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Chronic Fatigue Message Board


Chronic Fatigue Board Index


[COLOR="Purple"][B]Hi Cake....

When you say you tested negative for the virus's ...do you mean yes the titers are there but are not reactive...From what I have read just about everyone has titers to EBV and CMV. If you have had chicken pox in your life time then you also have that type of herpe in your system...They like to lay dorminant in our bodies until something activates them.

Also I did read that even if they test say a person has titers for EBV and CMV and aren't showing active...then it is a good idea to still treat a person...so it is good that you are trying the Valtrex. :)

My story is kind of loopie...crazy...I have been battling Lyme Disease for around 20 years...but on the right treatment for 7 years...I have between my scalp and skull tissue that is raised like goose eggs...I have always been convinced they are bacteria (s) , or virus's (herpes) ....This started back in 2000....and they would raise up and down and I would get pretty darn nutty. couple years ago they decided to stay raised and it affected the right side of my head...thinking, eyesight, I can feel the blood vessels swell up...Anyway more to it..but I am seeing a doctor now that agrees that this is most likely what it is...either the herpes ..EBV, CMV or chicken pox herpe that has embedded themselves in there...When he started me on the Valtrex within a month alot of the parinoid feelings I was having started going away and my breathing started getting better...

Been on this dose for about 6 months (i think) ...I would really LOVE to get on a higher dose...and see if it will help me further...

Keep us posted on how you are doing on it ....There are a coupld of us on the Valtrex on here....

Read up on Dr. Lerner....some very interesting things in his writings...

Good Luck to you!!!

:D [/B][/COLOR]
JOJO-

hey there. i am wonderin if you can tell me more of your tx with valtrex. i am supposed to start it this week afte finding high titers to hhv-6, cmv and ebv. i noticed you had improvements with it and also with your breathing. i have breathing problems and am not repsonding to asthma meds so just hoping to hear how it has gone for you.

thanks,
ah
[COLOR="Purple"][B]Hi AH,

I think I did about 8 months of valtrex and saw a big improvement. Valtrex is more for the EBV virus. I was doing think it was 1,000 mg a day...

Then from what I had been reading Valycte is more for CMV so I asked my doc to switch me over to that...I did that for the last 3 months...Valcyte is MAJORALY expensive...couple thousand a month...I have insurance....ugh!

Yes my breathing had gotten better and my muscles didn't feel all cramped up...I have talked to my doc and now we took me off and retested me. I don't have those results yet. I had him put me on Plaquinil for protozoa's. All of these virus's and such love to invaded every little inch of us. One just has to keep untangling that spider web to find answers...Started the plaquinil last week and it has helped alot too...

We all have to just read read read and learn the symptoms of everything and help guide your doctor in the right treatment for each of us...Which at times is a challege too....

Good luck with your treatment...let us know how you are doing!!

Have a great day...

:D [/B][/COLOR]





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