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Chronic Fatigue Board Index
Pages: 1 Showing 1 - 20 of 25 for valcyte. (0.000 seconds)


... I started Valcyte couple days ago. Switched from over from Valtrex? ... (7 replies)
... I have only been on the valcyte for 2 weeks, and had to reduce the dose soon after I started.I have noticed NO improvement yet, but am told by Dr. ... (7 replies)
... Hi there - I see Dr. Lerner and was diagnosed with EBV, HHV6 and Lyme Disease. I am currently taking Valcyte. I was originally taking 900 mg in the morning, and 450mg at night, but I could hardly walk (was told this is an excellent prognostic indicator). I have since reduced the dose to just 450mg at night and seem to be tolerating that well. I completed 42 days of IV... (7 replies)

... Thanks so much for sharing your experience, Kat. It's good to hear from someone working with Dr. Lerner. How long have you been on the Valcyte? So, on the lower dose, do you have a little more energy or still trouble getting around? Keep us posted on how you're doing--good luck! nmgrl (7 replies)
... Hi--I have long-standing CFS with high titres to HHV-6 and CMV, but no EBV. Is there anyone who has used Valtrex successfully for HHV-6? I know it's not supposed to be effective against CMV. My doc is hesistant to prescribe Valcyte, due to toxicity concerns, though it seems that's what Montoya at Stanford and Lerner in Michigan are using for CMV. Would love to hear from... (7 replies)
... You could very possibly have gluten intolerance, which can cause severe brain fog and tiredness. I have CFS and gluten intolerance. It helps when I don't eat gluten but blood work at a naturopath showed I have 3 different kinds of active viruses and he put me on Valcyte stating it would take 2 1/2 years to put the viruses back into remission. I felt the difference in a year... (2 replies)
... Yes my doctor also treats with antivirals. I have been on Valtrex and Valcyte for a couple of years now. It took up to about 7 months before I started seeing any progress. He had me doing 1,000 mg a day. ... (1 replies)
... Your welcome.... The doctor that I see is a scientist/reseacher/doctor.....he follows Dr. Charles Stratton's protocol on bacterias, virus's.... If you read up on Dr. Charles Stratton you will find he has 3 offices in Nashville. You might want to check into the Vanderbilt Clinic in Nashville. This might be an excellent starting point. :) Yes the antivirals have helped... (10 replies)
Weird lab results?
Dec 21, 2007
... These are two of the things I have...and virus's can be deadly. I have been on Valtrex for about 7 or 8 months and now on Valcyte for the CMV. ... (2 replies)
... Hi AH, I think I did about 8 months of valtrex and saw a big improvement. Valtrex is more for the EBV virus. I was doing think it was 1,000 mg a day... Then from what I had been reading Valycte is more for CMV so I asked my doc to switch me over to that...I did that for the last 3 months...Valcyte is MAJORALY expensive...couple thousand a month...I have... (11 replies)
... Hi Meghan! Great to see you. I posted a thread over on the fibro board to you while back. Happy to hear you are up and running! This is GREAT NEWS!! I am doing better than I have been...yeah...second month on Valcyte. And still on zithromax. You still seeing Doc P? Have a awesome day! hugs (5 replies)
... Hi...if you have a positive then you have infectious Mono... Have you had a titer test done? To see what levels the EBV and/or CMV are? Did the doctor put you on any antivirals??? You may want to read up on Dr. Martin Lerner. He is a specailist in CFS..he uses very high doses of anitvirals for treatment. I have been on Valtrex and now on Valcyte. (2 replies)
... CF doc. He was treting me with Valtrex 2,000 mg a day...According to Dr. Lerner's protocol he treats 4,000 a day. I asked my doc to switch me over to Valcyte for a while. He agreed and I am doing 900 a day on this. ... (9 replies)
... Getting on an antiviral such as Valtrex or Valcyte "might" possibly help. ... (9 replies)
... Evening A.T. Thank You for the heads up on the Valcyte. I got dizzy like within the hour of taking it...BUT it could be due to I was having to find things to do for three hours until the pharmacist got the order in...So tomorrow will be a better judge on if it is the medication or just me. And I'll make sure to read over the side effects real well in the morning when my... (59 replies)
... I started the Valcyte today...doing 900 mg. Will let you know how I do on that. ... (59 replies)
Anti-Viral meds..
Jun 26, 2007
... Will be starting Valcyte for awhile after he gets my blood test! ... (59 replies)
Anti-Viral meds..
Jun 22, 2007
... So that is my update....will start the Valcyte as soon as I get my labe work to him to make sure my liver and bone marrow are fine! ... (59 replies)
Anti-Viral meds..
Jun 16, 2007
... Hey there. I'm a newbie on the message board but have lived with Chronic EBV for a long time. About 2 1/2 years ago it knocked me right off my feet and theat's basically where I've stayed since then. I've been excited about the Valganciclovir (Valcyte) study at Stanford, pinning most of my hopes on that. I've never heard of using Valtrex before. Nor have I heard of... (59 replies)
... Hi Katlin.... How long have you had Lyme? So you only did 42 days with a picc? I had a picc prety much for a year...are you taking any other type of antibiotic with the amox? I was on cocktails of antibiotics... I have read up on your doctor...I know he is VERY knowledgeable with virus's ...but what about Lyme? I wish you all the best and a quick recovery. Took me... (7 replies)




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