It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Chronic Fatigue Message Board


Chronic Fatigue Board Index


Hi all. This isn't exactly the update I promised, more a request for help. I am extremely sensitive to medication and suffer side-effects with almost everything I take, even aspirin. Because of this I haven't tried any of the brand names which are supposed to help with brain fog (my worse CFS problem). As I posted above, my new diet is helping, but I'm going to need to be really sharp and focused in the next two months and I'm willing to try any short-term stimulant that you guys have found to be well tolerated. Any ideas? Has anyone taken Ritalin? I know it's not strictly speaking a CFS drug but I have heard it passes through the system quickly and maybe this is what I need. Help please.

PS All you mothers out there and people that still have to work, I don't know how you cope. My heart goes out to you.
Good post.

A few other supplements that can be taken include D-Ribose and NADH.

Something like Ritalin or adderall could be helpful for treating the symptoms of fatigue and add a little focus and concentration to the table.
[QUOTE=Grambo;3729742]Good post.

A few other supplements that can be taken include D-Ribose and NADH.

Something like Ritalin or adderall could be helpful for treating the symptoms of fatigue and add a little focus and concentration to the table.[/QUOTE]
Have tried both suppliments and I am already on antiNarcoleptic medication, with CFS on board with the Narcolepsy, it can only keep one awake, but all the other symptoms don't go away.
I do take Ritalin 40mg LA in the morning along with many other meds due to other conditions. It does help with energy for a short while but does not last as long as it should (8 hours) which has a lot to do with the other meds I take. Jenn
[QUOTE=Jenn4508;3730067]I do take Ritalin 40mg LA in the morning along with many other meds due to other conditions. It does help with energy for a short while but does not last as long as it should (8 hours) which has a lot to do with the other meds I take. Jenn[/QUOTE]

Thanks for that Jenn. I think i'm leaning towards trying Ritalin if I can get it as that seems the most tolerated stimulant. Do you have brain fog? Does ritalin help with that as well? I have tried D-Ribose but all it did was keep me awake at night, didn't do muc for my concentration. that's what i really need help with.
I take alot of meds and I do mean many. One of my docs gave it to me to help with the energy issue to counteract some of the effects of the other meds. I told him I felt like Elvis Presley sometimes. I have 5 docs that I have to see. Yes, they all know about each other and what they all prescribe and they all work together. I do have the brain fog really bad. My doc had me on 20 mg LA and I was to take it at 6 am and again at 10 am even though it is supposed to last 8 hours. It did help with the energy quite a bit and did help with the brain fog until about 1 or 2 pm. However, my insurance company would not pay for me to take it that way and said the only way it would pay for it was for me to take a 40 mg LA one time per day which I take with my first dose of meds at 6 am. This med change was made the end of June and I can really tell the difference, it is just not working out... I think it is a shame that the insurance company has the right to tell the doctor's how to prescribe the medications.

I am not sure if it is the brain fog or short term memory loss or a little of both however, I don't cook very much at all and if I do, I have to carry a timer in my pocket or I will totally forget and I am afraid of burning the house down.

Sorry for rambling but that is the story on the Ritalin... Hope it helped some. Jenn.
[QUOTE=Jenn4508;3730434]I am not sure if it is the brain fog or short term memory loss or a little of both however, I don't cook very much at all and if I do, I have to carry a timer in my pocket or I will totally forget and I am afraid of burning the house down.

Sorry for rambling but that is the story on the Ritalin... Hope it helped some. Jenn.[/QUOTE]

No need to apologise Jenn. And i can totally relate to the cooking worries:( There was a time i attempted some electrical DIY and almost killed myself because I forgot i switched the power on :o:o:o Unfortnuately, I still have to do the odd bit of DIY every now and then so if I dont post for a while, you 'll know why :D

I don't know if I should say this, but discovering the CFS thread ont his site after my diagnosis has been such a source of comfort. Just knowing that i'm not alone, especially in this feeling of "premature dementia" that has so messe dup my life. I'm sure you all know that i mean i wish none of us had to go through it :( but at least all of us on here no were not alone.

One last question if you dont mind Jenn. (Or anyone else who whants to answer) When you get your brain fog to you get headaches if you try to problem solve? Years ago, i only used to get headaches if I tried to problem slove for about an hour or so. Now, almost anything mentally stressful can bring on a headache;

If i read fiction (non-fiction is still okay)
If I try to plan two-three months ahead in my mind
Meantal arithmetic
Problem sloving (i.e trying to work out where to put a new table in my room)
If i watch television or cinema for more than two hours straight (especially films and dramas)
Concentrate on anything for fifteen minutes or more

And here's the thing: I always get it worse on my right-hand side (when i do get headaches on the left side as well, that's when I'm really, really gone). Anyone else get brain-fog headaches like this?
I understand what you are talking about with the headaches with the brain fog. I will try to explain this the best possible way I can due to brain fog at this time. I suffer with migraines also but there is a difference.

I have to see 4 docs every month no matter what. Even though I know the route to each one, a couple of days before an appointment, I will keep looking in my calender book that stays in my purse always and make sure that I keep focus of where I need to be. I will look at it a million times. I will also start mapping out the route to the office in my mind. This will bring on a headache that will stay because I am a nervous wreck that I will still go to the wrong doctors office. I have done it a couple of times before. This headache is different from my migraines.

You would think that taking the Ritalin should help me focus however, in my case, I am prescribed Ritalin for use with my energy level. Ritalin is normally used in people with ADD or ADHD for attention issues and to help them focus.

I hope this helped in some small way. Jenn
[QUOTE=Jenn4508;3735173]
I have to see 4 docs every month no matter what. Even though I know the route to each one, a couple of days before an appointment, I will keep looking in my calender book that stays in my purse always and make sure that I keep focus of where I need to be. I will look at it a million times. I will also start mapping out the route to the office in my mind. This will bring on a headache that will stay because I am a nervous wreck that I will still go to the wrong doctors office. I have done it a couple of times before. This headache is different from my migraines.

[/QUOTE]

Thanks for replying again Jenn. It's not exactly the headache I was talking about but I can definitely relate. You know that you are prone to making mistakes so you try to do all the pre-plannning you can to makesure you don't make errors and that brings on a headache. When i worked i had headaches like this all the time. Every day!And even now i avoid new situations, or meeting people in new places because the chance of missing the way, making erroes I can't plan for, etc is just too high. What shall we call this? "Nervous" Headache? "Fear of Error" headache (FOM):) C'mon! it's us who suffer it, why shouldn't we name it?:)

I have found keeping a diary helps for routes and dates etc, but (and only someone with CFS will understand this) sometimes I forget to look at my diary:(

Again, thanks for replying. Surprised the ritalin doesn't help with the fog though? But at least all your Docs are working together am having some serious batlles with some of mine here:mad:
Sorry you are having trouble with some of your docs... You can name the headaches anything you want :D I agree.

The reason the Ritalin doesn't work for the fog is because Ritalin is used for ADD/ADHD which helps with concentration for people with these learning disabilities, I know because my son is ADD. If someone takes it that does not have ADD/ADHD, it is more like an energy pill. That is the reason my psychiatrist gave it to me, to help combat the chronic fatigue. Hope that helps. Jenn
[QUOTE=Jenn4508;3738353]Sorry you are having trouble with some of your docs... You can name the headaches anything you want :D I agree.

The reason the Ritalin doesn't work for the fog is because Ritalin is used for ADD/ADHD which helps with concentration for people with these learning disabilities, I know because my son is ADD. If someone takes it that does not have ADD/ADHD, it is more like an energy pill. That is the reason my psychiatrist gave it to me, to help combat the chronic fatigue. Hope that helps. Jenn[/QUOTE]

My mainstream docs seem to come in two sizes... dumb and dumber. I only ever get anything done when Ive paid for it.

Pity about the Ritalin not working for fog... my energy levels are bad, but not terrible... but my fog can be terrible. I'm right-handed and the other day I was looking for my phone then realised i was holding it in my left hand :( Years ago I would have been really down about things like that butnowadays I just laugh. what else can i do? Strangely enough, today is a day that I feel really good :confused::D:confused:

I think Iwont be able to post for a while now as I have medical appts and family issues for the next month or so, but thanks a lot for your replys Jenn. I hope you have better days ahead.

Take care
[QUOTE=Makzim68;3728374]Hi all. This isn't exactly the update I promised, more a request for help. I am extremely sensitive to medication and suffer side-effects with almost everything I take, even aspirin. Because of this I haven't tried any of the brand names which are supposed to help with brain fog (my worse CFS problem). As I posted above, my new diet is helping, but I'm going to need to be really sharp and focused in the next two months and I'm willing to try any short-term stimulant that you guys have found to be well tolerated. Any ideas? Has anyone taken Ritalin? I know it's not strictly speaking a CFS drug but I have heard it passes through the system quickly and maybe this is what I need. Help please.

PS All you mothers out there and people that still have to work, I don't know how you cope. My heart goes out to you.[/QUOTE]

I have taken ritalin to help with exhaustion. It worked, but I didn't like the way I felt on it as I had the shakes at times. I am now on 2 cups of coffee followed by 2 cans of diet coke. Less shaky, just as bad for you, no doubt. But I doubt my employer would like head on desk, either.
Best,
Julie
[QUOTE=Makzim68;3728374]Hi all. This isn't exactly the update I promised, more a request for help. I am extremely sensitive to medication and suffer side-effects with almost everything I take, even aspirin. Because of this I haven't tried any of the brand names which are supposed to help with brain fog (my worse CFS problem). As I posted above, my new diet is helping, but I'm going to need to be really sharp and focused in the next two months and I'm willing to try any short-term stimulant that you guys have found to be well tolerated. Any ideas? Has anyone taken Ritalin? I know it's not strictly speaking a CFS drug but I have heard it passes through the system quickly and maybe this is what I need. Help please.

PS All you mothers out there and people that still have to work, I don't know how you cope. My heart goes out to you.[/QUOTE]

I am on Adderall which is the same as Ritalin. It helps a lot. I still have bad days. Phew are they bad. I am able to function which includes working. Now I am no where near where I was before CFS/FM but it helps.





All times are GMT -7. The time now is 10:58 PM.





© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!