter 4 hrs or 12
4. Inability to Concentrate - sometimes feels like ADD
5. Headaches

Now, to be quite frank, I am absoluted frustrated and baffled by this Chronic Fatigue Syndrome that so many people have. Now reading over these boards I'm not sure if a lot of people actually have this or are just tired a lot and call it CFS, but regardless I'd like for some real answers.

Does anyone know of any reasearch being done on the disease, any doctors that are attempting to treat it anywhere, or basically any other information that is being gathered in survey's ect. regarding this syndrome.


I think it's important that we start trying to battle this issue rather than debating whether or not we have it, which is all this board seems to be right now. Any advice/input would be welcomed.
[QUOTE=Arms]Hi, I've been diagnosed with CFS.

Symptoms I personally have
1. Brain Fog
2. Extreme Fatigue
3. Sleep Doesn't help no matter 4 hrs or 12
4. Inability to Concentrate - sometimes feels like ADD
5. Headaches

Now, to be quite frank, I am absoluted frustrated and baffled by this Chronic Fatigue Syndrome that so many people have. Now reading over these boards I'm not sure if a lot of people actually have this or are just tired a lot and call it CFS, but regardless I'd like for some real answers.

Does anyone know of any reasearch being done on the disease, any doctors that are attempting to treat it anywhere, or basically any other information that is being gathered in survey's ect. regarding this syndrome.


I think it's important that we start trying to battle this issue rather than debating whether or not we have it, which is all this board seems to be right now. Any advice/input would be welcomed.[/QUOTE]

Hmm... To start with, I'm sure if you have CFS you will have noticed that the word "tired" doesn't even come close to the extreme exhaustion you feel on a daily basis and after doing the smallest of physical tasks.

I agree with the frustration you feel with CFS. I'm not sure there's been much research into CFS apart from the psychological aspects - psychiatric referral, cognitive behaviour therapy, graded exercise and antidepressants.

However, from what I have read of people's experiences of CFS and research articles from the BMA etc., I can say the following:

I believe that "CFS" is a blanket term given to anyone displaying symptoms of a general nature where test results are all negative. I think that in its broadest sense "CFS" (rather than ME) is actually several different illnesses, which doctors cannot yet identify. Certainly sufferers don't always report the same symptoms - the only common denominator is the persistent fatigue.

There are people with "CFS" who suffer from psychological problems, e.g. depression, bi-polar disorder; those who suffer from joint aches and pains; those who have night sweats, fever and heat intolerance; those who are constantly cold; those who have constant infections, swollen glands and sore throats... (the list goes on).

I don't believe that everyone with "CFS" is suffering from the same illness. I'm pretty sure that not all the major organs of my body are affected. I wouldn't say I feel "fluey" - how I feel is a combination of running a marathon, sitting in a car for 8 hours and not having had a good night's sleep for months... but I haven't run a marathon, I haven't sat in a car for 8 hours and every night I get a good 10 hours sleep. My symptoms are basically: severe fatigue, cold intolerance, cold hands/feet, achy joints and disrupted nail growth.

Having had such bad experiences with doctors since being diagnosed with "CFS", I pity anyone being diagnosed with it. To me it means no medical treatment, unless you'd like to stuff yourself full of sleeping pills and antidepressants; it means a doctor sitting in their chair shrugging their shoulders and saying 'I can't do anything for you'; it means a consultant saying 'think positively and it'll all go away'.

Yes, research HAS to be done, it really does. The medical profession have to look away from the psychological approach to one that's more balanced between mind and body. I hope in the future that when someone turns up at a doctor's surgery that the first thing they're offered isn't antidepressants.





All times are GMT -7. The time now is 09:15 AM.





© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!