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Chronic Fatigue Message Board


Chronic Fatigue Board Index


Re: Help!
Nov 8, 2008
No, you are not insane. You are understandably very worried about what is happening to you. Any of us would feel the same way with all of your symptoms.

If you want to find out the symptoms of and way to diagnose true Chronic Fatigue and Immune Dysfunction Syndrome (the real name, other than Myalgic Encephalomyelitis, found by Dr. Melvin Ramsey), you could look up the Canadian Criteria for it; they have a far more comprehensive symptoms list and way to diagnose it than does the CDC here.

Canada calls it CFS/ME.

Now, to you: have you seen a dr? What was determined? Did you have any tests? What were they? You need something right away for your severe anxiety and secondary depression, especially if you have suicidal thoughts, ok? These two things could help you feel much better within a month or two.

Your "startle effect" can be part of a hyper-vigilance pattern (do you have a background which could make you be afraid?), or, they well could be part of the neurological part of CFS/ME.

What our CDC has done is take out the parts from their 1988 and 1994 definitions of "CFS", that require neurological and immune system abnormalities, and now anyone who is "fatigued" (for up to 200 reasons) fits their criteria, so it is essentially useless for your doctor.

I urge you to get medical help for the most debilitating anxiety and depression first; then look for support groups for either Fibromyalgia and/or CFS/CFIDS/ME.
They are (arguably) the same thing, with many neurological symptoms like you relate.

I hope you will start reading more about the so-called CFS; there is so much more to the story, as I related in the post no one wants to answer, titled "Which is Yours, CF, CFS/CFIDS, ME", as it requires a bit of study in order to determine which one you may have, and most people here just want to get quick answers to sometimes very complex issues.

I do hope you'll get medical help immediately, and keep us informed how you are doing. If you work, and are in danger of losing your job because of your illness, you need to start keeping a log of your symptoms and how they impact your daily life, it will help you file for disability if you have to.

My best advice is to study, study, study, and find out WHICH illness criteria most matches your symptoms. Only then will you be able to know what path to take to feeling better. Best to you,
curiousk





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