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Chronic Fatigue Message Board


Chronic Fatigue Board Index


Hi--I have long-standing CFS with high titres to HHV-6 and CMV, but no EBV. Is there anyone who has used Valtrex successfully for HHV-6? I know it's not supposed to be effective against CMV. My doc is hesistant to prescribe Valcyte, due to toxicity concerns, though it seems that's what Montoya at Stanford and Lerner in Michigan are using for CMV. Would love to hear from anyone using anti-virals in general. Thanks.
[QUOTE=nmgrl;2993024]Hi--I have long-standing CFS with high titres to HHV-6 and CMV, but no EBV. Is there anyone who has used Valtrex successfully for HHV-6? I know it's not supposed to be effective against CMV. My doc is hesistant to prescribe Valcyte, due to toxicity concerns, though it seems that's what Montoya at Stanford and Lerner in Michigan are using for CMV. Would love to hear from anyone using anti-virals in general. Thanks.[/QUOTE]

[COLOR="DarkRed"]Hi there - I see Dr. Lerner and was diagnosed with EBV, HHV6 and Lyme Disease. I am currently taking Valcyte. I was originally taking 900 mg in the morning, and 450mg at night, but I could hardly walk (was told this is an excellent prognostic indicator). I have since reduced the dose to just 450mg at night and seem to be tolerating that well. I completed 42 days of IV ceftriaxone for the LD, and continue with suppression therapy (500mg amoxi four times per day). Dr. Lerner has been careful to monitor my kidney and liver function, and so far, all is well.
Best of luck to you!
Kat[/COLOR]





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