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Chronic Fatigue Message Board


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First of all, have you gone to a doctor? A doctor should be able to eliminate well-known/recognized health issues that cause the types of symptoms you are experiencing.

Secondly, have you read any reputable literature on CFS and if so, does it sound like what you are experiencing? If so, I would strongly urge you to give up the exercise (or at least strenuous exercise) until you get to the bottom of your problem. My understanding is that when CFS is diagnosed early, and the patient respects the genuine limitations the illness imposes, it is more likely they recover their health. In my case, I became ill in 1988 before much was known about the illness. Having always been an athlete, my response was to push myself even harder despite the fatigue, thinking I could train myself out of it. I'll never know for sure if this contributed to the fact I haven't recovered, but medical advice received seems to indicate it was at least a factor.

Loss of sex drive is a well documented factor in this illness. I had only been married 1 1/2 years when I became ill, and my sex drive went from normal, to absolute "zip" overnight. I remember thinking: "I know people's sexual activity is supposed to decline after the first year of marriage, but this is ridiculous". Even watching sex scenes in movies had no more effect on me than if the couple involved had been brushing their teeth!

In the acute (early) as opposed to the chronic (later) phase of the illness, one can feel exhausted after even 16 hours of sleep a night (in my case), so what you're experiencing isn't unusual.

Obviously, no one this board can diagnose what's causing your distressing symptoms. There are many illnesses that can cause what you're experiencing. I hope you have a good doctor who can help diagnose what's wrong (or at least what's not wrong). After that, there are many resources on the internet that will help educate you. Good luck.
It's definitely not a bad idea to start over if your current physician can't determine the cause of your feeling so poorly. I switched doctors 6 months after being diagnosed with CFS -- not because my doctor couldn't determine what was wrong, but because she didn't know enough to understand what I was experiencing, or how to help me. Switching was the best decision I could have made at the time. My new physician was a real gem. Yes, they are out there -- just difficult to find.

Here's a story to emphasize the need to find a doctor able to get to the bottom of your particular problem. My sister suffered with many challenging symptoms for years. Her long-time physician was unable to diagnose the problem and made many (wrong) assumptions based on her knowledge of my sister's situation. At one appointment a few years ago, my sister saw a locum (replacement) physician instead. This new young graduate immediately asked my sister (based on her appearance) if she'd ever been checked for "XYZ" disease. When my sister said "No", the young physician recommended she be checked immediately. To make a long story short, this replacement physician saved my sister's life.

I think most people suffering with undiagnosed health problems question the state of their mental health from time to time. If you believe you're not a hypochondriac, you're probably not. After all, you're the expert on you!
[QUOTE=Sensitivo;3972136]First of all, have you gone to a doctor? A doctor should be able to eliminate well-known/recognized health issues that cause the types of symptoms you are experiencing.

Secondly, have you read any reputable literature on CFS and if so, does it sound like what you are experiencing? If so, I would strongly urge you to give up the exercise (or at least strenuous exercise) until you get to the bottom of your problem. My understanding is that when CFS is diagnosed early, and the patient respects the genuine limitations the illness imposes, it is more likely they recover their health. In my case, I became ill in 1988 before much was known about the illness. Having always been an athlete, my response was to push myself even harder despite the fatigue, thinking I could train myself out of it. I'll never know for sure if this contributed to the fact I haven't recovered, but medical advice received seems to indicate it was at least a factor.

Loss of sex drive is a well documented factor in this illness. I had only been married 1 1/2 years when I became ill, and my sex drive went from normal, to absolute "zip" overnight. I remember thinking: "I know people's sexual activity is supposed to decline after the first year of marriage, but this is ridiculous". Even watching sex scenes in movies had no more effect on me than if the couple involved had been brushing their teeth!

In the acute (early) as opposed to the chronic (later) phase of the illness, one can feel exhausted after even 16 hours of sleep a night (in my case), so what you're experiencing isn't unusual.

Obviously, no one this board can diagnose what's causing your distressing symptoms. There are many illnesses that can cause what you're experiencing. I hope you have a good doctor who can help diagnose what's wrong (or at least what's not wrong). After that, there are many resources on the internet that will help educate you. Good luck.[/QUOTE]

sorry to be vague- but can you further explain CFS, never heard of it.. sounds like a lot of symptons i have... thanks!





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