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Chronic Fatigue Message Board


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I'll try to keep my story brief and then get quickly on the the main point.

For almost twenty-two years now, I have been sufferring with a chronic unexplained illness. These are the main symptoms I have;

Brain fog
Unexplained fatigue
Poor recovery after standard physical or mental exertion
Constant indigestion
Persistent Thrush
Muscle weakness
Detoriating vision (about twenty pairs of glasses over twenty-two years)
Balance problems and dizziness (not vertigo, but sharp turns can cause stumbles and falls)
Insomnia
Depression (Caused, of course, by all the above :) )


There's a host of other lesser problems, but those listed are the ones which make it near-impossible to live a constructive life. Like most of you, I have had countless different tests and gone through usual story of unsympathetic doctors, unemployment, broken relationships, fear and self-loathing. Finally I got some coins together, took myself out of the medical mainstream and paid to be treated at a private clinic which specialises in undiagnosed illnesses.

The first round of test results pointed to me having chronic fatigue. I wasn't really happy with this diagnosis, because the little I knew of CFS suggested it was a catch-all term for a psychological disease. Of course my doctor informed me that this is not the case and that the clinic had further tests which could determine the biological basis of a patients CFS. (I'm not sure I'm allowed to mention the clinic, so I won't, but I did as much research as I could before going to them and the tests they offer are cutting-edge, micro-biological science). The second round of tests revealed that my [B]Mitochondria[/B] are severely underperforming. I had never even heard of Mitochondria before going to that clinic.

I have cut and pasted from a medical article below which explains what Mitochondria are and why they are so important and cause so many problems when they don't work well. It can also help explain why one person's CFS can be so different from anothers.

The main thing is, fellow sufferer, I'm not going to assume that you are any more a medical expert than I am, so it may be you are unaware that the cause of your CFS **MAY** be the same as mine. So if, (after doing your own research please!) you feel pursuing mitochondrial investigation may help you, then go for it.

As for me, I am currently following a diet regimin (on which I have felt better than I have for years) and am about to go for another round of tests to try to help with my specific set of symptoms. Unfortunately, there is no current cure for Mitochondrial disease (though information is changing all the time) but let's face it. Half the battle with chronic illness is being able to detail exactly what it
is.

I will update you on my progress in about two months or so and I'll try to reply to any queries that this post generates. But i read so much pain and hopelessness on this board that it was all I could do to try and offer some kind of outlet. Please stay strong, brothers and sisters. All we have is each other.
Hi - your story is so similar to mine except I have been ill for two years - And now I have a diagnosis of mito disease instead of chronic fatigue. When you think about the symptoms and treatments for CFS, most really are treating mito disease anyway - except there is more specific research into the exact breakdown in metabolic pathways in mito disease and treatment of these - Id love to hear how your treatment progresses and I will do the same - :)

[QUOTE=Makzim68;3710100]I'll try to keep my story brief and then get quickly on the the main point.

For almost twenty-two years now, I have been sufferring with a chronic unexplained illness. These are the main symptoms I have;

Brain fog
Unexplained fatigue
Poor recovery after standard physical or mental exertion
Constant indigestion
Persistent Thrush
Muscle weakness
Detoriating vision (about twenty pairs of glasses over twenty-two years)
Balance problems and dizziness (not vertigo, but sharp turns can cause stumbles and falls)
Insomnia
Depression (Caused, of course, by all the above :) )


There's a host of other lesser problems, but those listed are the ones which make it near-impossible to live a constructive life. Like most of you, I have had countless different tests and gone through usual story of unsympathetic doctors, unemployment, broken relationships, fear and self-loathing. Finally I got some coins together, took myself out of the medical mainstream and paid to be treated at a private clinic which specialises in undiagnosed illnesses.

The first round of test results pointed to me having chronic fatigue. I wasn't really happy with this diagnosis, because the little I knew of CFS suggested it was a catch-all term for a psychological disease. Of course my doctor informed me that this is not the case and that the clinic had further tests which could determine the biological basis of a patients CFS. (I'm not sure I'm allowed to mention the clinic, so I won't, but I did as much research as I could before going to them and the tests they offer are cutting-edge, micro-biological science). The second round of tests revealed that my [B]Mitochondria[/B] are severely underperforming. I had never even heard of Mitochondria before going to that clinic.

I have cut and pasted from a medical article below which explains what Mitochondria are and why they are so important and cause so many problems when they don't work well. It can also help explain why one person's CFS can be so different from anothers.

The main thing is, fellow sufferer, I'm not going to assume that you are any more a medical expert than I am, so it may be you are unaware that the cause of your CFS **MAY** be the same as mine. So if, (after doing your own research please!) you feel pursuing mitochondrial investigation may help you, then go for it.

As for me, I am currently following a diet regimin (on which I have felt better than I have for years) and am about to go for another round of tests to try to help with my specific set of symptoms. Unfortunately, there is no current cure for Mitochondrial disease (though information is changing all the time) but let's face it. Half the battle with chronic illness is being able to detail exactly what it
is.

I will update you on my progress in about two months or so and I'll try to reply to any queries that this post generates. But i read so much pain and hopelessness on this board that it was all I could do to try and offer some kind of outlet. Please stay strong, brothers and sisters. All we have is each other.[/QUOTE]





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