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Chronic Fatigue Message Board

Chronic Fatigue Board Index

[COLOR="Blue"]Sparkyireland - You're not alone and it's not all in your head! While I believe God has given Dr's wisdom, there's just no way that he/she could know it all. CFS is not only difficult to diagnosis, as the symptoms so often replicate many other possibilities. I have been "dealing", yet it feels more like surving for over two years with the following symptoms:

Feeling terrible ill everyday (Quite hard to explain)
Fatigue (Obvious), like you haven't slept in days
Headache & Head pressure
Foggy or fuzzy dreamy headed (Daily)
Neck pressure and tighness (but was in a car accident a few years ago)
Back ache's off and on
Acid refllux - more in the last 6 mos.
Various stomach pain irritated by foods/soda (that I never was before)
Anxiety (On and off) and over the oddest things, even tho you know logically it's no big deal
Chest & Muscle pain - some, very mild
Depression (Twice in the 3 years sudden disabling depression, medication reaction? ) due to my serontonin being very low, which in turn caused anxiety (something I had never dealt w/ until recent years) on Celexa anti-depressant
Alcohol intolerance (Cant enjoy one drink - tho don't drink much)
Sleep (Naps make me feel worse and are un refreshing, I can sleep for 12 hours and still feel unrested, groggy, and struggle to "wake up"
Complete lack of motivation - basic things are difficult to handle
Bad concentration - almost becomes like a pressure to focus
Short Term memory problems

Here's what I have learned: (1)CFS takes over 6 mos before it can even be idiagnosed (while ruling out other possibilities). And that acid reflux is often caused by CFS. Many don't know what causes CFS, but have read that it could be something that occurred to "trigger" it. Here's my story - Dec 2006 was hit by a truck going 50 mph and had severe whiplash. Off work for over 4 mos (work in office). during those 4 mos. and 6 to follow under ALOT of stress. In retrospect, notice the CFS was starting in fall of 2007, but wasn't until early 2008 that I went off on medical disability for over 4 mos. During that time ruled out all the other possiblities (fibromyglia (sp?), sleep apnea, rhemtoid arthritis, etc.) Because I had to go back to work full time, dr prescribed a stimulant that is often used for patients with narpilpsy (sp?) called Provigil, and that did make a positive impact. I went from feeling like I could barely function (scale 0 - 100%) 25% to 65%. Could work through my day fine, but after I got off work exhausted and felt like everything shut down and weekends were just to recharge. However, there's warnings about using it long term and being additive (which I don't want). Just as of 4 weeks ago, I went off my stimulant and for the last 3 wks have been taking a natural supplement (liquid form) call CELL FOOD. Its oxygen derived from plants that is highly concentrated and helps w/ the immune system (fibromyalia patients really find it helpful). I figured since both CFS and fibro.. have the immune system attacked why not try it. I now feel lke I'm at 90%. I take it am/lunch/pm w/ lemonade (as it has a tart lime taste when mixed w/ water). I'm also reading a book that shares how our thyroid really can impact our body, i.e. depression, serontonin (natural chemicals in body that makes us feel good) but how dr's don't really play close attn to the thyroid, but it really has power over our body. So in my case it appears that two things are happening and of course working against me. Hope my story helps and if nothing else let's you know you're not alone, because it is difficult to explain why you feel like you're functioning on fumes all the time. Peace.[/COLOR]

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