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Chronic Fatigue Message Board


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Two and a half months ago my son was a healthy energetic teenager starting high school. Now he's in a wheelchair outside the house, crutches inside-this is due to severe joint pain especially in the knees. He can no longer read because of the severe headaches that emerge from the constant background headaches he has. He is always tired, sometimes has tremors, dizziness, some short-term memory problems and irritable bowel. This all began with hives and joint achiness. The hives are gone but the joint problems remain. He had negative results on all tests so far (blood work, ANA, lyme titer). The doctor says its probably a virus and will go away on its own. The more I learn it seems that it takes months sometimes to test positive on any of these tests. My son feels the doctors don't feel anything is wrong we feel something is. Any thoughts - we'd like to hear them. Thanks, Debbie

In 1997 I had joint pain, hives, fever, and ulcers in my throat they originally called it a viral synovitis (which means a virus settled in the joints) I too tested negative for Lyme etc. However, 3 years later I am now diagnosed with
EBV, CFS, and Fibromyalgia. I am now 34 years old with a 13 & 14 year old and have not been able to work. My whole life has changed to say the least I went to 2 Rhuemotologists and finally my Internal Medicine doctor diagnosed me because they wouldnt.
I hope this helps shed some light and if you get any new information pass it on Good Luck to you and your son
Luv Scoobs
[QUOTE=CJ]Two and a half months ago my son was a healthy energetic teenager starting high school. Now he's in a wheelchair outside the house, crutches inside-this is due to severe joint pain especially in the knees. He can no longer read because of the severe headaches that emerge from the constant background headaches he has. He is always tired, sometimes has tremors, dizziness, some short-term memory problems and irritable bowel. This all began with hives and joint achiness. The hives are gone but the joint problems remain. He had negative results on all tests so far (blood work, ANA, lyme titer). The doctor says its probably a virus and will go away on its own. The more I learn it seems that it takes months sometimes to test positive on any of these tests. My son feels the doctors don't feel anything is wrong we feel something is. Any thoughts - we'd like to hear them. Thanks, Debbie[/QUOTE]

Many physicians do not understand CFS or any illness that they cannot explain without test that verify their diagnosis. You cannot really fault them, because that is part of their training. It does not mean that your son is not ill; it means that the doctors do not know how to treat him.

Have you consulted an Infectious Disease specialist,who is most likely to determine your sonís illness and recommend suggestions? Good Luck. truerd





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