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Chronic Fatigue Board Index
Pages: 1Showing 1 - 14 of 14 for valcyte cfs. (0.019 seconds)

... Hi there - I see Dr. Lerner and was diagnosed with EBV, HHV6 and Lyme Disease. I am currently taking Valcyte. I was originally taking 900 mg in the morning, and 450mg at night, but I could hardly walk (was told this is an excellent prognostic indicator). I have since reduced the dose to just 450mg at night and seem to be tolerating that well. I completed 42 days of IV... (7 replies)
... Hi--I have long-standing CFS with high titres to HHV-6 and CMV, but no EBV. Is there anyone who has used Valtrex successfully for HHV-6? I know it's not supposed to be effective against CMV. My doc is hesistant to prescribe Valcyte, due to toxicity concerns, though it seems that's what Montoya at Stanford and Lerner in Michigan are using for CMV. Would love to hear from... (7 replies)
... I started Valcyte couple days ago. Switched from over from Valtrex? ... (7 replies)

... I have only been on the valcyte for 2 weeks, and had to reduce the dose soon after I started.I have noticed NO improvement yet, but am told by Dr. ... (7 replies)
... Thanks so much for sharing your experience, Kat. It's good to hear from someone working with Dr. Lerner. How long have you been on the Valcyte? So, on the lower dose, do you have a little more energy or still trouble getting around? Keep us posted on how you're doing--good luck! nmgrl (7 replies)
... Kat, I don't know anything about private disability, but getting disability with SSDI or SSI can be a long process. I got mine with the help of a Legal Aid lawyer. I'm sure that your documentation from Dr. Lerner would be of help. I had letters from a couple of doctors, as well as letters from friends and family, corroborating the extent to which my cfs impacted my... (7 replies)
... Yes my doctor also treats with antivirals. I have been on Valtrex and Valcyte for a couple of years now. It took up to about 7 months before I started seeing any progress. He had me doing 1,000 mg a day. ... (1 replies)
... Your welcome.... The doctor that I see is a scientist/reseacher/doctor.....he follows Dr. Charles Stratton's protocol on bacterias, virus's.... If you read up on Dr. Charles Stratton you will find he has 3 offices in Nashville. You might want to check into the Vanderbilt Clinic in Nashville. This might be an excellent starting point. :) Yes the antivirals have helped... (10 replies)
... The treatment depends on which virus or viruses they isolate. Mine is the CMV virus so I am on Valcyte and it is reducing my titers. ... (27 replies)
... You could very possibly have gluten intolerance, which can cause severe brain fog and tiredness. I have CFS and gluten intolerance. ... (2 replies)
... Hi...if you have a positive then you have infectious Mono... Have you had a titer test done? To see what levels the EBV and/or CMV are? Did the doctor put you on any antivirals??? You may want to read up on Dr. Martin Lerner. He is a specailist in CFS..he uses very high doses of anitvirals for treatment. I have been on Valtrex and now on Valcyte. (2 replies)
... Hi Katlin.... How long have you had Lyme? So you only did 42 days with a picc? I had a picc prety much for a year...are you taking any other type of antibiotic with the amox? I was on cocktails of antibiotics... I have read up on your doctor...I know he is VERY knowledgeable with virus's ...but what about Lyme? I wish you all the best and a quick recovery. Took me... (7 replies)
Anti-Viral meds..
Jun 13, 2007
... AT, Jose Montoya at Stanford is the one doing trials using Valcyte for CMV, HHV6, EBV. ... (59 replies)
... nmgrl, Check out the thread I started titled "Anti-Viral meds". :-) (7 replies)

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