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Chronic Fatigue Message Board

Chronic Fatigue Board Index

Re: Help!
Aug 16, 2003
Hi, Loubilou!

I agree that your first step is to see an MD. Speak frankly to him/her about your symptoms. If they doesn't seem receptive, find another one. Excessive sleepiness/fatigue is not normal, and you need to find a doctor who will listen to you. :)

I was diagnosed with chronic fatigue syndrome about 4 months ago. My symptoms were very similar to yours. Never feeling "refreshed" in the morning, even after sleeping 10-12 hours, falling asleep at the drop of a hat during the day, no energy to do anything, etc. The "brain fog" is awful, isn't it? :(

I highly recommend a book entitled "From Fatigued To Fantastic" by Dr. Jacob Tietelbaum. This was what put me on the road to finally being properly diagnosed.

CFS can have a multitude of causes. I have now been diagnosed with a form of narcolepsy, which includes excessive sleepiness during the day, inability to engage in normal activities due to fatigue, sleep apnea, etc. My hypothalamus is dysfunctional, causing irregular sleep patterns, low blood sugar, fatigue, low thyroid, low blood pressure, and adrenal gland dysfunction (glands that sit on top of your kidneys that help regulate blood pressure and release numerous hormones).

I am now on Provigil, a medication that targets certain areas of the hypothalamus to secrete hormones appropriately. It's been less than a week, but I can tell a huge difference already. I had almost forgotten what it was like to feel "awake" during the day.

I'm certainly not advocating that everyone with fatigue should be on this drug. But for me, my extreme fatigue appears to be related to hypothalamic dysfunction, and it seems to be working. My doctor is treating my anemia as a separate issue. And for the time being, I remain on Armour Thryoid medication.

Here is the basic blood tests that my doctor ordered when I first went to him:

~CBC (complete blood count)
~B12 level/Folate level
~Ferritin level (very important in diagnosing anemia)
~complete thyroid panel, including TSH, T4, & reverse T3
~serum glucose level
~BUN and creatinine (tests kidney function)
~liver panel (to rule out liver disease)
~complete electrolyte panel

All the best,


[This message has been edited by keeponsmiling (edited 08-17-2003).]

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